Hi All, I have been busy trying to get the story of my diagnoses and this is something I have never really encountered. Aft about a month, I have had no success in getting a Dr. Some of it is Insurance issues, others it is system. I was able to get the reports today.. Besides the bleeding ulcer I had, ...
Key Points: NICE draft recommendation for SofosbuvirPLEASE NOTE: This is draft guidance; NICE has not yet issued final guidance to the NHS What is recommended for treatment on the NHS?Sofosbuvir, interferon and ribavirin for adults with:Genotype 1Genotype 3 with cirrhosisGenotype 3 who have p...
I realize the importance of complying with a tight schedule while on these Rx's, and I have devised several reminders and fail safes in order to ensure my not missing a dose as a result of my own forgetfulness, or lack of attention etc. I would hate to think how far off the chain I would go if I was forced to...
Just wondering how many of us out there made it to the SVR 12? I know Maddie did -- hooray? anyone else? I'm only 6 weeks post tx and UD but it'd be good to know how many of us made it to the official finish line UD! Thanks and light to us all on this journey to health. OMJ
Hi I am new here but I have just started the sovaldi/olysio combo. 4 days in and no side effects. When I was diagnosed they told me my viral count was low and there was only a 50/50 chance of cure so wait. Since then I have been diagnosed with Congestive heart failure and at 48 need a heart transplant. Well y...
Wednesday, August 27, PRINCETON, N.J. - Bristol-Myers Squibb today announced that the European Commission has approved Daklinza (daclatasvir), a potent, pan-genotypic NS5A replication complex inhibitor, for use in combination with other medicinal products across genotypes 1, 2, 3 and 4 fo...
Hi all, I have been pretty busy lately so I thought I would pop in. Well, I still haven't started treatment. I can't have Solvadi until September. The damn insurance companies are making their "plans" because of costs, so Gilead won't be supplying until then. Since I have been delayed furt...
Hi All, I've been posting here and there for a while and never dropped by here to say hi. Soooo....hi! I probably acquired Hepatitis C sometime in the late 1960s. I was diagnosed in 1989 and my gastroenterologist, after a biopsy, said I should stop drinking and then forget about it as it would never deve...
Took my last 2 pills yesterday. After that I threw out everything related to treatment...pill bottles, inserts, everything. I'm not sure why - I guess I just want to feel healthy again and I don't want any reminders. I was UD as of ~2 weeks ago and will test again Friday. Next stop SVR, I hope! :)
Hi Everyone, I just finished the last of my treatment today (S/O). The last month was great compared to the first two and coffee for some reason made a huge difference in my sfx. Hopefully that's a good sign? I go in for blood work Tuesday and will do my first VL test since Dx. Next is a 12 week EOT VL test on No...
Looks like Sovaldi is too expensive for Australians according to the government? http://www.gastroenterologyupdate.com.au/latest-news/sofosbuvir-and-vedolizumab-knocked-back
Hello,First time poster, long time lurker. Great site and really great people here based on the posts and feedback; Super helpful to those of us lost in the muck that is tx, sx, new tx, new tests, etc. Thank you for this.My short-ish story/experience that may help some of you doing the Sovaldi triple Tx...
Well It seems this dilemma with my workplace may be worked out, The Federal commissioner from the EEC called and said he was just off the phone with DHL lawyers and They say They are sorry and will give me all my back pay and have ask me back to work, It will take a week for the Fed;s to do paperwork, But I can h...
the liver is acting up. or what. I had a friend that did that. she is no longer here. :( I have heard other ppl too..i have soaked my feet & scrubbed with a foot thing. I accidently bought some coconut oil in the pharmacy by the vitamins that is organic, but it says it is good for cooking.. lol I have r...
I'm new to the forum and don't know how to contact a moderator with this suggestion: can we start a thread that lists end of treatment data? Another Hep C forum I visit started such a thread and it is really helpful to me to see who is reaching SVR vs relapse. Each person is recording what drugs they used for...
I haven't been feeling good at all. got off treatment 7/17 my hair is now falling out a lot. could this be treatment after effects or maybe stress. I have enough of that to go around. I haven't quit smoking yet due to I know I am stressed. I have to get stronger in my mind. I don't know. just depressed.. but I...
I'm looking for some healthy dessert choices, as my wife is missing the sugary after-dinner desserts we used to indulge in. I can't really enjoy the fatty and/or sugary "comfort" foods anymore, since being committed to reducing my fatty liver threat.
Hello everyone, hoping today is a good day for you. This is my first attempt to reach out and be part of a support community. I have had hep c 1a for 9 years. I am almost 5 months into treatment (boceprevir). I began treatment following the news my liver is cirrhotic. I am really encouraged to have found th...
Here is a list of the 5 DAA combos that are coming soon. The drug manufacturer, genotypes each will treat, and the expected FDA approval dates are noted: ledipasvir / sofosbuvir Gilead NS5a inhibitor/nucleotide analog polymerase inhibitor Genotype 1 CHC 10/10/2014 _______________________...
I looked at my calendar while on vacation this week and realized that June 19th was the six months anniversary of the end of my treatment. I had blood work at 5 mos. and was und. Looking forward to my next blood work and hopefully SVR. I have that terrible 5 year test that we have at my age on Tuesday. Fun...
I missed a call from Skyemed pharmacy on Friday. When I got home and checked my email from work (we use outllook webmail) so I can download messages from my work phone. I instantly called Skyemed pharmacy (a specialty pharmacy) but they were closed. I'm in the process of trying to get approved for the CO...
Just so people know, you have the option to view the newest post first - or the original post. Below explains how to make the changes to suit your preference. Click into 'User Details' along the top bar; On the left hand side, under 'Profile', click into 'Settings'; On the left is listed 'Order of Comm...
"SOF has a high barrier to resistance; however, low frequency NS5B substitutions associated with treatment failure were identified that may contribute to resistance of this important drug for chronic HCV infection." [url]http://hepatitiscnewdrugs.blogspot.com/2014/08/cli...
How will treatment will change my cirrhosis because of treatment? Does anyone have knowledge about this topic? I'm at 9 weeks of a 12-wk treatment (Riba, Interferon, Sofosbuvir) Hope you're all doing well. It's a nice summer evening here in the Pacific NW.
You are so right, Mike. This is very exciting news! Congratulations Duane and a double standing ovation for you. wmlj1960 wrote: Congradulations on SVR 12 Duane! You need to start your own SVR thread so we can all have a big party to celebrate your success. Dzdayscomin wrote:N...
Hi! Two months ago I was hanging out with a friend, and a friend of my friend -which I don't know- offered us some fruit and we ate it. Since he probably washed that fruits with his own hands, is it possible for us to get hepatitis c or hiv ? I know, it may seem stupid to ask such a question but I am really curious...
After my third shot I threw up all night and had diarrhea runs at the same time. Which was unexpected because my second shot gave me only some fever. I had one small piece of watermelon that evening which smelled with nitrates so I am not excluding it was poisoning with watermelon. Or maybe it is the inter...
Hi. I am on week 6 of a 12 week Sivoldi/RIBA treatment. Side effects have, up until 2 weeks ago; been minimal...some irritability and short temper; and insomnia. 10mg Ambien along with 100mg of Benadryl and still get only 3 hours a night. But, 2 weeks ago I developed a poison ivy rash on my shin, the back o...
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