Hi all,It is worth looking back at the development of treatments for HCV, and where we stand today. I think it helps understand our disease and gives us some input into a proposed treatment regime.Hepatitis, or liver inflammation has been around forever. There are many causes. In 1963 and 1973, the H...
I am trying to get info on this trial... the gal at Baylor in Houston says I can start in August or September... 24 weeks ...this treatment is a combination of MK 5172, 3682, and 8408.. it is in stage 2. I believe it is called C-Crest 1, still getting information... apparently there are very few side eff...
Updated ACIP Recommendations Nix LAIV, Expand HBV VaccinationDiana Swift - February 06, 2017The final 2017 adult vaccination schedule has been issued by the Advisory Panel on Immunization Practices (ACIP) of the Centers for Disease Control and Prevention (CDC).Published in the February 6...
Fatty Liver Disease Fastest-growing Reason for Transplants in Young U.S. Adults By Carolyn Crist - October 18, 2017(Reuters Health) - Nonalcoholic fatty liver disease and its more aggressive form, nonalcoholic steatohepatitis, have become the fastest-growing reasons for liver transplan...
I hope that I'm posting this in the proper place and if not, then maybe the mods could move it. Hi all!! Been away for a while dealing with a tumor that they found on my liver. I was seeing another GI doc about a colostomy and other issues and on one of the ultrasounds [that I requested] the radiologist sug...
Here I go...accepted on transplant list, inactive (but the clock is ticking) until all the tests are completed. Will have a laproscopic ablation next Thursday. Using that approach due to tumor in an area of liver that sits on top of stomach. I have never been an idle person but would never have thought...
Recent article (and studies) about having a detectable load at EOT, or being "slow to become undetectable" during DAA treatment - that it does not equate to mean the patient will not reach SVR. Most do go on to being SVR. (Article draws from a couple good reference studies - the subjects analyzed had d...
California health officials have announced an emergency situation in San Diego, CA. Widespread Hepatitis A outbreaks have been announced in the area. This is particularly dangerous for anyone that may be infected with Hepatitis C or B. Be certain to avoid exposure whenever possible and assure yo...
It has been awhile since we bumped this into the forum for review. Some of you may have missed the thread we have on the subject. There are many payment assistance programs available. Gilead is not the only show in town. If you are denied by one organization, this list will provide you with additional op...
Hello all, It's been a while since I've posted. I'm 2 years 11 months post treatment and I'm starting to develop joint problems--back, thumb, wrist, and knee, etc. I'm starting to wonder if these problems are related to treatment? I know many will say, well you're getting on up in age, but my dad who is 8...
Apparently they have recently inserted some updates, including recommendations for re-treating TE (treatment-experienced). https://www.hcvguidelines.org/
Hi Guys I really need some information to help me care for my brother OK, this is the low down. two years ago he was told he had between 2 - 5 years to live if he stopped drinking. He has Cirrhosis of the liver stage 3 - 4 (still drinking) He has HCV, HBV, HDV - HCV untreated diagnosed 1996 - HBV underwent tre...
Hi all, I have been traveling for the past 6 weeks thus have not been posting or reading. A few things were pretty surprising to me whilst running about. Firstly, I did not enjoy my time away any less being on Solvaldi, Daclynza and ribavarine. If anything, I have felt more energetic, alert and alive s...
This is wonderful news! All you coffee drinkers can rejoice!!Increased coffee consumption lowers mortality risk in HIV/HCV coinfection Carrieri MP, et al. J Hepatol. 2017;doi:10.1016/j.hep.2017.08.005.September 26, 2017Elevated coffee consumption of three or more cups per day halved...
I have had Hep C for at least 8 years and known about it for about 4. I have yearly blood work done and every year everything comes back normal except for the fact that I have hep c. My VL is always relatively low (last test put it at 245,000). Liver function is and always has been normal and everything is with...
Hello everyone, I just wanted to say Thank you to all of you, from the bottom of my heart. It has been 3 days since my last dose of Epclusa, and I have a doctor's appointment to get my results on October 13th. Three months ago, when I first started treatment, I was so scared, and I didn't know what to do or wher...
I am on the countdown now. I have 9 pills left. SEPTEMBER 25 Once I changed over and am now taking my pill at night I am doing so much better. I had lost some weight but have regained it now that my appetite returned I really feel great and healthy with loads of energy!!! Man, those first few weeks were toug...
Hi I am new to the forum and have a question about insurance coverage. Specifically, I have Federal Blue Cross Blue Shield, the basic option. I just got diagnosed today. I was wondering how advanced your hep c has to be in order to get prior approved for Harvoni. Has anyone had experience wit
Hi. Can anyone confirm or deny please, if Naproxen, an anti inflammatory medicine is not allowed while using Epclusa? I have looked over all of my papers and do not see it listed but seem to remember someone saying I could not use it while on treatment? I might be wrong but have that stuck in my head. Real...
Universal HCV screening is a pathway to eradication Infectious Disease News, August 2017Michael S Saag, MDWhen we think about the possibility of universal screening, we can dance around, trying to dig out baby boomers or injection drug users, we can look at different risk factors or select popu...
Greetings, Let us start by saying you are more than welcome here. Welcome to read anything that may interest you. Some of you perhaps just found out you were infected and you are scouring the Internet for information. A bit in shock perhaps and not ready to jump into a discussion. That is quite understa...
This is yet just another repeat confirmation that coffee may be good for our livers, BUT, (as noted in the many other articles/cpnversations we have had, scattered throughout this site, about coffee possibly being good for you) ... it is supposed to be ground "fresh brewed"/ dripped/or percolated...
With the new DAA's on the market,you will notice the lack of HCV trials. Seems all the big drug makers have come out with there DAA silver bullet and are moving on. I gleaned some information about a drug company that will be starting a couple trials treating HCV-I have been on two trials and have kept i...
It has been a long time between posts for me. So many trial studies and so many years. I eventually ended up with one of the top doc's in Hep C trials, treatment... At the University of Pennsylvania. But there too, many, many trial studies until... The last two of note, the original single drug in Harvon...
Hello to all , Day 56 on the Zepatier , Went to the Doctor today she said I am @ for my VL AND I am a non-responder !!! 29 more days of med's and then a few more check-up's and I should be ok ! Feeling pretty good !!! ...
While it was fresh in my mind, I wanted to pass on the experience of HEP C Treatment with Harvoni. APROVAL : It took a long time to get approval from Express Scripts. Mainly because of incompetence on their part. I had been approved for 8 weeks of treatment (I was at Stage 2/3 Fibrosis, and count was only ab...
When I had my fibroscan the reading was 14 k/pa and I was graded in the 3-4 range. The doc evaluating the scan said I don't have cirrhosis but do have advanced fibrosis. My treatment nurse has several times mentioned things relating to my cirrhosis. I don't know if it even matters or not but when does fibr...
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