It's not a great topic, but some patients are going to relapse on Sovaldi. With all the hype and glowing SVR rates from the Trials, expectations are high. It is natural to feel gutted when relapse occurs.Results from Clinical Trials rarely translate into real world practice. Although the Sovaldi Tr...
I'm two months in and I have one month to go. The pharmacy called to arranged delivery of my last months supply of medications. We also went over the two-month supply of meds I just completed. After the count the pharmacy says they gave me more sofosbuvir pills (two) than what I say I took. In other word...
I like running, or any sport that is aerobic, but I've allowed myself to become sedentary during treatment. So today I decided to get out there and run with the dog. I did three miles! I had to stop and start, and stop and start, and the dog was faster than I was but I did it. The meds aren't gonna keep me down...
Wondering if you guys could give me an idea of what symptoms you felt with cirrhosis. My doctor said I don't have it, however, I havent had a liver biopsy since 2002 and wanted to know some of the things which might indicate its progressing to that. This of course is a message to those who have cirrhosis. T...
I had bad chills and fever all night after first injection, but still have had low grade fever whole afternoon and feeling lethargic. Plus stomach ache and diarrhea as well. Should I raise alarm and call doctor or is it normal to have prolonged low grade fever? Overall, I'm managing this well though.
Hi all, I posted a while back that I had found some data that showed that doing the Sovaldi and Olysio for 24 weeks instead of the 12 showed a higher SVR. So I had asked my doctor if he recommended that I continue. I had already cleared at week 6 and wanted to do the full 24 weeks. After a very long struggle, I wa...
Well.... Excellent posts in the last few days from you guys I read them.....lots of DAA coming out between now and prolly 6 months to year means im hopin and thinkin...Price reductions once competition heats up which should make insurance Reps.. more at ease ... ANYway on with the stuff i got in the m...
Had my first shot yesterday. My sister's husband, who is a doc did it on my arm, and my shoulder hurts bad now. Had chills and fever all night. I hope that's all sx I will have.
Dear All, It has been 9 and a half weeks after completion of my 24 week interferon and ribavarin therapy for GT 3. Today I noticed that my nails were half pink and half white (white at the base). I have researched on the internet and this is mentioned as Terrys's nails. Amongst other things, it could be a...
Greetings All! It has been way to long since I last checked in! Just did my one year labs last Thursday and ......Undetected! I am so grateful to be considered cured! Had a ultrasound on Thurs also so I will see if there has been any improvement in my liver since I am cirrhotic. Please know I am feeling good...
I am geno 1 ...starting my third month Savoldi an RIBA been eating to much was afraid I was gaining weight but when I step on scale I had lost weight. Is this normal?
Hello, Did anybody notice a lift in depression or energy after completing treatment? I haven't noticed any posts around this topic. I'm starting treatment next Friday and frankly what I'm reading here about depression during treatment really frightens me. Thank you!
Ok well I'm in Ca and was diagnosed 2 yrs ago with HCV GT1a for about 30 yrs now. Was on interferon poison and lasted only 5 wks due to multiple hospital visits and transfusions....it was the closest to death I had ever felt.....
I have been having fatigue on and off, but lately I started having this itching, which is not very intense but disturbing. Does it mean that my liver disease is progressing? -- Edited by Doni on Wednesday 23rd of July 2014 08:04:19 AM
I went to my Doctor today. He wrote the prescriptions for my treatment. I will return Friday afternoon and his Medical Assistant will have obtained the drugs and will instruct me on how to inject the peginterferon. I will have ribavirin and Sovaldi as well. HCV genotype 1
Hi everyone, I just have a question - my husband was on triple therapy with Victrelis and is 6 months post now. He is getting worried about his memory not being what it used to be. I can tell he is clearly concerned. We are seeing the specialist in early February so will take it up with her then, but wonde...
For anyone who`s wondering how and where to do their interferon shot, here`s some information published by Roche on the correct way to perform a subcutaneous injection. Scroll down for step by step instructions and a diagram of the recommended areas to use... http://www.medsafe.govt.nz/consu...
I went to my infectious disease Dr. yesterday and received an "encounter Form" in order to show I attended my appointment so I can get gas $ reimbursement for 105 miles of gas. On the form it list some of my health issues including 571.5 cirrhosis. But why is the word 'cryptogenic' included?...
Today I feel extraordinarily lucky and sad. A very close friend will likely die, today or tomorrow, due to end-stage liver disease as a result of Hep C and drinking. He didn't do enough about the Hep C until it was too late. I have a shot at a second chance but he doesn't. Watching him go through this rem...
NICE (the National Institute for Health and Care Excellence) consults on further draft guidance on the drug sofosbuvir (Sovaldi) for treating hepatitis C15th Aug. 2014 - In further draft guidance NICE has recommended sofosbuvir (Sovaldi, Gilead Sciences) as a treatment option for some people w...
Read today that Vertex plans on discontinuing production of Incivik in October. Use has dropped significantly according to a wall street journal article. http://m.us.wsj.com/articles/BL-270B-455
If you haven't seen the April 2014 WHO (World Health Organization) HCV care and treatment guidelines, I thought you may be interested in reading their recommendations. There is a lot of interesting information. I looked for it's previous inclusion here on the forum and didn't see it. I apologize if...
I'm really agitated right now with my doctor's office and I'm hoping I can get some confirmation from knowledgeable people here that I'm not crazy. I've had two PCR tests thus far during my treatement: one at 2 weeks and one at 4 weeks. Both tests had this result:HCV RNA IU/ML<15 IU/mL<15 DETEC...
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