Hep C Discussion Forum

Ari-anna · Ari-anna

Just seen my doctor - very happy to say that my liver stats for the first time in many a year are within normal range, and, viral load at 4 weeks post treatment is undetected! Viral load start of treatment HCV RNA 191810 IU/ml 4 weeks into treatment - undetected end of 24 weeks Viekira Pak plus Ribavirin - u...

HepCSurvivor15 · HepCSurvivor15

Just wanted to share the story of my hep c journey so that others may find encouragement & enough to keep trudging along through this journey: I contracted Hep C sometime in my younger, wilder years through either a piercing or tattoo. Like most people, I did not find out I had it until March 2014. H...

ell · ell

The end of my treatment coincided with the celebration of the New Year. I allowed myself a considerable amount of alcohol. Could this affect the outcome ? Do I understand correctly that if the virus at the end of treatment completely destroyed, it has no chance for recovery ? And that we monitor 12 week...

2willy · 2willy

Long time since triple therapy, life is much better still getting strength back daily but then I will be 65 not the 18 year old mind . hope all are doing well and happy new year to all

MechanicMike · MechanicMike

Hi All, Just wanted to share my lab results...SVR12!!! Couldn't think of a better way to start the New Year! Thanks to everyone who carried my sorry butt through this. I am truly grateful for the support and encouragement I've gotten from each and every one of you. Gonna go share a happy dance with...

hepCFREEwanab · hepCFREEwanab

Hello, I hope the New Year is being good to all of you! I was wondering if after the Harvoni treatment, anyone has noticed any decrease in hearing and or vision. Thanks. Mena

dtre30319 · dtre30319

Hello Everyone, I have a question regarding labs at different clinics. At the Cancer Treatment Center my liver enzymes were slightly elevated using the CBC panel below. However, when I had the same labs done at Emory my enzymes went down in numbers but still showed slightly elevated due to their C...

Jaded · Jaded

The year prior to tx (Harvoni 24 weeks) I experienced a significant increase of fatigue. Within a few days of SOT it pretty much all went away. I did have increased fatigue about 8 weeks into tx..not as bad as prior to tx for about 6 weeks which I thought I had resolved with an increase of hydration. During...

movebo · movebo

Hi All, just an update, I am now 4 weeks post 12 weeks Harvoni & Riba. I was spared any post tx sides, same as during. Really happy all went well. Saw my Hep doc on Dec 31, he wants to do the next VL 12 weeks past, for probably good reasons I keep trying to guess (money? psychology, because if I am detected...

drummerman · drummerman

Finally!!! got my lab results. Had to call as usual. 12 week EOT "HCV NOT DETECTED"!!!!I'm still in shock. I was so nervous to call and felt like the news would be bad as I have felt lousy since eot and was experiencing liver area pain for a few weeks , this past week I had no pain though.N...

Gifthealth · Gifthealth

Hello Everyone. I completed my 12 weeks of Sovaldi and Ribo about 3 weeks ago. Yes, I am feeling a little better every few days, but I am still far from my pre-treatment energy. I am needing about 10 hours of sleep every night. After I try a 4-5 mile hike, I need 11-12 hours of sleep for 1-2 nights afterwards...

hepCFREEwanab · hepCFREEwanab

Angelo and I want to wish all of you a very HAPPY AND HEALTHY NEW YEAR! 2015 has been a crazy year for many, but also a good one in so many ways. Love, Mena & Angelo

Ari-anna · Ari-anna

Hi - I am wondering how well the immune system works post treatment. Has anyone post treatment noticed if they get any less other other infections? I have an autoimmune problem (lichen planus) - my specialist tells me it flares up when I have other infections (e.g. a cold or sinus infection) as my immun...

Liamc · Liamc

When I was on treatment and before, I was always looking for posts from people who had finished and how they were going, especially positive news. I just want to post some of my observations so maybe it can help other people on treatment or considering it. I was on Riba/Solvaldi for 6 months and nearly 9...

