Hep C Discussion Forum

bmhartwd · bmhartwd

Hi, my name is Brian. I am new here HCV genotype 1a. I just had a liver biopsy and my doctor says that I am Stage 3 fribrosis. He wants me to start tx asap but doesn't want me to wait longer that 6 months. I admit I am very nervous. Any suggestions would help? thanks

nburris · nburris

After tons of reflexion and decided to go ahead and give a shot to that "new treatment" the one that still has the interferon but that added drug that your supposed to take with a serving of fat;I had diferent opinions from my dr;the main one saying that the trastment was stil so toxic it was wo...

sandypsych · sandypsych

Hi All I am new again here. I was here over a year ago as my husband was on Incivik. He cleared the virus at week 12, but developed DRESS syndrome and had to stop. We were so disappointed, but we didn't want him to die from the cure! In the past month his new doctor (its a long story) recommended that he sta...

michele · michele

Hi, my name is Michele I was dx with hep c in 2002. Genotype 2b viral load 197,000. I am preparing to start treatment soon but I suffer from panic and anxiety so I need to get that under control first, I have a fear of any kind of medications which seem kinda crazy because there was a time in my life when I reall...

new member here · AngieV123

Hello. I am a new member but not new to Hep C. I found out that I had it by donating blood in High School. I received a blood transfusion as a baby and that's how I think I got it. I took the treatment in my early 20s and in 6 months, I tested negative. Now, oven ten years later I find that I have it again :(.I'm not s...

good2know · good2know

This is a very informative site and I am glad I found it. My husband of 18 years went to donate blood the other day and they called him back and told him that he has Hepatitis C. He is 44 years old. The man at the blood clinic took another blood sample and we find out tomorrow all the details. We have no idea h...

Hello, I am a new member. · dustbear

I am new to this forum, but not to this treatment. I made my first post in the Rant and Rave section last week see Ignorant Friends. I have Hep C, genotype 1A. I just found out in 2011, and I know I've had it since about 1981 when I used needles briefly for 6 months (not heroin). I have lived symptom free for...

Hello, I'm a new member. · Jumpy

I have finally decided to register after lurking here for the last few months. I was told about this forum by the research nurse I see for the Abbvie Sapphire Clinical Trial. I have just completed three months of placebo and am now into my second week of the real thing.

New Member · lauralou57

I am a 57 years old female and was diagnosed with HCV in 1999. I contracted the virus from a blood tranfusion in 1977 in a bad car accident. My health is excellent. Genotype 1A, minimal liver fibrosis and inflammation, ALT and other liver enzymes almost always normal, viral count usually 1-2 million....

perry · perry

Hi all. I have just been newly diagnosed with Hep C - positive for antibodies and Viral load just over 4 mill. I know I would have got this about 23 - 36 years ago when battling Heroin addiction and the symptoms have just been picked up througha routine checkup with the Dr. I am 58 years but have kept really f...

wht_hppnd · wht_hppnd

So I am a busy mom and student AND on week 7 of Pegintron and Ribosphere (genotype 3) ....the reason I found this site tonight is because I have been very irritable lately.... I have friends and family to talk to, but I'm that irritable that I don't even want to strike up any conversations with anyone, it...

STEVE D · STEVE D

I had a living donor liver transplant in 1999. But now the hep c has returned bad enough to put me on the treatment, I hope. Can someone that has been on it or is on it, how it makes you feel and what is your activity level?I was doing great for almost 14 years but they said it could come back and it has. My younge...

donald · donald

Hope to share my experirnce with triple therapy. And learn from others.

TN99 · TN99

Hello all, lovely forum. I'm a geno3a and am about 5days into tx. Peg and lots of Riba (weight based 1200mg 2Xd) Got a pretty clean bill of liver health after the bx...slight signs of steatosis, but otherwise good news. Decided to begin treatment while SVR chances are pretty favorable. First shot done...

ios9 · ios9

Hi ! Nice to have found this forum :) I am French, from Paris, and have been diagnosed HCV last end of February, with early cirrhosis too. Contaminated by blood transfusion early in my life, 42 years ago. I started AbbVie TURQUOISE II trial on the 8th April for 12 weeks. Treatment ended on 1st July. My VL...

