Hep C Discussion Forum

GodsGrl · GodsGrl

Greetings All! Has anyone taken Xifaxin for amoninia levels and brain fog? My doc just prescribed it and its very costly! Can i please get feed back and info! Thx

andrzej · andrzej

Four Incivek pill left! Hopefully itching stops soon and I can get the weight down.

Faiv · Faiv

Hi Faiv and Welcome. I have edited your post as we generally prefer people to consult with one of the mods before asking people to participate in online surveys. I am sure you can appreciate that often people are undergoing treatment and can be unwell and this is a measure we feel the need to undertake...

andrzej · andrzej

Entering my 12th week of treatment, last one for Incivek. I'm an avid skier, today will be my first day, wish me luch. I'm sure the anemia will hurt, but have to try.

JIme · JIme

Happy Thanksgiving to everyone. I'm very grateful to be here and I'm thankful for all the help and encouragement you have given me during this journey. Hope everybody has a great day! Thanks!!!!!!

Barbara Lee · Barbara Lee

I laid down for a bit this morning and woke up to a gigantic face, eyelids so swollen!!! I've noticed a tightness lately in my legs and feet....but my face was horrific!! It's been a few hours now since that incident and I'm almost back to normal, but my eye lids are still swollen. Is this the swelling me...

kkrueger22 · kkrueger22

Can someone please list ALL the drug companies, that have programs, to assist people who do not have insurance or cannot afford the med. I went to Merck. And Vertex. See.... I found a place that will pay for my hep medicine. BUT I cannot get a d*** dr to write me a RX of the medication that I need. She said In...

Dopey · Dopey

Am I stupid to be eagerly waiting for the new treatment?

krowdog · krowdog

A couple of years ago, a very close friend told me something I still cherish to this day: "The next time you're feeling sorry for yourself, spend a week working on your problems. Then, spend a week helping someone else with real problems. See which one makes you feel better!" Thanks to all w...

krowdog · krowdog

Hi everyone, I hope the battle goes well. I am just now seeing a wonderful benefit that I suspect is coming from my TX. You see, I love to rock climb, but over the last few years, I began to experience bad arthritis in a long ago injured knee. NOTHING helped much. Drugs, therapy, etc, just kept it barely u...

Minerva · Minerva

I know it is still early days for us here but thought it might be worth generating a discussion to find out how people feel about the prospect of us going public at some point? Personally, i think the decision whether to go public or not, is down to all of us. Any feedback appreciated!! Love and hugs Hxxx -...

krowdog · krowdog

Hi everybody. I have studied this TX, and disease for hundreds of hours, but have found little on our susceptibility to other illnesses. The nurse at my infusion svcs. said to be careful when she learned there is a 2 yr old in the house. She said it was possible to catch the actual disease from the child...

shadow10cats · shadow10cats

I had my 2nd liver biopsy since being diagnosed in 2004. The first biopsy showed Grage 2, Stage 1. I had stopped any drinking about a yr prior, and was living a pretty healthy lifestyle (vegetarian, non-smoker, athletic, etc). In 2008 I tried the 2-prong treatment for a week. Had a really bad reacti...

customizelogodesign · customizelogodesign

Spam deleted. Not appropriate for this forum. -- Edited by Cinnamon Girl on Friday 4th of November 2011 01:34:15 PM

BeccaJune · BeccaJune

Has anyone been tested to see what IL28B genotype (CC, CT or TT) you belong to? It seems this is a fairly new test only performed by some labs. I see there is a new clinical trial to see if 12 weeks of total triple tx with Incivek will cure those with the CC type. Does anyone know if these all in the Genoty...

yanib · yanib

Hi guys, I have quite a complicated story so thanks in advance for your patience. I am originally from the UK. Whilst travelling in Australia I was diagnosed with Hep C during a routine screening for a clinical trial I was going to undertake by GSK for money. I am a low risk candidate for Hep C and have neve...

shoeby · shoeby

Yes I'm A heper Gin1 with Cirros as well..I seek advise and knowledge ...My tx starts Nov. Infer.and rib..4 th week Telvn will be added..I hope all is having a good day or one that is not to intense....Peace to all..

