Hep C Discussion Forum

lamassu · lamassu

I had an interesting chat with my hepatologist today on follow up after ending Epclusa treatment 9 days ago. He said the fatigue I had during treatment with Epclusa generally affects his older patients but there are exceptions. He also told me to consider myself cured until proven otherwise. If rela...

Kat12 · Kat12

Is it ok to drink socially/casually if you are fortunate enough to be cured of Hep C providing there is no cirrhosis of the liver

angelseven · angelseven

I am trying to start treatment with mavyret as soon as I get the funding for the meds worked out... I will paste some info from another thread as to my journey in trying to retreat without the proper insurance benefits... LOL

Canuck · Canuck

Just another (recent) study about treating 80 year olds (and older) for HCV - but it just happens to lend support to the thought about the importance of earlier treatment. Excerpt only (see entire article) from: Journal of the American Geriatrics SocietyHepatitis C Virus Clearance in Older Adu...

LamontCranston · LamontCranston

So...after my 100% Cure of HepC...(ta da) I got this crummy eyeball infection, herpes in the eyeball. Who comes UP with this stuff? And of course I got the infection that would not just go away, and it left me with reduced clarity in my right eye. Ok, not the end of the world, unless you are in California wh...

huynhthi870 · huynhthi870

Anyone get the gold from Kaiser yet?

cbr45 · cbr45

Greetings all I am cured I did my 12 week out patient treatment program but not at a severe cost. The nurse practitioner that prescribed Viekira Pak did not check my medical history. In High school I played football was tackled hard and resulted in Epilepsy. For 15 years I ha...

Iris Dragonfly · Iris Dragonfly

Hi guys, hope you are are doing well, been so busy busy. Then my cousin who was like my big brother died of mesothelioma in 4 months, still grieving that pretty hard. I've been so short of breath but figured I was just working too hard, then after my cousin died so quickly I steped up some doctor visits , go...

marjim48 · marjim48

Hi-- My brother was just given diagnosis "hepatitis C without hepatic coma". I know what hepatitis C is but what does without hepatic coma mean? My brother lives by himself in another city. Nobody to go with him to doc. They just gave him diagnosis and told him he has to go on meds. I don't think they expl...

belladaisy2018 · belladaisy2018

Talk to your specialist about it as there are meds out there to help with this side effect. treatment is tough and with little ones at home dealing with them, situations/stresses can certainly be heightened. Thanks Bella

LamontCranston · LamontCranston

Just checking in with 2nd good lab result at 2 months: ----------- Greetings-On September 18, 2017 there was no Hepatitis C virus detected. We will check again for the virus on October 16, 2017.NameOfNP NPGastroenterology ------------- One little hitch, I developed a ocular herpes infection in m...

Tig · Tig

People with hepatitis C virus (HCV) very rarely experience a relapse of the virus following acheiving a sustained virologic response 12 weeks after completing treatment (SVR12, considered a cure), Reuters Health reports. However, certain populations of those treated for the virus are at high r...

Canuck · Canuck

Need for better screening and capture (and treatment) of boomers who are HCV positive.With just some simple measures they have improved screening, perhaps as much as from 28% to 72% (in some circumstances). Without testing, without capture, there is no cure, and certainly no eradication of the ep...

Finleartor · Finleartor

hello need help with tire advices and Tire size specification for my car Chevrolet Impala 2012??

LamontCranston · LamontCranston

Pictured, the Final Dose. All things considered, it was a piece of cake. I took my pill at 9:00 PM every day for the 12 weeks, at 4 weeks I had a "Virus Not Detected" lab result, my ALT , AST results were in the 16-17 at 4 weeks and at 8 weeks. The results for today's labs will hopefully be as good. Most wonderfu...

RLS · RLS

Newbie here and catching up. In week 14 of 16 of Mavyret treatment. This is my third attempt at eradication. So far so good as my tests show the virus is undetected. Now it's a waiting game for SVR. Had nasty headaches around week 8 that lasted 2 weeks. Luckily they went away. I also now have high blood pres...

mallani · mallani

Hi guys, The Australian HepC Forum has just closed, due to lack of new members. Over here, all the new antivirals are available to all on our PBS system. ~$50 for most people, $12 for the pensioners and free to others. It was a very busy Forum for the last 10 years, but HepC is now regarded as ' .....a minor,...

Josh Haynie · Josh Haynie

Mavyret

Greg D · Greg D

Hi Everyone, A friend in Alberta Canada has hep c, stage 2 fibrosis, and has been told by her doctor that AAHB (Alberta Adult Health Benefits) will not cover treatment for her. The doctor added that she would have to pay the 60k out of pocket, which she cannot afford. She is not on social assistance (welf...

