Hi everyone. Decided to start my own thread and post results before and ongoing. I appreciate it STL for using your posts lately and I want to thank all of you that have sent me words of encouragement. I have been a member of the forum for a long time but never got around to posting very often. I will giv...
I had my 18 month doctor visit this morning - With my hepatologist instead of transplant surgeon. Everything is good with a couple of wrinkles. First, here's my labs: Tacrolimus 5.7 AST 17 ALT 10 Total Bilirubin 0.9 Albumin 4.4 Creatinine 1.1 Platelets 169 Reds...
I had an interesting chat with my hepatologist today on follow up after ending Epclusa treatment 9 days ago. He said the fatigue I had during treatment with Epclusa generally affects his older patients but there are exceptions. He also told me to consider myself cured until proven otherwise. If rela...
Hi everyone! I'm so glad I found this forum. I've been lurking for a few days and have done tons of research over the past several weeks. I live a fairly healthy life. I ate OK, however, ate a lot of junk and processed food. I drank only moderately. I'm not overweight, just a normal guy in his upper 30s. I was...
This is a very informative and helpful article on understanding and managing Hep C, including common symptoms, treatment options and a list of patient assistance programs. Written by Alan Franciscus, the editor of the HCV Advocate website. In pdf format... http://hcvadvocate.org/hepatitis...
Well I hope this isn't another "glitch" but I had a pedi today and when they took the polish off, one toe nail had toe fungus. I was shocked....I had her leave the one nail unpolished so I could show them tomorrow at my appt. Fungal infections scare me...gotta quit reading. My wound specialist has not cal...
I was dx with HCV in March/April along with fatty liver and some cirrhosis and currently on tx. I've always been fairly healthy, BUT: Did eat a lot of sweets, Didn't eat breakfast, Ate a lot of processed foods, etc. Upon my dx, I've changed quite a bit. I never ate red meat, so that's still out. I don't eat...
Hello Everyone! I've been lurking and reading for a few weeks on here, and I've gathered quite a bit of information from the knowledgeable members :) I'm currently in the process of getting treatment, I've had my bloodwork done, and just yesterday, a sonogram of my liver etc. I've (tried to) create a s...
Well, day 17 and they pulled some of the staples but I would have been happy to wait awhile. You do feel like a zipper is in place but I have a history of the skin not healing well due to years of prednisone. I have a small area on my far right side that was weeping quit a bit post surgical and here at the hotel. It...
I am trying to start treatment with mavyret as soon as I get the funding for the meds worked out... I will paste some info from another thread as to my journey in trying to retreat without the proper insurance benefits... LOL
Got my transplant on the 12th...so far so good. I am staying in Seattle until they give me a pass to go back home where I will be followed by my Dr. over there. The whole thing is so surreal, I am still trying to wrap my head around it. Sorry it took so long to get back on here but I was having computer problems. I...
Hi Ed, I`m glad you`ve got your tx plan cleared up with your doc now anyway, that is the accepted protocol when you`re doing the incivek triple therapy, so just keep going and let`s hope for an UND for you at week 24. Your lab results aren`t bad, you`d expect to see some low levels while on tx, and your live...
The day before blood work! Now that's a sneaky idea Good one though. OK, was hoping for a magic bullet, I guess I will have to a settle for a sneaky bullet once in a while like you said. Thank you Gracie!
...Greetings:I am new to the forums.10 years ago, while I was being tested for breast cancer treatment at age 41, I discovered that I had Genotype 1 Hep C. (I was fortunate and caught the breast cancer early enough and I am a 10 yr survivor). I did a liver biopsy for the Hep C and doctor said, "You and He...
Yeah, I feel like that too. Finished month 3 of incivek in January, and most of February was awful. It's only in the last week or so that I've started to feel normal again.
Just another (recent) study about treating 80 year olds (and older) for HCV - but it just happens to lend support to the thought about the importance of earlier treatment. Excerpt only (see entire article) from: Journal of the American Geriatrics SocietyHepatitis C Virus Clearance in Older Adu...
From: MedscapeNews > Reuters Health InformationExtrahepatic Manifestations of Chronic Hep C Improve With Sustained Virological ResponseBy Will Boggs MDMay 21, 2018 NEW YORK (Reuters Health) - Extrahepatic manifestations of chronic hepatitis C virus (HCV) infection improve or res...
Hello all it's been awhile. I never had a fibroscan before I did the Harvoni and now it's been 2 years SVR and my doctor decides he wants to do one I think they just got the machine in their office and need to pay for it. I have had ultra sounds and they have come back with normal results. All else is normal as fa...
From 2010, but I thought this lady explained the differences well ... however, I believe the lower levels of quantitative detection is currently down to about 12 or 15 IU/L, depending on country/equipment used. How to Better Understand Your HCV Viral Load Tests - Nicole Cutler L.Ac. July 22, 201...
So...after my 100% Cure of HepC...(ta da) I got this crummy eyeball infection, herpes in the eyeball. Who comes UP with this stuff? And of course I got the infection that would not just go away, and it left me with reduced clarity in my right eye. Ok, not the end of the world, unless you are in California wh...
Hey guys,i haven't posted in a while but was contacted by my study place about a trial for people who failed DAA treatment so I thought I would run this by you. As some of you know I failed Harvoni twice. The first was 12 weeks and the second was 24 weeks. Anyway, has anyone had any experience with the dru...
i had my first side effects today; and i am considering that i may have to change the time of day i take my pill. has anyone done this along their treatment? i will call the pharmacy and get their advice, of course. sill i am wondering if anyone here has done this? i'm just getting ready in case these side ef...
Just to say a big Hello to everyone. I'm behind the times only learning there were now effective treatments available to all, in July 2017. I was referred for treatment, got a reply saying we will ring you when we have an appointment for you, but when nothing seemed to come of it I had pretty well resigned...
mallani wrote: My doc gave me the choice of finishing 1.5 days early. Being stubborn and stupid, I'm going to carry on and finish on Friday as planned. Good on you for finishing up! Might as well get that last bit in, for all the good it can do!
Hi Tig and All, I have been terribly busy with life & work, and have not posted much. But I still read, and I am happy , so many people are cured and doing great. well, another 6 month US and bloods, my doc actually did a viral load, unsurprisingly undetected... My 12.3 cm spleen was again tagged as "sli...
Well, got the call at 5:30 this morning to get things in order and they would call me ~ 9am. I have already changed flight reservations once and waiting. This is an emotional roller coaster....I need valium or something similar. Will keep you posted on what happens.
In my search for information, I located some handouts and advice for side effects for the latest DAA’s. Not comprehensive, but helpful. Most are short and some are blank, allowing you or your healthcare provider to fill in your prescribed care. Side Effects Management Taking Your Hep C Therapy
I just thought I'd remind everyone, something the doc didn't bother to mention to me starting treatment this time , but they did tell m in 03..and I didn't listen. Not taking any chances this time. It may be overkill, but awhile back I went on ebay and bought a huge box of disposable toothbrushes ( they su...
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