Gracie · Gracie

Well it seems there are a few of us out there that are done with harvoni and experiencing some very real side effects. Thought if we compared them, at least we would know we aren't alone. I completed my treatment 10 days ago. I had pains in hands and feet throughout, and they are still there. I seem to be ti...

MechanicMike · MechanicMike

Hi all, I haven't been here to visit in a while so I thought I'd say hello and wish everyone a merry Christmas! I work for Amazon so I've been a busy little elf since Thanksgiving. Found out that our son and his wife will be are having our first grandson in June so I'm obviously delighted about that. They'll...

Rufus1 · Rufus1

Hi All, I hope everyone pre, on and post tx is doing well. My pcp wanted to do full labs went on Saturday so far got some back alt and ast at 29 my platlet 247 haven't received load count yet. How does this look thanks for your replies. I still log in about every other day to see whats going on. A

Penelope PePod · Penelope PePod

Good Tidings, Everyone! I haven't been around for a bit, but didn't want to let today go by without wishing everyone a Merry Christmas, and saying Happy Birthday, Jesus! Paul and I are doing well. Paul has 9 days to go, and I'm just about 12 weeks post tx. We'll go for VL labs on January 4th. I'm...

wmlj1960 · wmlj1960

I meant to post this earlier but I've been super busy elsewhere all day. You had quite a journey trying to get that SVR report Tig and you certainly deserve a big party to celebrate your 2 yr Hep C free accomplishment. You are such a big part of what holds this forum together and I'm sure I'm not alone in wis...

prosser999 · prosser999

Hi - I just finished 8 weeks of Harvoni TX. The Dr said the labs looked fine and my viral load was "barely detectable." I needed to come in 3 months for my next lab. Can anybody help me understand how the virus can be "barely detectable" and be gone? Would greatly appreciate your hel...

MikeH · MikeH

Finished a 24 week Harvoni course about 18 days ago. For any of you considering undergoing the Harvoni treatment, my experience matches the accounts of many others. I had minimal sides of note, though I did have occasional headache, fatigue, and tinnitus which may have resulted from the drugs. I tho...

WarriorWolf · WarriorWolf

Hi Friends! Just got my 24 weeks post lab results! My labs are all normal improved from 12 weeks. I am still undetected! I have been feeling a lot better. I have some lingering tummy stuff going on. I get some wicked heartburn. My acne has improved a lot! Any physical discomfort or joint stiffness is not...

Ari-anna · Ari-anna

Hi - when I started on Viekira Pak with Ribavirin in June (24 weeks) I was good for the first 3 weeks of treatment then side affects kicked in at the same time as I got a bronchial infection. I was very unwell for around 6 weeks until the bronchial infection cleared. Side effects were mostly nausea and I was...

JoAnneh · JoAnneh

Is anyone having pain in their liver area? I feel a lot of pressure at times. I have to wear loose clothing when pressure is bothering me. Feel nauseated often and lots of indigestion after eating....really bad if I eat sweets. Also, if I eat salty food my lips get chapped and burn. I have started cutting...

JimmyK · JimmyK

"And in the end, the love you take is equal to the love you make" 60 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! Well then HAPPY ANNIVERSARY and yes I watch! VICTORY!!!!!

pauliep · pauliep

Hi All- I haven't posted in a while, but it is now 7 months since finishing treatment with Harvoni and I am still Hep-c free. I wanted to bring up the topic of Type 2 diabetes as it relates to hep-c. About 5 years ago I was diagnosed with sustained high blood glucose which is also called adult onset type 2 dia...

247kath · 247kath

Hi All Well my 12 week post treatment bloodwork results came today and no virus detected!! The clinic doesnt want to see me until June. Cheers and thank you for a very well run and informative forum kathy

Ari-anna · Ari-anna

Hi - I finished Viekira Pak with Ribavirin 8 days ago after 24 weeks. The last 3 weeks on treatment were difficult, I had water retention, sleeping only 4 hrs a night, heart beating like having an endless panic attack, high blood pressure, totally hyped up, exhausted and generally miserable. A couple...

