Hi all, Im new here, so a quick introduction. I live in the UK and am a single mum. My partner of just 6 month has recently (this week) been diagnosed with Hep C we are unsure of the geno as of yet.When I met my partner, J, and it was pretty much instant attraction from both ends, and since our first date we have...
Hi! I'm new to this forum and just completed my first week of Harvoni. I feel now that the slight side effects I had been experiencing my first few days are getting better. As for the fatigue, I am wondering if it is ok to begin taking B12 and Vit C again...as well as D3 as I was prior to treatment?
Recently, the National Sleep Foundation released new recommendations for Americans of every age. While these are recommendations, there are always reasons why people may require more sleep than recommended. For instance, if you have an illness or are being treated for hepatitis C your body ne...
I received the results from my 24th week blood tests, UND!! when I started this treatment back in August of 14 I was very hopeful that these new meds would take care of things. 1st blood test at 5 weeks UND, 2nd blood test at 12 weeks UND, and my 3rd blood test at 24 weeks UND!! WAHOO thank you Giliad for your m...
Hi Folks, My Name Is Rick and my second Hep C treatment failed. First treatment was 6 years ago. Last treatment (tripple treatment with Incivek) started in Jan. Load went from 750.000 down to 47 first month. Then my docter called with bad news. Levels went to 13.000. I asked for new labs in case of mixu...
Got this info from another forum. The trial is at Univ New Mexico. Just thought someone in the area might be interested. I did a phase 2 Merck trial and it was very successful at my trial center. Haven't checked this contact out --just passing it on. Since Merck is responsible for my SVR the notic...
Hi , Does anyone remember when, in late November, I had a biopsy of a pancreatic cyst? Well , Im sure I complained about the chills, fever, pain and weight loss. S&S lasted about a month. While ill , I went to the Dr. and to the emergency room and they never did cultures for infection . My WBC...
Well done Portugal! February 19, 2015 - `Innovative drug, Sofosbuvir, to treat hepatitis C is 100% subsidised in Portugal since Tuesday evening and will be given to all patients who need it. Eurico Castro Alves was speaking at the end of a meeting with the administrators of all hospital that treat h...
I came across this caregivers guide by Lucinda Porter, RN,. While a couple of years old, it still applies and may be helpful if you have a friend or family member that needs some advice. I found it well written and hope it may help anyone needing it. http://www.hcvadvocate.org/hepatitis/factsheet...
Hi everyone. I am new to the site. I have some questions that I could not find an answer to since I have not had a recent appt. with a gastro doc yet. Many years ago I had some pre-employment testing done and they showed hep c antibodies. The gasteoenterologist I went to for further testing said my test sh...
Hello, I've been battling the insurance companies for the past 2 months trying to get Harvoni authorized. My viral load is 3.5M and my staging is 2+. My insurance company is only approving 3+ liver disease staging. It seems that once another effective combo drug comes onto the market, Gilead's mon...
Hi all, So happy to share that I was approved for Viekira Pak (12 weeks, no riba)! My doctor first prescribed Harvoni, but my insurance - Express Scripts - denied it. Are there others here on Viekira Pak? If so, how are you finding the side effects? Thank you!
Hello friends, Long time since I wrote in this forum. Last time, in September, my doctor told me they had got Simeprevir/ribavirina / interferon,to treat some people, but not for me, just to F3, F4. During those months Gilead and the Government have been in conversations, and the Health minister sa...
At age 19, I was infected with hep, I think it was of the B type. Was hospitalized and released in a few days. Never given any information about the disease. Thought I was over it. Fast forward 45 years. Took a pilates class and couldn't handle it, my body revolted, BP spiked, had panic attacks, went to a d...
We just got labs back for my husband who had been on Solvaldi/Olysio and they came back UNDETECTED!!! We are excited beyond belief. So for everyone fighting the good fight...keep going. The fifth time was the charm! Thanks for all the words of wisdom, encouragement and advice. It was invaluable...
Dear Hep C bros and sisters: Thanks so much for your kind and informative response. I always get so much out of this group. Anyway, my next question is about the disruption. I have had 8 weeks of treatment. The my insurance company got bogged down in sending out January bills and so I didn't pay the pr...
Hey everybody how's it going? I was on the forum over year ago when I started my triple therapy of telaprivir/peg interferon/ribavirin. My viral load went down significantly but unfortunately about 12 weeks in it started to climb again. Treatment was discontinued. I just went back to my doctor this...
Could This Be The Biggest Advance in Hepatitis C since Gilead Sciences' Sovaldi?By Todd Campbell | More Articles February 16, 2015 | Comments (1) Tiny biotech stock Achillion Pharmaceuticals (NASDAQ: ACHN ) reported what could be pretty big news for hepatitis C patients this week. The clinica...
Does anyone have any experience with this drug?http://www.medicalnewstoday.com/articles/52735.phpSulphasalazine Can Reverse Liver Disease Even For Heavy Drinkers Sulphasalazine, a cheap drug currently used for arthritis and IBD (inflammatory bowel disease) can reverse the scarrin...
Good Morning all, Been awhile since I've been back here. Started Harvoni TX Dec 8 and am starting week 11 this morning. Just haven't had a lot to report fortunately. Do have some questions you may be able to help with. I've noticed most people on here post about numerous tests being accomplished durin...
Did the Interferon tx like 4 years back. Made me extremely sick only could take tx for 30 weeks. Unsuccessfull. Been waiting for new tx and now its here. 12 weeks and I start tomorrow. Is this stuff as good as they say?
Now we're talking!Gilead will supply Germany at almost half price. I hope Australia can get a similar bargain.I guess Gilead had to start high but we're starting to see the benefits of competition.http://www.reuters.com/article/2015/02/12/us-gilead-sciences-hepatitis-germany-idUSKB...
Hi guys,It's hard to believe but it's 2 years since I finished my 48 weeks of the Victrelis triple. I really don't think I have any residual effects from the drugs and it's hard to know if I have any long-term HepC problems.At my age, it's hard to know what's normal-for-age. My contempories (who have no...
A little background on myself, i am 55 and have had Hep C for about 25 years and have never received any treatment until yesterday with my first dose of Harvoni. Here are some of my stats from 10/27/14: I am F2-F4 Viral load of 2,596,888 AST 63 ALT 56 I honestly am not sure what all of that means... Anyway i a...
Hi all,I don't scour the Medical literature the way I used to, but I must be missing something. There are many unanswered questions about the Viekira Pak from AbbVie.Usually the FDA gives a detailed profile of drugs it has approved. I can't find any new information about the AbbVie drugs.AbbVie has s...
Hi, I am new to this site. 10yrs. diagnosed. F3 Fibrosis. My genotype went from 1b to 1a (?). Would like to know if any member has started Abbvie's coctail yet. Any side effects? Doc wants me to do the Ribavirin. Yuck. Relapsed on Pegasys treatment 8 yrs. ago. Here I go again. Express Scripts dropped the...
I was doing some continuing research into this blog and found this article from 2014 that goes into short specific descriptions of various liver ailments. Again, I found it informative and wanted to share it for anyone interested in learning more on individual conditions. http://orangeisthenew...
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