Huffy · Huffy

Hello! Like the subject says, I'm new to the forum and to the disease. I found out 2 days ago I was positive for hepatitis c. It a surprise, but not really. I will be celebrating one year clean (from drugs) on July 2. I always thought the drugs would kill me first so I was never really careful about how I used a...

hepCFREEwanab · hepCFREEwanab

Just joined this group after reading many of your posts. After having abnormal Liver Enzymes for many yrs. finally DX with HEP C in 1992. Genotype 1b currently on triple tx of Interferon. Riba 1200mg daily and Inciveck 6 pills daily. Started TX on June 25. After first Injection had fever for almost t...

New Members · Dreamkite

Hello everyone. My name is Jim but go by Dreamkite. One because I dream of things that happen most of the time the next day or soon after. I now know it is God preparing me for usually something bad that is about to happen. Anfd the kite is because....wel after you know me you will see I can Really get our ther...

tonib · tonib

I went for my baseline blood test today and the plan was to start the peg/rib on Friday 7/5.....ok then the insurance company is giving a hard time about the victrellis because my doctor was on vacation and the office staff did not provide the info that the insurance co requested....ugh ugh ugh...so th...

Chow1 · Chow1

Hi I took my last interferon shot 3 days ago and will take my last riba pills in 2 days. I finished incivek 12 weeks ago. It was really hard, still is. Does anybody know how long does it take to get rid of the side effects? I have a bad anemia, itching, severe hair lost, depression...... thanks

summerholliday · summerholliday

Hi my name is summer and I'm 29. I was recently diagnosed with hep c antibodies. I'm kinda confused about it. I got the viral load test and its undetectable. Does this mean I'm free from the virus? Can I get a vital load ever from the antibodies? Am I still supposed to not drink alcohol? Can I still transfer...

New Member from Texas · Txmike

Hello from Texas. My name is Mike and been on the TX for 11 weeks now. I have had some good day's and very bad day's. My Sx are feeling very weak,dizzy,headaches, body aches,congested, confused,etc. I had low platetes and Dr put me on Promacta which is slowly bringing the count up and starting to feel a li...

New Member · Ckncali

Hi Everyone, I have been reading your messages for a while and wanted to introduce myself. I diagnosed myself with HepC 3 years ago after several years of a variety of symptoms including extreme fatigue. While my liver damage appears to be non existent i believe the virus had attacked my central nerv...

MamaLlama · MamaLlama

Just received info that I have Hep C IL28b genotype t/c. My dr wants to start treatment of peg-interferon & ribavirin. They said I should be clear of it in 6 months..Any thoughts? I've read conflicting studies about it. Any suggestions on how to deal with this would be great. I have also read awful s...

New Member in UK · LLoydavid

Hi Everyone My name is LLoyd living in the UK I have Genotype 1a and start treatment on the 14th May I'll be on Triple Therapy Taleprevir (Invico) 2 tablets every 8 hours with fatty food (for 12 weeks) Ribavirin Tablets 600mg twice daily Pegalated 180 mcg s/c injection once a week I'm starting in a very p...

Amandums · Amandums

Howdy all :) I was diagnosed with Hep C in 2008, genotype 1A (lucky me lol). Due to a lack of health insurance, I didn't rush into treatment. I had a few symptoms of the disease, but they were manageable....up until a year ago. After being fed up with the random spells of nausea/vomiting, and feeling exha...

lpetie · lpetie

I found this site tonight and have been reading for hours. Wanted to say Hello. I am holding out on treatment, hoping for some of the new treatments to pan out. I have Hep C 1. I have had to get life in order, while I stay current on treatment options. Thank you all for sharing. Just the reading gives me cour...

ttikhio · ttikhio

I am off to pick up the drugs today. I must say I am somewhat apprehensive. I think I will start on Monday week... any advice would be appreciated.