Gifthealth · Gifthealth

I completed 3 months of Sovaldi and Ribavirin 5 days ago for the treatment of my HVC Genotype 2. I had a viral load test at 1 month into treatment and it came back "undetectable". Well, my doctor called this morning to inform me that my end of treatment viral load test was also "UNDETECT...

Lawmatt · Lawmatt

And no virus detected still a little wobbly boot though both mentally and physycal . i once enjoyed a workout but know it is a real chore. The pool seems to be the kindest form of exersizing so far. picked up some lazy habits one being eating lots of sweats buiscuts ect ,explains my weight 65kg on treatme...

Topic		Started By	Replies	Views	Last Post
	Looking good for me! (Preview) Just seen my doctor - very happy to say that my liver stats for the first time in many a year are within normal range, and, viral load at 4 weeks post treatment is undetected! Viral load start of treatment HCV RNA 191810 IU/ml 4 weeks into treatment - undetected end of 24 weeks Viekira Pak plus Ribavirin - u...	Ari-anna	8	1499	Jan 13, 2016 by Ari-anna
	Extraordinary Symptoms - Don't feel Crazy!!! (Preview) Just wanted to share the story of my hep c journey so that others may find encouragement & enough to keep trudging along through this journey: I contracted Hep C sometime in my younger, wilder years through either a piercing or tattoo. Like most people, I did not find out I had it until March 2014. H...	HepCSurvivor15	1	1030	Jan 12, 2016 by Tig
	Zero doubt (Preview) The end of my treatment coincided with the celebration of the New Year. I allowed myself a considerable amount of alcohol. Could this affect the outcome ? Do I understand correctly that if the virus at the end of treatment completely destroyed, it has no chance for recovery ? And that we monitor 12 week...	ell	8	1665	Jan 12, 2016 by ell
	Still single alive and well (Preview) Long time since triple therapy, life is much better still getting strength back daily but then I will be 65 not the 18 year old mind . hope all are doing well and happy new year to all	2willy	6	1369	Jan 9, 2016 by wmlj1960
	SVR 12 LAB RESULTS: ONE MORE DEAD DRAGON! (Preview) Hi All, Just wanted to share my lab results...SVR12!!! Couldn't think of a better way to start the New Year! Thanks to everyone who carried my sorry butt through this. I am truly grateful for the support and encouragement I've gotten from each and every one of you. Gonna go share a happy dance with...	MechanicMike	20	1833	Jan 9, 2016 by Linuxter
	Just throwing it out there, but.... (Preview) Hello, I hope the New Year is being good to all of you! I was wondering if after the Harvoni treatment, anyone has noticed any decrease in hearing and or vision. Thanks. Mena	hepCFREEwanab	1	984	Jan 9, 2016 by wmlj1960
	Different Lab Readings (Preview) Hello Everyone, I have a question regarding labs at different clinics. At the Cancer Treatment Center my liver enzymes were slightly elevated using the CBC panel below. However, when I had the same labs done at Emory my enzymes went down in numbers but still showed slightly elevated due to their C...	dtre30319	0	824	Jan 8, 2016 by dtre30319
	Post Harvoni TX fatigue (Preview) The year prior to tx (Harvoni 24 weeks) I experienced a significant increase of fatigue. Within a few days of SOT it pretty much all went away. I did have increased fatigue about 8 weeks into tx..not as bad as prior to tx for about 6 weeks which I thought I had resolved with an increase of hydration. During...	Jaded	7	1616	Jan 6, 2016 by Jaded
	4 weeks post Harvoni & Riba (Preview) Hi All, just an update, I am now 4 weeks post 12 weeks Harvoni & Riba. I was spared any post tx sides, same as during. Really happy all went well. Saw my Hep doc on Dec 31, he wants to do the next VL 12 weeks past, for probably good reasons I keep trying to guess (money? psychology, because if I am detected...	movebo	4	1347	Jan 4, 2016 by Tig
