Hello, my name is Cornelia, I am 62 yrs. old and I was diagnose with HCV on 2000. I spend hours on the forum and I decided to go with new treatment. Because I have genotype 1b I did not agree with conventional treatment. Two days ago I do blood work, next week I will do liver MRI and after that I am ready for the...
Hi to all, haven't posted in while but i have great news. I recieved the answer i was looking and praying for yesterday. My labs came back undetectable at my 4 week bloodwork on Harvoni. This is truly and miracle for me. I failed my past treatments and for the first time i've ever been told you are undete...
I just got the results of my 8 week labs & wonder why the 6 week labs say UNDETECTABLE but the 8 week labs only say <15 IU/mL ????It is much more satisfying to see the word "undetectable." Is <15 IU/mL really the same thing? I attached the report of the labs for weeks 2, 4, 6 & 8....
I was called in to see my consultant today after the bloods I had last week showed an iron deficiency. STILL UND! He said that this meant a cure! After carrying this vile disease around for 38 or so years and 2 lots of Interferon these new drugs have saved my life even after the first 2 weeks in. I hope e...
My hospital doesn't declare HepC cure until EOT + 24: just got the results back, according to them I'm now officially cured! My platelets are slightly down from October EOT + 12 (71 down to 68) and my AST is slightly elevated (49) but I'm not complaining and will just keep eating healthy and try to reve...
Hi everyone...You guys were a lifeline a couple years ago when I was first diagnosed, but I wasn't a candidate for the treatments available at the time and research indicated there were newer, better options on the horizon. I introduced myself then, lurked for a while, felt like a fifth wheel as I wasn...
Hi everybody. My first 15 wks of Tx were managed like clockwork with little sx's, then an accident put me in the trauma unit for 1 1/2 months where attention to Hep C took a back seat to other more serious issues. But my Sov/Riba regimen was still followed with only a couple of days missed due to surgery'...
I read somewhere that the ingredients in Harvoni have yet to undergo testing as Carcinogens, i have been looking for that article again but cannot find it. Sorry for letting my neuroticism kick in but i would hate to think that i will be cured of Hep C and get something worse from the treatment...Anybod...
I was prescribed 24 weeks Harvoni and Ribavirin from my doctor. I went to get my prescription today and the pharmacy said it was only okayed for three months and they would have to get approval - can they go back on a prescription if guidelines changed since I have been on???
The well-known international humanitarian organisation Médecins Sans Frontières has strongly criticised the decision by US-based Gilead Sciences to expand its existing voluntary licence agreement with eight Indian generic drug-makers for sofosbuvir and ledipasvir to include its investi...
Hello all. My name is smith. I am from USA. Currently i am on treatment of impotency. From past two months i am on this treatment. I am on generic viagra medication as this is recommend to me by my doctor. According to him this is the best drug to cure impotency in a effective way. -- Edited by Tig56 on Wedn...
UND, UND, UND! Oh I wish My husband did NOT have HCC!!!!! Praying to GOD that everything will go well with the Radioembolisation At least now the virus is no longer there to hurt the Liver! The doctor extended his treatment to 24 weeks and the Insurance promptly approved the request. Mena
Hey guys, wanted to ask you all this question...Both my husband and I are experiencing this. For the last 2 years he's been having constant nonstop tingling in several fingers of each hand. I'm coming up on a year of the same thing, but my tingling in concentrated in both feet (I don't have diabetes -...
Making Alpistle Milk Quick NO SOAK Method, Rev. 7/17/14 , pronounced (al-PEES-t'lay)Alpistle seed (canary seed) pulp contains the enzyme lipase, which breaks down fat in the liver- a problem with those who drink or have HepatitisC. This is a folk remedy from Mexico for alcoholics. Sold in animal...
Below are test results that seem to me out of whack, but who am I to judge? Trying to determine if there is cirrhosis along with the high score for fibrosis. I am 7 weeks into 24 weeks of Harvoni, prior relapse a couple years ago Victrelis/Int/Rib 28 weeks. HCV1A. No biopsy in over 15 years. That biopsy did...
I don't know about anyone else but I think that there is so little info on these new and much welcomed drugs that maybe we should compile some kind of list of sides. Some physicians know about these but most don't and you feel that you can't keep going to see them for hand cramps, itching etc. Anyone who h...
Been awhile since posted, cleaning up around here and found and disposed my last two empty syringes of Eprex and the Interferon, past is the past, health wise noting to complain about feelin the best I have in 10 years, side effects of treatment over, liver and blood back to where it should be, took a lon...
Hello, One week of Harvoni behind me and all is well! I'm very happy to say that. I have heard that the liver does an excellent job of healing it's self. Does anybody know if the fibrosis will heal and go away after the body has cleared the virus?....Roger
Looks like wonderful news from Australia--if it can be implemented. Interesting article. Key role for Hep C Inquiry- By 2030 there should be no deaths in Australia related to hepatitis C SuziQ
Have you ever wondered where the HCV replicates within your body? I have asked multiple Doctors, read books that have made statements and heard other strange answers. What do you think? Where is the Virus Hiding? It seems very important to recognized that the replication process takes place some...
From the American Academy of Neurology: Recently published data from a study on imaging abnormalities, neurocognitive function and fatigue in patients with HCV."It has long been known that HCV is hepatotoxic; increasingly there is reason to believe that it is neurotoxic as well. While t...
well half way 24 weeks and i must say its is nice to know im on the home run.i guess its like struugling up a mtn and the leasurley walkin down the other side. i managed to get a scanned image of my results way back to 2012 if anyone would like to comment i now there are some very switched on people here and would...
My Mother (50 Years old) was found suffering from Hepatitis c in November 2014.She went for anti-HCV, PCR-Quantitative, PCR-Qualitative, and HCV Genotype tests. the toprate of HCV-Quantitative was 1683 IU/ml. Then go for an ANA and it is negative. The Genotype test said that No HCV Genotype coul...
I have GT 3e. the stats on the current recommended treatment Solvaldi/ Ribavirin for 24 weeks has a sustained SVR from 61-87%, depending on level of cirrhosis. I am 12 years post transplant so fibrosis/cirrhosis is very likely as is fatty liver with this genotype. I cannot take any form of interfe...
Here`s an extract from Merck`s recent letter to pharmacy professionals concerning the voluntary discontinuation of Victrelis by Dec 2015."SUBJECT: Merck Voluntarily Discontinuing VICTRELIS (boceprevir) 200 mg CapsulesDear Pharmacy Professional: We would like to inform you that Merck has...
Thought it would be helpful to have all those taking the off-label treatment to be grouped together in some way. If you are on Sovaldi/Olysio either with or without Riba, would you mind posting here so that we can get a better idea of how many are on these protocols, the side effects, if any, with and wit...
Hi, I am new and waiting on treatment. I have genotype 2 and hope something in the near future comes out that isn't as harsh as the current treatment (ribavirin). Nice to meet everyone and I'm also here to learn as much as I can on how to take the best possible care of my health. I have learned a lot in the...
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