Antwinnie · Antwinnie

Hi all, I'm new to the forum and wanted to intro myself. I was diagnosed 2006 w/genotype 2, a stage 1 (biopsy). Quit all alcohol then and hadn't used drugs in 35+ years. Did all my blood work faithfully and fell thru the medical cracks, now stage 4, cirrhosis stage 1, plus auto immune hep C (2nd biopsy). F...

Corrischap · Corrischap

Hi Into seventh week of treatment of triple (Bocep 3rd week), previous 2 attempts on double, genos 1 and 2. Bloody hell this is tough. My life feels like its on hold and consists of tacking meds at 6.30, hour travel to work = travel sickness, get to work = feel sick. more meds, go home = feel sick, no diet, a...

Topic		Started By	Replies	Views	Last Post
	NEWBY HERE (Preview) Hi, my name is Brian. I am new here HCV genotype 1a. I just had a liver biopsy and my doctor says that I am Stage 3 fribrosis. He wants me to start tx asap but doesn't want me to wait longer that 6 months. I admit I am very nervous. Any suggestions would help? thanks	bmhartwd	6	964	Aug 2, 2013 by Bloomster
	Postponing "new treatment" (closed) (Preview) After tons of reflexion and decided to go ahead and give a shot to that "new treatment" the one that still has the interferon but that added drug that your supposed to take with a serving of fat;I had diferent opinions from my dr;the main one saying that the trastment was stil so toxic it was wo...	nburris	2	961	Aug 1, 2013 by Cinnamon Girl
	I'm new again (Preview) Hi All I am new again here. I was here over a year ago as my husband was on Incivik. He cleared the virus at week 12, but developed DRESS syndrome and had to stop. We were so disappointed, but we didn't want him to die from the cure! In the past month his new doctor (its a long story) recommended that he sta...	sandypsych	12	1508	Aug 1, 2013 by dustbear
	Newbie that need,s advice and encouragement (Preview) Hi, my name is Michele I was dx with hep c in 2002. Genotype 2b viral load 197,000. I am preparing to start treatment soon but I suffer from panic and anxiety so I need to get that under control first, I have a fear of any kind of medications which seem kinda crazy because there was a time in my life when I reall...	michele	5	1277	Jul 30, 2013 by michele
	new member here ( 1 2 ) (Preview) Hello. I am a new member but not new to Hep C. I found out that I had it by donating blood in High School. I received a blood transfusion as a baby and that's how I think I got it. I took the treatment in my early 20s and in 6 months, I tested negative. Now, oven ten years later I find that I have it again :(.I'm not s...	AngieV123	54	3609	Jul 24, 2013 by Dillo
	Hello everyone (Preview) This is a very informative site and I am glad I found it. My husband of 18 years went to donate blood the other day and they called him back and told him that he has Hepatitis C. He is 44 years old. The man at the blood clinic took another blood sample and we find out tomorrow all the details. We have no idea h...	good2know	7	1048	Jul 23, 2013 by dustbear
	Hello, I am a new member. (Preview) I am new to this forum, but not to this treatment. I made my first post in the Rant and Rave section last week see Ignorant Friends. I have Hep C, genotype 1A. I just found out in 2011, and I know I've had it since about 1981 when I used needles briefly for 6 months (not heroin). I have lived symptom free for...	dustbear	5	1040	Jul 23, 2013 by dustbear
	Hello, I'm a new member. (Preview) I have finally decided to register after lurking here for the last few months. I was told about this forum by the research nurse I see for the Abbvie Sapphire Clinical Trial. I have just completed three months of placebo and am now into my second week of the real thing.	Jumpy	15	1267	Jul 20, 2013 by Bloomster
	New Member (Preview) I am a 57 years old female and was diagnosed with HCV in 1999. I contracted the virus from a blood tranfusion in 1977 in a bad car accident. My health is excellent. Genotype 1A, minimal liver fibrosis and inflammation, ALT and other liver enzymes almost always normal, viral count usually 1-2 million....	lauralou57	6	1030	Jul 16, 2013 by Kellie