	12 week EOT "HCV undected"! (Preview) Finally!!! got my lab results. Had to call as usual. 12 week EOT "HCV NOT DETECTED"!!!!I'm still in shock. I was so nervous to call and felt like the news would be bad as I have felt lousy since eot and was experiencing liver area pain for a few weeks , this past week I had no pain though.N...	drummerman	15	1703	Jan 3, 2016 by drummerman
	How quickly should I feel better after EOT? (Preview) Hello Everyone. I completed my 12 weeks of Sovaldi and Ribo about 3 weeks ago. Yes, I am feeling a little better every few days, but I am still far from my pre-treatment energy. I am needing about 10 hours of sleep every night. After I try a 4-5 mile hike, I need 11-12 hours of sleep for 1-2 nights afterwards...	Gifthealth	3	1404	Jan 3, 2016 by Gracie
	TO EVERYONE, HAPPY NEW YEAR WISHES! (Preview) Angelo and I want to wish all of you a very HAPPY AND HEALTHY NEW YEAR! 2015 has been a crazy year for many, but also a good one in so many ways. Love, Mena & Angelo	hepCFREEwanab	7	1214	Jan 1, 2016 by Scruffy
	Other infections (Preview) Hi - I am wondering how well the immune system works post treatment. Has anyone post treatment noticed if they get any less other other infections? I have an autoimmune problem (lichen planus) - my specialist tells me it flares up when I have other infections (e.g. a cold or sinus infection) as my immun...	Ari-anna	3	1402	Jan 1, 2016 by wmlj1960
	Some positive observations. (Preview) When I was on treatment and before, I was always looking for posts from people who had finished and how they were going, especially positive news. I just want to post some of my observations so maybe it can help other people on treatment or considering it. I was on Riba/Solvaldi for 6 months and nearly 9...	Liamc	2	1221	Dec 29, 2015 by Liamc
	Post Harvoni Side Effects (Preview) Well it seems there are a few of us out there that are done with harvoni and experiencing some very real side effects. Thought if we compared them, at least we would know we aren't alone. I completed my treatment 10 days ago. I had pains in hands and feet throughout, and they are still there. I seem to be ti...	Gracie	3	1701	Dec 29, 2015 by Rufus1
	Merry Christmas everyone! (Preview) Hi all, I haven't been here to visit in a while so I thought I'd say hello and wish everyone a merry Christmas! I work for Amazon so I've been a busy little elf since Thanksgiving. Found out that our son and his wife will be are having our first grandson in June so I'm obviously delighted about that. They'll...	MechanicMike	4	1127	Dec 26, 2015 by dustbear
	One year after start of tx (Preview) Hi All, I hope everyone pre, on and post tx is doing well. My pcp wanted to do full labs went on Saturday so far got some back alt and ast at 29 my platlet 247 haven't received load count yet. How does this look thanks for your replies. I still log in about every other day to see whats going on. A	Rufus1	4	1212	Dec 26, 2015 by Rufus1
	A Very Merry Chrismas to all! (Preview) Good Tidings, Everyone! I haven't been around for a bit, but didn't want to let today go by without wishing everyone a Merry Christmas, and saying Happy Birthday, Jesus! Paul and I are doing well. Paul has 9 days to go, and I'm just about 12 weeks post tx. We'll go for VL labs on January 4th. I'm...	Penelope PePod	3	1017	Dec 25, 2015 by Cinnamon Girl
	SVR-104 - Congratulations Tig56 !!! (Preview) I meant to post this earlier but I've been super busy elsewhere all day. You had quite a journey trying to get that SVR report Tig and you certainly deserve a big party to celebrate your 2 yr Hep C free accomplishment. You are such a big part of what holds this forum together and I'm sure I'm not alone in wis...	wmlj1960	25	1979	Dec 24, 2015 by Linuxter