Canuck · Canuck

Dr. Feld's comments: about re-treatment, with Mavyret (glec/pib) versus Vosevi (sof/vel/vox) - similar to info found about re-treatment in the larger link (2017 Resource - Treatment Options ) and also covered in (2017 Resource - AASLD HCV Treatment Guidelines) - P. 38 of 247 - click on "re-treat...

Canuck · Canuck

From Clinical Care Options - Clinical Thoughts TMFrom Clinical Care Options TM - Clinical Thoughts How New Data From the 2017 DC Hepatology Meeting Shed Light on the Clinical Benefits of HCV DAAsJordan J. Feld, MD, MPH - 11/14/2017 More from this authorFor the first time in several years, we di...

Canuck · Canuck

Here is a series of articles about drug costs, HCV or otherwise - low cost deals, generics, name brands, availabilty and the powers that be - what's wrong with this picture?HCV treatments valued under $100 per patientHelio - December 12, 2016Researchers estimated that a generic direct-acting an...

Canuck · Canuck

Lasker Award winner Michael Sofia created a pill to fight an incurable virus. Now he is setting his sights on another · By Dina Fine Maron on September 13, 2016 - Scientific America Inventor of Hepatitis C Wins a Major Prize -- and Turns to the Next Battle· · · ...

Tig · Tig

California health officials have announced an emergency situation in San Diego, CA. Widespread Hepatitis A outbreaks have been announced in the area. This is particularly dangerous for anyone that may be infected with Hepatitis C or B. Be certain to avoid exposure whenever possible and assure yo...

casher · casher

I have had Hep C for at least 8 years and known about it for about 4. I have yearly blood work done and every year everything comes back normal except for the fact that I have hep c. My VL is always relatively low (last test put it at 245,000). Liver function is and always has been normal and everything is with...

Tig · Tig

Universal HCV screening is a pathway to eradication Infectious Disease News, August 2017Michael S Saag, MDWhen we think about the possibility of universal screening, we can dance around, trying to dig out baby boomers or injection drug users, we can look at different risk factors or select popu...

To Our Visiting Non Members · JimmyK

Greetings, Let us start by saying you are more than welcome here. Welcome to read anything that may interest you. Some of you perhaps just found out you were infected and you are scouring the Internet for information. A bit in shock perhaps and not ready to jump into a discussion. That is quite understa...

Canuck · Canuck

This is yet just another repeat confirmation that coffee may be good for our livers, BUT, (as noted in the many other articles/cpnversations we have had, scattered throughout this site, about coffee possibly being good for you) ... it is supposed to be ground "fresh brewed"/ dripped/or percolated...

Barnacle · Barnacle

When I had my fibroscan the reading was 14 k/pa and I was graded in the 3-4 range. The doc evaluating the scan said I don't have cirrhosis but do have advanced fibrosis. My treatment nurse has several times mentioned things relating to my cirrhosis. I don't know if it even matters or not but when does fibr...

polosilver · polosilver

This information in subject line was posted in my chart after CT liver scan and ask what it means and will Harvoni treatment correct it?