James10500 · James10500

http://custom.fmg.dowjones.com/custom/tdameritrade-com/html-story.asp?guid={9560f047-a55b-4940-abc3-b6a5b10e10b4}

pirz · pirz

Hi, Last year I tested for Hyp C antibodies and it was on borderline. Then I had quantitative test and it was negative. Now I had another test for Hyp C antibodies and it is on borderline again. Any comments or suggestions please. Should I goto doc or get quantitative test? Test Results: Test Name ...

greenqueen · greenqueen

Hi Everyone,We would like to welcome Cinnamon Girl (Jill) as our new Moderator With her unique way of putting people at ease and offering support and understanding, it's great to have her on board! Love Steff xx

cboden · cboden

The last time (first time) I snorted cocaine was several years ago. After that, I didn't do it again, after last night. We were at a club and a friend of mine came up to me and asked if I wanted to do a line. I passed on that occasion. I was happy with the music, company and drinks. So I guess he went with a few oth...

newlife · newlife

I got tested a while back for HCV and my results concluded that I have been exposed. My test results are as follows: HCV Ab w/Rflx to RIBA HCV Ab >11.0 H s/co ratio 0.0 -0.9 01 Does this mean that there is a strong posibilty that I may have an acti...

Silentwitnesstoforever · Silentwitnesstoforever

so i knew about this monster even before i was diagnosed.... i missed the big HIV, thank God.. i was a needle drug user for years, quit it all... (heroin, meth) now, i'm 2 years clean, feeling the hurt from that ****ty lifestyle choice.. diagnosed with HEP C, havent started any type of treatment...h...

hope87 · hope87

Does anyone bruise easy? I havent ever before, but have very eadily aquired 2 bruises today...

Nooneverwins · Nooneverwins

I created this account to maybe inspire some of you to live healthier and understand that the benefits of physical exercise are well worth pushing yourself to stay active. I was diagnosed with Hepatitis C genotype 1A in December of 2009 and have no idea how long I have had it before then. A life in the fas...

march611 · march611

Hi All,Is anyone aware of a way to obtain VX-222 without being in a trail or is anyone aware of a treatment program outside the USA using VX-222? I would like to add it to my upcoming telaprevir regime.Thanks for any information.Marc

beautiful_wrath · beautiful_wrath

Hello to all. I hope my note finds you at peace and in good spirit. I admit to not being around lately because I couldn't read anymore about my disease because it was more than I could take for a bit. Have had a hard go of it since biopsy in June. Had some complications that set me back a few weeks for treat...

James10500 · James10500

I SVR'd this week......

To those on tx, it was tough, I hated tx ! But you can do it, and it's all worth it ! To those who were taken off tx Greg, and Dee you are the true heroes. The ones who are going to get up off the mat, take IP's and win ! Thanks to everyone here for your help, support, and und...

dodger · dodger

I was wondering if a ct scan would be a good idea. I go to a free clinic here in my hometown. They said that they could arrrnage for a no cost ct scan of my liver, if I wanted to have it performed. I have had hep c for many years and no tests other than blood work done. I don't have insurance so I can't afford muc...

sparky · sparky

http://www.hepatitis-central.com/mt/archives/2011/08/surprising_data.ht...

