Healthcare guidance body NICE has today published final guidance recommending sofosbuvir (Sovaldi, Gilead Sciences) and simeprevir (Olysio, Janssen) as treatment options for some people with chronic hepatitis C.Sofosbuvir has a marketing authorisation in the UK for use in combination with...
Hello Everyone, I'm waiting for the specialty pharmacy to finish my Harvoni prescription processing. When they received the prescription I called and gave them the 5$ Gilead co-pay coupon information. Tonight when I called to check on their progress they indicated that the 5$ co-pay coupon mig...
Hi all,I've been meaning to do a post on this for some time, and was even going to send it to a Journal, but couldn't be bothered with all the Bibliography, rewriting, references etc. I've been through that before. Cirrhosis ( from the Greek- 'yellow condition') has long been regarded as the end stage o...
I was to start Harvoni last week, but I had some sort of bowel issue and I was in hospital for 6 days. My Dr did all the tests again. I do have some mild fibrosis. My viral count is still 25 million so the Dr said it is time to treat. I will have the meds Tuesday. I am grateful to evil Pharma Corporation for p...
Hi all, Just got back from seeing the nurse and was told my ALT had risen from 76-191 since my last test 2 months ago. The PCR hadn't been completed so no way to know if the virus has returned. Although the nurse said not to worry as levels can fluctuate during treatment. I'm currently doing 48 weeks with T...
Hi all, I finished 12 weeks on Harvoni last week (2/17), and today the nurse practitioner said my Viral Load test on 2/18 came back UND. Woohoo!!! But then this has me confused: When I started treatment in November she gave me a standing lab order for blood work for 6 months. The first three months...
Hi all,I've just spent some time talking to a Virologist at the PA Hospital Liver Unit. I've cancelled a lot of my on-line subscriptions and wanted to be sure I haven't missed anything.The whole topic of RAVs (Resistant Mutations) is still poorly understood. The antiprotease RAVs have been discuss...
Luckily, approval was relatively easy and fast. Shipping on Monday and starting on Tuesday. Guess all these years of frustration with my Cigna was worth it. I just knew I had to wait and pass on Interferon despite the Doctor recommendations. High viral load and moderate fibrosis but liver function t...
Hey Everyone, Doing my blood work yesterday was extremely stressful and felt exactly the same as my EOT and SVR 12 tests. I felt better about the outcome after seeing my quick to post CMP as my ALT/AST were both 27. Today it was confirmed with the golden standard viral titer that I'm officially SVR 24 (No...
Let's hear your worst incivek foods! New guy here, about to start Harvoni. I made it 12 weeks on the incivek triple therapy before I had to quit due to inadequate response, what a terribly difficult 12 weeks that was! I was devastated to have made it through the incivek pills only to have to stop 12 weeks...
Hi everyone, I know this treatment has worked - I have been left with severe anaemia but am able to cope with work. I don't know how to describe it but in my clumsy way I will try. I just feel brighter, I smile more (am moving onto laughing).Everything in this house is not just about me and my illness, I al...
My diagnosis came back F3 Bridging Fibrosis. What is the telling me about the condition of my liver and are there chances of reversal of the damage if the HCV is eradicated?
I understand that one of these is an "ultrasound" type test and the other is a blood test. What are the disadvantages of the Fibrosure? My results were F3 Bridging Fibrosis with many septa. .64 is the number associated.
I would love to get my hands on the underwriting guidelines for the company that provides Life Insurance through my employer. I currently have 2x my salary and last year (in anticipation of purchasing my home) I attempted to raise my life insurance amount. I completed the statement of health and the...
Hello, I was approved yesterday for 8 weeks of Harvoni. I was checking today to see if there was co-pay and to get an idea on when the medicine would be arriving. Unfortunately all I was able to get was a morning full of vague, rehearsed answers from everybody. For those currently taking Harvoni, 1.) h...
Yes connie relapsed but don't get all down in the dumps...I did 8 weeks of treatment, virus undetected after 4 weeks, barely detected at 2 weeks... at 4 week post treatment viral load test... viral load 6,000 or so... whatever... my liver got a 2 month rest.... if I had done 12 weeks it would have only inc...
Our member Rblood or Roger sent this to me yesterday and I wanted to share it with you. It's an article published in July and August of 2014, so it's relatively new. While technical in nature, the charts and discussion on fibrosis regression is particularly interesting. I hope this helps answer some q...
Dear harvoni family, I have medicaid in NY its Unoted Healthcare Community Plan. I got a letter from PAN allocating 20,000.00 towards my Harvoni. I haven't been able to see one Penney of it because United HealthCare Community Plan keeps denying me for Harvoni. It order for the PAN to take effect y...
Hi folks,
Mike here (a.k.a. MechanicMike). I'll be seeing my GI for my first visit one week from tomorrow. My wife and I are obviously concerned that she is possibly infected with hep c 3a (my new little friend). She's going to have her antibody test tomorrow. Hopefully, this will be a moot point and sh...
Hi All, Just got off the phone with a PAN representative. I filled out an application online over the weekend and they called me today. I've been approved for $15,000.00 assistance (which is a Godsend, even though I haven't begun the battle with BCBS yet). I won't see my GI for my first visit until ne...
Hi Everyone, I should be receiving Harvoni soon and I hope to start treatment within the next week. My GI prescribed one tablet a day for 8 weeks. I've read of the 8 and 12 week programs but it seemed that they both involved taking 2 tablets a day. If there is a mistake in my prescription I would like to ca...
Hi all,I've just got my EOT + 2 year Labs, so I'll post them. Not of much interest except to me, but they show liver function can improve. EOT EOT + 1 year EOT + 2 yearsALT 81 46 36AST ...
hello everyone,I'm new to this forum and basically desperately seeking funds for a very poor needy man with 5 daughters living in kashmir region of Pakistan diagnosed with hepititis c and very low platelet count, I would be grateful if you can donate whatever you can even $5 and spread the word to othe...
Hi all, Tom went to his doctor here Thursday and the Pharmacy network called him yesterday to say he got the approval. He called the nurse this morning and will have the doctor fax the script for harvoni on Wednesday. Hopefully he will start his 24 week treatment this weekend and the sixth time will be...
Monday, February 23, 2015 - AbbVie today announced that results from part one of the Phase 2 portion of its Phase2/3 open-label study, TURQUOISE-I, in genotype 1 chronic HCV patients with HIV-1 co-infection were published online in The Journal of the American Medical Association (JAMA).Additi...
Hi all,Sovaldi seems like an old friend, yet Clinical Trials only started in 2010. It has an interesting history which may help explain it's high price.The first molecular cloning of the HCV genome occurred in 1989. By 1999, full-length selectable replicons were available and researchers began t...
I was looking in my storage when I cam across this. I must have just stuffed it in a box and forgot about it after they told me it wasn't working. Back then I was on a study. That was maybe in 2002-4 I didn't look at the date and I don't remember LOL!!! How far treatment has come.
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