Topic		Started By	Replies	Views	Last Post
	Harvoni vs Epclusa or Mavyret usage rates and follow up testing (Preview) I had an interesting chat with my hepatologist today on follow up after ending Epclusa treatment 9 days ago. He said the fatigue I had during treatment with Epclusa generally affects his older patients but there are exceptions. He also told me to consider myself cured until proven otherwise. If rela...	lamassu	2	2211	Jun 9, 2018 by 5-1-18
	feeling grateful (Preview) Is it ok to drink socially/casually if you are fortunate enough to be cured of Hep C providing there is no cirrhosis of the liver	Kat12	3	1252	May 30, 2018 by 5-1-18
	Mavyret, trying to start treatment!! ( 1 2 3 ) (Preview) I am trying to start treatment with mavyret as soon as I get the funding for the meds worked out... I will paste some info from another thread as to my journey in trying to retreat without the proper insurance benefits... LOL	angelseven	138	16878	May 29, 2018 by lamassu
	Seniors and HCV (Preview) Just another (recent) study about treating 80 year olds (and older) for HCV - but it just happens to lend support to the thought about the importance of earlier treatment. Excerpt only (see entire article) from: Journal of the American Geriatrics SocietyHepatitis C Virus Clearance in Older Adu...	Canuck	8	1865	May 23, 2018 by LamontCranston
	Life's ironies PostTreatment herpes (Preview) So...after my 100% Cure of HepC...(ta da) I got this crummy eyeball infection, herpes in the eyeball. Who comes UP with this stuff? And of course I got the infection that would not just go away, and it left me with reduced clarity in my right eye. Ok, not the end of the world, unless you are in California wh...	LamontCranston	0	1140	May 22, 2018 by LamontCranston
	Kaiser?? (Preview) Anyone get the gold from Kaiser yet?	huynhthi870	3	1357	May 22, 2018 by LamontCranston
	can Hep-c relapse ? (Preview) Greetings all I am cured I did my 12 week out patient treatment program but not at a severe cost. The nurse practitioner that prescribed Viekira Pak did not check my medical history. In High school I played football was tackled hard and resulted in Epilepsy. For 15 years I ha...	cbr45	2	1422	May 9, 2018 by Canuck
	More tests (Preview) Hi guys, hope you are are doing well, been so busy busy. Then my cousin who was like my big brother died of mesothelioma in 4 months, still grieving that pretty hard. I've been so short of breath but figured I was just working too hard, then after my cousin died so quickly I steped up some doctor visits , go...	Iris Dragonfly	9	1896	May 2, 2018 by Canuck
	what does this mean? (Preview) Hi-- My brother was just given diagnosis "hepatitis C without hepatic coma". I know what hepatitis C is but what does without hepatic coma mean? My brother lives by himself in another city. Nobody to go with him to doc. They just gave him diagnosis and told him he has to go on meds. I don't think they expl...	marjim48	1	1236	Apr 26, 2018 by Canuck
	Help me, please (Preview) Talk to your specialist about it as there are meds out there to help with this side effect. treatment is tough and with little ones at home dealing with them, situations/stresses can certainly be heightened. Thanks Bella	belladaisy2018	3	1248	Apr 26, 2018 by Tig
	2 months down, 1 to go...and what? (Preview) Just checking in with 2nd good lab result at 2 months: ----------- Greetings-On September 18, 2017 there was no Hepatitis C virus detected. We will check again for the virus on October 16, 2017.NameOfNP NPGastroenterology ------------- One little hitch, I developed a ocular herpes infection in m...	LamontCranston	40	6289	Apr 21, 2018 by Canuck
	Relapse uncommon & Reinfection concern (Preview) People with hepatitis C virus (HCV) very rarely experience a relapse of the virus following acheiving a sustained virologic response 12 weeks after completing treatment (SVR12, considered a cure), Reuters Health reports. However, certain populations of those treated for the virus are at high r...	Tig	1	2089	Apr 20, 2018 by Tig
	Screening for Boomers (Preview) Need for better screening and capture (and treatment) of boomers who are HCV positive.With just some simple measures they have improved screening, perhaps as much as from 28% to 72% (in some circumstances). Without testing, without capture, there is no cure, and certainly no eradication of the ep...	Canuck	4	2228	Apr 7, 2018 by Canuck
	Need help with tire advices and Tire size specification (closed) (Preview) hello need help with tire advices and Tire size specification for my car Chevrolet Impala 2012??	Finleartor	1	1397	Mar 29, 2018 by Tig
	Down to it. (Preview) Pictured, the Final Dose. All things considered, it was a piece of cake. I took my pill at 9:00 PM every day for the 12 weeks, at 4 weeks I had a "Virus Not Detected" lab result, my ALT , AST results were in the 16-17 at 4 weeks and at 8 weeks. The results for today's labs will hopefully be as good. Most wonderfu...	LamontCranston	9	2425	Mar 24, 2018 by LamontCranston