Topic		Started By	Replies	Views	Last Post
	Xifaxan for brain fog (Preview) Greetings All! Has anyone taken Xifaxin for amoninia levels and brain fog? My doc just prescribed it and its very costly! Can i please get feed back and info! Thx	GodsGrl	0	713	Dec 8, 2011 by GodsGrl
	Countdown has started. (Preview) Four Incivek pill left! Hopefully itching stops soon and I can get the weight down.	andrzej	8	950	Dec 5, 2011 by andrzej
	"Understanding Hep C" Online survey - $50 (Preview) Hi Faiv and Welcome. I have edited your post as we generally prefer people to consult with one of the mods before asking people to participate in online surveys. I am sure you can appreciate that often people are undergoing treatment and can be unwell and this is a measure we feel the need to undertake...	Faiv	0	659	Dec 1, 2011 by Faiv
	Going Skiing (Preview) Entering my 12th week of treatment, last one for Incivek. I'm an avid skier, today will be my first day, wish me luch. I'm sure the anemia will hurt, but have to try.	andrzej	6	834	Nov 25, 2011 by andrzej
	Happy Thanksgiving to all (Preview) Happy Thanksgiving to everyone. I'm very grateful to be here and I'm thankful for all the help and encouragement you have given me during this journey. Hope everybody has a great day! Thanks!!!!!!	JIme	1	713	Nov 24, 2011 by ss
	I Look Like a Moon Pie!!!! (Preview) I laid down for a bit this morning and woke up to a gigantic face, eyelids so swollen!!! I've noticed a tightness lately in my legs and feet....but my face was horrific!! It's been a few hours now since that incident and I'm almost back to normal, but my eye lids are still swollen. Is this the swelling me...	Barbara Lee	5	1736	Nov 22, 2011 by TazKat
	Help...please (Preview) Can someone please list ALL the drug companies, that have programs, to assist people who do not have insurance or cannot afford the med. I went to Merck. And Vertex. See.... I found a place that will pay for my hep medicine. BUT I cannot get a d*** dr to write me a RX of the medication that I need. She said In...	kkrueger22	5	922	Nov 21, 2011 by deny_zoo29
	Waiting.............. (Preview) Am I stupid to be eagerly waiting for the new treatment?	Dopey	11	1034	Nov 19, 2011 by Minerva
	A few words of wisdom... (Preview) A couple of years ago, a very close friend told me something I still cherish to this day: "The next time you're feeling sorry for yourself, spend a week working on your problems. Then, spend a week helping someone else with real problems. See which one makes you feel better!" Thanks to all w...	krowdog	4	811	Nov 16, 2011 by wnose
	Another wonderful reason to treat. (Preview) Hi everyone, I hope the battle goes well. I am just now seeing a wonderful benefit that I suspect is coming from my TX. You see, I love to rock climb, but over the last few years, I began to experience bad arthritis in a long ago injured knee. NOTHING helped much. Drugs, therapy, etc, just kept it barely u...	krowdog	4	995	Nov 16, 2011 by wnose
	Going Public? (Preview) I know it is still early days for us here but thought it might be worth generating a discussion to find out how people feel about the prospect of us going public at some point? Personally, i think the decision whether to go public or not, is down to all of us. Any feedback appreciated!! Love and hugs Hxxx -...	Minerva	24	2404	Nov 15, 2011 by Minerva
	Triple TX'ers suscepibility to other contagious illnesses? (Preview) Hi everybody. I have studied this TX, and disease for hundreds of hours, but have found little on our susceptibility to other illnesses. The nurse at my infusion svcs. said to be careful when she learned there is a 2 yr old in the house. She said it was possible to catch the actual disease from the child...	krowdog	4	1257	Nov 15, 2011 by Cinnamon Girl
	LIVER BIOPSY (Preview) I had my 2nd liver biopsy since being diagnosed in 2004. The first biopsy showed Grage 2, Stage 1. I had stopped any drinking about a yr prior, and was living a pretty healthy lifestyle (vegetarian, non-smoker, athletic, etc). In 2008 I tried the 2-prong treatment for a week. Had a really bad reacti...	shadow10cats	1	936	Nov 7, 2011 by krowdog
	Custom logo design providing the best opportunity to avail (Preview) Spam deleted. Not appropriate for this forum. -- Edited by Cinnamon Girl on Friday 4th of November 2011 01:34:15 PM	customizelogodesign	0	614	Nov 4, 2011 by customizelogodesign
	IL28B genotypes CC, CT or TT (Preview) Has anyone been tested to see what IL28B genotype (CC, CT or TT) you belong to? It seems this is a fairly new test only performed by some labs. I see there is a new clinical trial to see if 12 weeks of total triple tx with Incivek will cure those with the CC type. Does anyone know if these all in the Genoty...	BeccaJune	2	2974	Nov 3, 2011 by BeccaJune