	new (Preview) Hi all. I have just been newly diagnosed with Hep C - positive for antibodies and Viral load just over 4 mill. I know I would have got this about 23 - 36 years ago when battling Heroin addiction and the symptoms have just been picked up througha routine checkup with the Dr. I am 58 years but have kept really f...	perry	28	5352	Jul 13, 2013 by perry
	Im new (Preview) So I am a busy mom and student AND on week 7 of Pegintron and Ribosphere (genotype 3) ....the reason I found this site tonight is because I have been very irritable lately.... I have friends and family to talk to, but I'm that irritable that I don't even want to strike up any conversations with anyone, it...	wht_hppnd	4	962	Jul 12, 2013 by wht_hppnd
	the ribavirin and interferon treatment (Preview) I had a living donor liver transplant in 1999. But now the hep c has returned bad enough to put me on the treatment, I hope. Can someone that has been on it or is on it, how it makes you feel and what is your activity level?I was doing great for almost 14 years but they said it could come back and it has. My younge...	STEVE D	7	1421	Jul 11, 2013 by Kellie
	Happy 4th, I am Don Eaton (Preview) Hope to share my experirnce with triple therapy. And learn from others.	donald	9	1144	Jul 11, 2013 by britlitkaren
	New Guy (Preview) Hello all, lovely forum. I'm a geno3a and am about 5days into tx. Peg and lots of Riba (weight based 1200mg 2Xd) Got a pretty clean bill of liver health after the bx...slight signs of steatosis, but otherwise good news. Decided to begin treatment while SVR chances are pretty favorable. First shot done...	TN99	13	1250	Jul 11, 2013 by britlitkaren
	I'm new here, new to HCV and trial all together (Preview) Hi ! Nice to have found this forum :) I am French, from Paris, and have been diagnosed HCV last end of February, with early cirrhosis too. Contaminated by blood transfusion early in my life, 42 years ago. I started AbbVie TURQUOISE II trial on the 8th April for 12 weeks. Treatment ended on 1st July. My VL...	ios9	5	988	Jul 11, 2013 by britlitkaren
	I'm new here and to HCV (Preview) Hello! Like the subject says, I'm new to the forum and to the disease. I found out 2 days ago I was positive for hepatitis c. It a surprise, but not really. I will be celebrating one year clean (from drugs) on July 2. I always thought the drugs would kill me first so I was never really careful about how I used a...	Huffy	17	1501	Jul 9, 2013 by Kellie
	Hello everyone! (Preview) Just joined this group after reading many of your posts. After having abnormal Liver Enzymes for many yrs. finally DX with HEP C in 1992. Genotype 1b currently on triple tx of Interferon. Riba 1200mg daily and Inciveck 6 pills daily. Started TX on June 25. After first Injection had fever for almost t...	hepCFREEwanab	35	3768	Jul 7, 2013 by hepCFREEwanab
	New Members (Preview) Hello everyone. My name is Jim but go by Dreamkite. One because I dream of things that happen most of the time the next day or soon after. I now know it is God preparing me for usually something bad that is about to happen. Anfd the kite is because....wel after you know me you will see I can Really get our ther...	Dreamkite	15	1337	Jul 5, 2013 by JIme
	And now I have low platelets... (Preview) I went for my baseline blood test today and the plan was to start the peg/rib on Friday 7/5.....ok then the insurance company is giving a hard time about the victrellis because my doctor was on vacation and the office staff did not provide the info that the insurance co requested....ugh ugh ugh...so th...	tonib	6	1295	Jul 2, 2013 by nurschic
