I was diagnosed with Hep-C in 2006 and have traced my contraction of the disease back to 1977. I have type 1A and was initially told I had a high viral count, but I don't remember the number. After a liver biopsy I was told I had F0 to F1 fibrosis. My doctor advised me against treatment, as at that time the tr...
As part of a routine physical in June 2017, being a baby boomer, my blood was tested for HCV and found to be Reactive. After a series of tests I was informed that I have 400k viral load, type 1a. I have quietly felt fatigued for several years with brain fuzziness. By force of will I have continued to work, an...
I am in the process of appealing the denial of Harvoni from CDPHP (CHP) here in NYS. I initially thought my Dr did that but unfortunately it's all up to me. I will need supporting doc from my Drs but I do all the legwork. I can guarantee, I won't just be limited to the form there will be several attachment...
So...I just got the call from the liver clinic saying my 12 week post-treatment labs showed HCV RNA "Not Detected" - hallelujah! I still feel (and worse, look) like a human water balloon, and am feeling a bit of disbelief that the virus is really gone (and fearful that it won't stay that way). Now to de...
I recently completed an Epclusa HepC treatment, 12 weeks, succesfully! My provider flipped the script on me before I got started with an original plan of being treated with Harvoni, and I ended up with a 4 week supply of Harvoni that is in my medicine cabinet right now... 28 pills, that have been kept in...
New information from the Hep C Advocate blog on the currently approved HCV drugs for 2017. Thanks to Alan Franciscus and the team there. HCV Medications 2017
well i have 7 more pills to go and ill be finished with the first 4 weeks of treatment, then ill get my next 4 weeks of medication... so far i have had :0 side effects .. i go see the disease specialist doc on the 30th of this month (fri) i am taking 325 MG of iron pills 3 times a day due to the fact that im seve...
The FDA approved AbbVie’s Mavyret to treat adults with hepatitis C genotypes 1 through 6 without cirrhosis or with mild cirrhosis, including those who failed previous direct-acting antiviral treatment, according to an agency press release. The new approval indicates only 8 weeks of treatment n...
In BC Canada and just failed Harvoni treatment. Had DNA testing to identify the drugs I am resistant to (the reason for the fail) and drugs that may work down the road. I am 1a with stage 4 damage having probably had this thing for 40+ years. BC is not offering re-treatment at this time although they "may"...
Gilead Sciences announced the FDA approval of Epclusa for the treatment of hepatitis C genotypes 1 through 6 in patients coinfected with HIV, according to a press release.“Epclusa has already helped further simplify HCV treatment among mono-infected patients, and we are pleased that HCV/HIV c...
Hi all. Thought I would drop in now and get in an early best wishes to all for the season coming up. Life is still pretty good for me, even though its been a rough year with a lot of general life stuff that happened - 1 after the other - but got through it all with my motto of 1 foot in front of the other. Its been ov...
Hopefully, I'm posting this in the right section. In cold weather (half the time where I live), I have symptoms my primary care physician calls vasculitis. Purpura starting in the feet and working up the legs (has been everywhere except my head, face, and hands at one time or another), fluid retentio...
Since we have the displeasure of the occasional inclusion of Ribavirin in our treatment regimen, I wanted to share a story I found. This comes from a woman that was dealing with personal hardships as a result of the all too real side effects of the drug. To those that are on this life changing drug, your s...
Forum Fund RaisingThis post was getting quickly buried! I had to dig to find it again, even though it is recent! I'm glad you had posted it Tig.Man, it's been a LONG time! that I can remember any fundraising being done - what, does this site just live on air? (hot air maybe, hee hee). I think Linux was the la...
Abbvie Pharmaceutical has improved the original Viekira Pak formulation and has included the timed release product called Viekira XR. That description and the original formulation of Viekira Pak follow. (Manufacturers detailed package insert) Viekira XR Monograph Viekira Pak Monograph
Today, July 28, 2017 is World Hepatitis Day! Encourage those you know to get tested, it's a simple process that may save your life or that of someone you know. Hep C treatment has never been easier or more effective. Please spread the word and turn on your advocacy machine! Together we can eliminate thi...
Hi folks!...had my return appt today after the many viles of blood drawn earlier this month to see if I qualified. Here's a couple results from tests that were high: AST- 45 ALT- 53 AFP - 6.2 (which is lower than it has been) HCV RNA quantitative real time PCR - 3,089,038 (log- 6. 49) Fibrotest actitest -...
Hi there folks, I saw the Hepatologust about a month ago and since my insurance wont approve Harvoni he suggested this Zepatier which I had not heard of. What are the risks and has anyone tried this and been successful? How did you do on it? Thanks, Iris
Posting from Yellowstone MT that I am enjoying the last few days before I start treatment. I have to admit I am anxious to just get started and on the road to a cure. Ever since my DX I have been noticing the little, but significant signs that my body is under attack, the bruising under my skin, dull ache in u...
I have a checkup next week at the dentist. Does he need to know about my diagnosis, or is it not any of his business? I remember there was a dentist who transmitted HIV to a lot of his patients, but they weren't practicing good hygiene and sterilization in the office, as far as I recall anyway. I'd hate for h...
This is a community funded forum. The contributions of our members help towards the running costs and keep this forum ad-free. If anyone wishes to make a donation, however small, just click on the link. Thanks to all those who have contributed, we appreciate your support. Tig - Forum Administrator...
Greetings, When I say I know of what I speak, I know of what I speak. I would say "trust me" but the fact is, you don't know me. To PROVE that you don't know me I ask you to take pause... ... think to yourself and ask the question; "Do I know this guy?". In fact; "Do I know anyone living in Texas?" OH and if so, "Do I...
Howdy folks! Wednesday, 14th June was my celebrated half century mark!! Woohoo!!, I even won a prize at work that day. But the best prize came a day late when I got a call and was told I have been approved for HARVONI treatment at the whopping cost of a 5$ copay (due to coupon). Shipment should be here on Mon...
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