	Mavyret: Side effects and High BP? (Preview) Newbie here and catching up. In week 14 of 16 of Mavyret treatment. This is my third attempt at eradication. So far so good as my tests show the virus is undetected. Now it's a waiting game for SVR. Had nasty headaches around week 8 that lasted 2 weeks. Luckily they went away. I also now have high blood pres...	RLS	7	2958	Feb 24, 2018 by Tig
	Closure of Australia's Forum (Preview) Hi guys, The Australian HepC Forum has just closed, due to lack of new members. Over here, all the new antivirals are available to all on our PBS system. ~$50 for most people, $12 for the pensioners and free to others. It was a very busy Forum for the last 10 years, but HepC is now regarded as ' .....a minor,...	mallani	11	2501	Feb 15, 2018 by Tig
	JhosT (Preview) Mavyret	Josh Haynie	2	1341	Jan 19, 2018 by Tig
	Refused treatment in Alberta Canada (Preview) Hi Everyone, A friend in Alberta Canada has hep c, stage 2 fibrosis, and has been told by her doctor that AAHB (Alberta Adult Health Benefits) will not cover treatment for her. The doctor added that she would have to pay the 60k out of pocket, which she cannot afford. She is not on social assistance (welf...	Greg D	5	2518	Dec 11, 2017 by Canuck
	Feld's comments - Retreatment - Mavyret VS Vosevi (Preview) Dr. Feld's comments: about re-treatment, with Mavyret (glec/pib) versus Vosevi (sof/vel/vox) - similar to info found about re-treatment in the larger link (2017 Resource - Treatment Options ) and also covered in (2017 Resource - AASLD HCV Treatment Guidelines) - P. 38 of 247 - click on "re-treat...	Canuck	0	1826	Dec 5, 2017 by Canuck
	Feld's comments on no new DAA's and Ca incidence studies (Preview) From Clinical Care Options - Clinical Thoughts TMFrom Clinical Care Options TM - Clinical Thoughts How New Data From the 2017 DC Hepatology Meeting Shed Light on the Clinical Benefits of HCV DAAsJordan J. Feld, MD, MPH - 11/14/2017 More from this authorFor the first time in several years, we di...	Canuck	1	1562	Nov 28, 2017 by Canuck
	About HCV Drug Costs (Preview) Here is a series of articles about drug costs, HCV or otherwise - low cost deals, generics, name brands, availabilty and the powers that be - what's wrong with this picture?HCV treatments valued under $100 per patientHelio - December 12, 2016Researchers estimated that a generic direct-acting an...	Canuck	1	2305	Nov 22, 2017 by LamontCranston
	Sofa and Dr. Sofia X (Preview) Lasker Award winner Michael Sofia created a pill to fight an incurable virus. Now he is setting his sights on another · By Dina Fine Maron on September 13, 2016 - Scientific America Inventor of Hepatitis C Wins a Major Prize -- and Turns to the Next Battle· · · ...	Canuck	0	1708	Oct 27, 2017 by Canuck
	San Diego, California Hepatitis A Emergency (Preview) California health officials have announced an emergency situation in San Diego, CA. Widespread Hepatitis A outbreaks have been announced in the area. This is particularly dangerous for anyone that may be infected with Hepatitis C or B. Be certain to avoid exposure whenever possible and assure yo...	Tig	7	2655	Oct 18, 2017 by Canuck
	Smooth Muscle AB Screen Positive/Titer 1:40 AIH? (Preview) I have had Hep C for at least 8 years and known about it for about 4. I have yearly blood work done and every year everything comes back normal except for the fact that I have hep c. My VL is always relatively low (last test put it at 245,000). Liver function is and always has been normal and everything is with...	casher	16	3774	Sep 28, 2017 by Canuck
	HCV Screening (Preview) Universal HCV screening is a pathway to eradication Infectious Disease News, August 2017Michael S Saag, MDWhen we think about the possibility of universal screening, we can dance around, trying to dig out baby boomers or injection drug users, we can look at different risk factors or select popu...	Tig	3	2352	Sep 8, 2017 by LamontCranston
	To Our Visiting Non Members (Preview) Greetings, Let us start by saying you are more than welcome here. Welcome to read anything that may interest you. Some of you perhaps just found out you were infected and you are scouring the Internet for information. A bit in shock perhaps and not ready to jump into a discussion. That is quite understa...	JimmyK	1	1681	Sep 5, 2017 by LamontCranston
	Coffee Anyone? (Preview) This is yet just another repeat confirmation that coffee may be good for our livers, BUT, (as noted in the many other articles/cpnversations we have had, scattered throughout this site, about coffee possibly being good for you) ... it is supposed to be ground "fresh brewed"/ dripped/or percolated...	Canuck	16	3681	Sep 3, 2017 by LamontCranston
	cirrhosis or no? (Preview) When I had my fibroscan the reading was 14 k/pa and I was graded in the 3-4 range. The doc evaluating the scan said I don't have cirrhosis but do have advanced fibrosis. My treatment nurse has several times mentioned things relating to my cirrhosis. I don't know if it even matters or not but when does fibr...	Barnacle	20	4598	Sep 1, 2017 by Canuck
	What does fatty infiltration in the hepatic parenchyma adjacent to falciform ligament mean (Preview) This information in subject line was posted in my chart after CT liver scan and ask what it means and will Harvoni treatment correct it?	polosilver	1	2056	Aug 26, 2017 by Tig
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