	Undetectable vs barely detectable after Harvoni TX (Preview) Hi - I just finished 8 weeks of Harvoni TX. The Dr said the labs looked fine and my viral load was "barely detectable." I needed to come in 3 months for my next lab. Can anybody help me understand how the virus can be "barely detectable" and be gone? Would greatly appreciate your hel...	prosser999	2	902	Dec 22, 2015 by prosser999
	Post-Harvoni TX impressions (Preview) Finished a 24 week Harvoni course about 18 days ago. For any of you considering undergoing the Harvoni treatment, my experience matches the accounts of many others. I had minimal sides of note, though I did have occasional headache, fatigue, and tinnitus which may have resulted from the drugs. I tho...	MikeH	6	1560	Dec 19, 2015 by Jaded
	Getting better all the time (Preview) Hi Friends! Just got my 24 weeks post lab results! My labs are all normal improved from 12 weeks. I am still undetected! I have been feeling a lot better. I have some lingering tummy stuff going on. I get some wicked heartburn. My acne has improved a lot! Any physical discomfort or joint stiffness is not...	WarriorWolf	9	1457	Dec 19, 2015 by Tig
	Post treatment headaches (Preview) Hi - when I started on Viekira Pak with Ribavirin in June (24 weeks) I was good for the first 3 weeks of treatment then side affects kicked in at the same time as I got a bronchial infection. I was very unwell for around 6 weeks until the bronchial infection cleared. Side effects were mostly nausea and I was...	Ari-anna	0	806	Dec 18, 2015 by Ari-anna
	Liver area hurts (Preview) Is anyone having pain in their liver area? I feel a lot of pressure at times. I have to wear loose clothing when pressure is bothering me. Feel nauseated often and lots of indigestion after eating....really bad if I eat sweets. Also, if I eat salty food my lips get chapped and burn. I have started cutting...	JoAnneh	8	1521	Dec 18, 2015 by JoAnneh
	Attention Matt Chris! (Preview) "And in the end, the love you take is equal to the love you make" 60 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24 Baby YES! Well then HAPPY ANNIVERSARY and yes I watch! VICTORY!!!!!	JimmyK	4	1079	Dec 18, 2015 by dustbear
	HEP-C AND DIABETES (Preview) Hi All- I haven't posted in a while, but it is now 7 months since finishing treatment with Harvoni and I am still Hep-c free. I wanted to bring up the topic of Type 2 diabetes as it relates to hep-c. About 5 years ago I was diagnosed with sustained high blood glucose which is also called adult onset type 2 dia...	pauliep	6	4175	Dec 16, 2015 by hepCFREEwanab
	Undetected after 12 weeks post Harvoni/riba (Preview) Hi All Well my 12 week post treatment bloodwork results came today and no virus detected!! The clinic doesnt want to see me until June. Cheers and thank you for a very well run and informative forum kathy	247kath	8	1329	Dec 16, 2015 by wmlj1960
	Post treatment symptoms (Preview) Hi - I finished Viekira Pak with Ribavirin 8 days ago after 24 weeks. The last 3 weeks on treatment were difficult, I had water retention, sleeping only 4 hrs a night, heart beating like having an endless panic attack, high blood pressure, totally hyped up, exhausted and generally miserable. A couple...	Ari-anna	4	1775	Dec 16, 2015 by basser
	Just finished my 3 months of Sovaldi and Ribavirin... (Preview) I completed 3 months of Sovaldi and Ribavirin 5 days ago for the treatment of my HVC Genotype 2. I had a viral load test at 1 month into treatment and it came back "undetectable". Well, my doctor called this morning to inform me that my end of treatment viral load test was also "UNDETECT...	Gifthealth	5	1484	Dec 11, 2015 by wmlj1960
	5 months post (Preview) And no virus detected still a little wobbly boot though both mentally and physycal . i once enjoyed a workout but know it is a real chore. The pool seems to be the kindest form of exersizing so far. picked up some lazy habits one being eating lots of sweats buiscuts ect ,explains my weight 65kg on treatme...	Lawmatt	7	1442	Dec 8, 2015 by Cinnamon Girl
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