	Finishing treatment. What now? (Preview) Hi I took my last interferon shot 3 days ago and will take my last riba pills in 2 days. I finished incivek 12 weeks ago. It was really hard, still is. Does anybody know how long does it take to get rid of the side effects? I have a bad anemia, itching, severe hair lost, depression...... thanks	Chow1	2	925	Jun 26, 2013 by Cinnamon Girl
	newly diagnosed with Hep C antibodies (Preview) Hi my name is summer and I'm 29. I was recently diagnosed with hep c antibodies. I'm kinda confused about it. I got the viral load test and its undetectable. Does this mean I'm free from the virus? Can I get a vital load ever from the antibodies? Am I still supposed to not drink alcohol? Can I still transfer...	summerholliday	2	875	Jun 22, 2013 by Zlikster
	New Member from Texas (Preview) Hello from Texas. My name is Mike and been on the TX for 11 weeks now. I have had some good day's and very bad day's. My Sx are feeling very weak,dizzy,headaches, body aches,congested, confused,etc. I had low platetes and Dr put me on Promacta which is slowly bringing the count up and starting to feel a li...	Txmike	18	1222	Jun 19, 2013 by Txmike
	New Member (Preview) Hi Everyone, I have been reading your messages for a while and wanted to introduce myself. I diagnosed myself with HepC 3 years ago after several years of a variety of symptoms including extreme fatigue. While my liver damage appears to be non existent i believe the virus had attacked my central nerv...	Ckncali	26	2078	Jun 18, 2013 by Dillo
	New here (Preview) Just received info that I have Hep C IL28b genotype t/c. My dr wants to start treatment of peg-interferon & ribavirin. They said I should be clear of it in 6 months..Any thoughts? I've read conflicting studies about it. Any suggestions on how to deal with this would be great. I have also read awful s...	MamaLlama	14	1445	Jun 7, 2013 by Cinnamon Girl
	New Member in UK (Preview) Hi Everyone My name is LLoyd living in the UK I have Genotype 1a and start treatment on the 14th May I'll be on Triple Therapy Taleprevir (Invico) 2 tablets every 8 hours with fatty food (for 12 weeks) Ribavirin Tablets 600mg twice daily Pegalated 180 mcg s/c injection once a week I'm starting in a very p...	LLoydavid	41	2013	Jun 3, 2013 by LLoydavid
	Hello :) Newbie here (Preview) Howdy all :) I was diagnosed with Hep C in 2008, genotype 1A (lucky me lol). Due to a lack of health insurance, I didn't rush into treatment. I had a few symptoms of the disease, but they were manageable....up until a year ago. After being fed up with the random spells of nausea/vomiting, and feeling exha...	Amandums	11	1291	Jun 2, 2013 by Cinnamon Girl
	Hello Folks (Preview) I found this site tonight and have been reading for hours. Wanted to say Hello. I am holding out on treatment, hoping for some of the new treatments to pan out. I have Hep C 1. I have had to get life in order, while I stay current on treatment options. Thank you all for sharing. Just the reading gives me cour...	lpetie	4	942	May 31, 2013 by Matt Chris
	Hi All (Preview) I am off to pick up the drugs today. I must say I am somewhat apprehensive. I think I will start on Monday week... any advice would be appreciated.	ttikhio	23	1983	May 31, 2013 by Cinnamon Girl
	Autoimmune hep c (Preview) Hi all, I'm new to the forum and wanted to intro myself. I was diagnosed 2006 w/genotype 2, a stage 1 (biopsy). Quit all alcohol then and hadn't used drugs in 35+ years. Did all my blood work faithfully and fell thru the medical cracks, now stage 4, cirrhosis stage 1, plus auto immune hep C (2nd biopsy). F...	Antwinnie	3	1214	May 29, 2013 by hrsetrdr
	Triple therapy Bocep (Preview) Hi Into seventh week of treatment of triple (Bocep 3rd week), previous 2 attempts on double, genos 1 and 2. Bloody hell this is tough. My life feels like its on hold and consists of tacking meds at 6.30, hour travel to work = travel sickness, get to work = feel sick. more meds, go home = feel sick, no diet, a...	Corrischap	7	1293	May 29, 2013 by Bloomster
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