	Confusion about Tests and False Positives, please help! (Preview) Hi guys, I have quite a complicated story so thanks in advance for your patience. I am originally from the UK. Whilst travelling in Australia I was diagnosed with Hep C during a routine screening for a clinical trial I was going to undertake by GSK for money. I am a low risk candidate for Hep C and have neve...	yanib	1	745	Oct 24, 2011 by ty
	Hey I Think Ive got it down (Preview) Yes I'm A heper Gin1 with Cirros as well..I seek advise and knowledge ...My tx starts Nov. Infer.and rib..4 th week Telvn will be added..I hope all is having a good day or one that is not to intense....Peace to all..	shoeby	1	754	Oct 9, 2011 by Iris Dragonfly
	Pharmasset all ORAL drug fast tracked by FDA (Preview) http://custom.fmg.dowjones.com/custom/tdameritrade-com/html-story.asp?guid={9560f047-a55b-4940-abc3-b6a5b10e10b4}	James10500	2	824	Oct 8, 2011 by James10500
	Analyse my results (Preview) Hi, Last year I tested for Hyp C antibodies and it was on borderline. Then I had quantitative test and it was negative. Now I had another test for Hyp C antibodies and it is on borderline again. Any comments or suggestions please. Should I goto doc or get quantitative test? Test Results: Test Name ...	pirz	1	778	Oct 4, 2011 by Deidre
	ANNOUNCEMENT - Welcome to our new Moderator (Preview) Hi Everyone,We would like to welcome Cinnamon Girl (Jill) as our new Moderator With her unique way of putting people at ease and offering support and understanding, it's great to have her on board! Love Steff xx	greenqueen	17	1208	Sep 22, 2011 by Cinnamon Girl
	Snorted cocaine for the first time! (Preview) The last time (first time) I snorted cocaine was several years ago. After that, I didn't do it again, after last night. We were at a club and a friend of mine came up to me and asked if I wanted to do a line. I passed on that occasion. I was happy with the music, company and drinks. So I guess he went with a few oth...	cboden	1	1305	Sep 18, 2011 by James10500
	I need some opinions/advice (Preview) I got tested a while back for HCV and my results concluded that I have been exposed. My test results are as follows: HCV Ab w/Rflx to RIBA HCV Ab >11.0 H s/co ratio 0.0 -0.9 01 Does this mean that there is a strong posibilty that I may have an acti...	newlife	19	1366	Sep 14, 2011 by newlife
	Diagnosed with HEP C, questions, etc.... (Preview) so i knew about this monster even before i was diagnosed.... i missed the big HIV, thank God.. i was a needle drug user for years, quit it all... (heroin, meth) now, i'm 2 years clean, feeling the hurt from that ****ty lifestyle choice.. diagnosed with HEP C, havent started any type of treatment...h...	Silentwitnesstoforever	3	1124	Sep 6, 2011 by Hep Me
	Bruising (Preview) Does anyone bruise easy? I havent ever before, but have very eadily aquired 2 bruises today...	hope87	0	582	Sep 4, 2011 by hope87
	I beat Hep C in ONE month (benefits of being healthy) (Preview) I created this account to maybe inspire some of you to live healthier and understand that the benefits of physical exercise are well worth pushing yourself to stay active. I was diagnosed with Hepatitis C genotype 1A in December of 2009 and have no idea how long I have had it before then. A life in the fas...	Nooneverwins	11	2723	Sep 3, 2011 by James10500
	vx-222 (Preview) Hi All,Is anyone aware of a way to obtain VX-222 without being in a trail or is anyone aware of a treatment program outside the USA using VX-222? I would like to add it to my upcoming telaprevir regime.Thanks for any information.Marc	march611	0	644	Aug 23, 2011 by march611
	Waiting On a Phone Call (Preview) Hello to all. I hope my note finds you at peace and in good spirit. I admit to not being around lately because I couldn't read anymore about my disease because it was more than I could take for a bit. Have had a hard go of it since biopsy in June. Had some complications that set me back a few weeks for treat...	beautiful_wrath	10	1121	Aug 21, 2011 by beautiful_wrath
	SVR (Preview) I SVR'd this week...... To those on tx, it was tough, I hated tx ! But you can do it, and it's all worth it ! To those who were taken off tx Greg, and Dee you are the true heroes. The ones who are going to get up off the mat, take IP's and win ! Thanks to everyone here for your help, support, and und...	James10500	30	1899	Aug 20, 2011 by Barbara Lee
	ct scan (Preview) I was wondering if a ct scan would be a good idea. I go to a free clinic here in my hometown. They said that they could arrrnage for a no cost ct scan of my liver, if I wanted to have it performed. I have had hep c for many years and no tests other than blood work done. I don't have insurance so I can't afford muc...	dodger	4	980	Aug 19, 2011 by BeccaJune
	Our "Death Sentance". (Preview) http://www.hepatitis-central.com/mt/archives/2011/08/surprising_data.ht...	sparky	3	819	Aug 16, 2011 by James10500
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