With the new DAA's on the market,you will notice the lack of HCV trials. Seems all the big drug makers have come out with there DAA silver bullet and are moving on. I gleaned some information about a drug company that will be starting a couple trials treating HCV-I have been on two trials and have kept i...
It has been a long time between posts for me. So many trial studies and so many years. I eventually ended up with one of the top doc's in Hep C trials, treatment... At the University of Pennsylvania. But there too, many, many trial studies until... The last two of note, the original single drug in Harvon...
Hello to all , Day 56 on the Zepatier , Went to the Doctor today she said I am @ for my VL AND I am a non-responder !!! 29 more days of med's and then a few more check-up's and I should be ok ! Feeling pretty good !!! ...
While it was fresh in my mind, I wanted to pass on the experience of HEP C Treatment with Harvoni. APROVAL : It took a long time to get approval from Express Scripts. Mainly because of incompetence on their part. I had been approved for 8 weeks of treatment (I was at Stage 2/3 Fibrosis, and count was only ab...
When I had my fibroscan the reading was 14 k/pa and I was graded in the 3-4 range. The doc evaluating the scan said I don't have cirrhosis but do have advanced fibrosis. My treatment nurse has several times mentioned things relating to my cirrhosis. I don't know if it even matters or not but when does fibr...
Hi. I was diagnosed with HEP C June 2017. I have seen the NP in my GI's office, am Genotype 1a, my VL is 7.4 million and I have F1-F2 fibrosis. I had the Ns5 test and am resistant to both Harvoni and Zepatir, so my doctor prescribed Epclusa. I have been denied by my insurance company (apparently not sick...
I found this homemade Ginger Ale recipe and thought it might be helpful for those suffering from nausea and stomach upset. It will certainly be a healthier form versus the store bought brand and uses real ginger. Thanks to American Patriot Health for the recipe.Homemade Ginger AleIn traditional ho...
I can hardly believe it but yea I'm 8 weeks in and have my last bottle sitting here ready. I'll take my last pill September 25 The last couple of weeks have been much better because I'm now taking the pill late evening. I should have done so from the beginning and would definitely advise others to do so.
Here's a professional article on the various options used to determine levels (stages) of liver fibrosis. It includes the pros and cons of each. It's a 5 page article and may require free registration. I believe you will find it very informative. Assessing Fibrosis
Published in Gastroenterology - Journal Scan / Research · August 21, 2017A Combined Blood Marker and Elastography Test Found to Be More Accurate Than Other Tests for FibrosisTAKE-HOME MESSAGE·Because of a recent recommendation to combine a blood test and liver stiffness measuremen...
Amazing drug this Epclusa, ...It took me from 56million to Zero in 4 weeks. Kaboom. _______________ From: My HM0 pharm guy Greetings-On August 21, 2017 there was no Hepatitis C virus detected. We will check again for the virus on September 18, 2017._____________I am flat-out amazed at the effectiv...
I was a little disappointed with this news, not in a treatment plan for kids, nor in use of ledi, but with the age/size caveats - must wait until age 12 and weigh 35kgs (there is a lot of food for thought in that scenario). More so I am troubled and would be conflicted in only being able to offer sofa/riba to m...
Been on the epclusa for one week, take my pill at 4 pm. Feel good in the morning till about 1. Lot of stomach term oil, real short like 5 second headaches, crazy body ache,fatigue and then real tired. Is everyone else going thru this ? Am I being a Salley ?
Hello everyone, I must admit that I am excited and nervous to be starting Epclusa tomorrow! I was diagnosed in 1994. The past 23 years have been a whirlwind raising 4 kids! Still have one left at home, so thought it was a good time to start treatment. I have been waiting for a drug that doesn't have nasty s...
Do most of those that need a transplant try to get on the list at more than one hospital? My transplant Dr. is more or less a recruiter for Swedish (we are on the east side of the state). Had MRI on Mon. the 7th and never heard from him so I called on Friday, was told I have HCC...WOW! can't believe they never ca...
I am on day 45 of epclusa with no real side effects. However I have developed a low grade fever - this is Day 3 of it. don't have any side effects of a virus... Just fever ranging from 99 to 100. I have not seen this as a side effect anywhere but wondering if anyone else has experienced something similar? If it...
I got a call from my insurance company this afternoon telling me I have been approved for Epclusa! I almost started to cry, but was at work so I restrained myself. There are so many emotions going thru my head right now. For the first time in about 36 years my body and mind will start to feel better. It's be...
Hello everyone.
I just started treatment on Epclusa and took my first dose a few minutes ago. I have lots of water ready and I'm pretty excited and nervous. Those pills are huge and I've always been horrible at swallowing pills but it went down surprisingly easy. The shape probably helps with that alo...
Greetings my C friends. I've been out of touch for a while, hope you are all doing well. I'm doing very well. From an email I received from my C specialist: "On June 29, 2017 there was no Hepatitis C virus detected. This is a cure." Wow. Thank you all for the help, information, and guidance given. I know, it...
The doctor first put in for Epclusa and that was rejected. I was delighted to find an active Board - I looked at some sites where the most recent posting was from 2015!
So last week I was in here musing over how I was disappointed that I was still fairly constipated despite the "promise" of a liberating side effect. As my second week of Epclusa got underway, I was almost back to my old self. One glass of water, 2 cups of java and baboom. Well, today, I felt so happy that I h...
Avella HCV Mobile App Received email today about Avella's HCV mobile app and there is some good info in the tabs so thought I would share. I shortened the URL, Wendy! -- Edited by Tig on Thursday 10th of August 2017 05:18:31 PM
My kidney function has been "all over the place" at least in terms of Creatinine and Potassium for a couple of years, several times my lab results have strayed outside of normal ranges. There seems to be some relationship to various types of kidney malfunction and disease, and of course infection via...
just checked my emails for Sunday and my doctor had emailed me the following: "Hi, just saw your most recent labs and wanted to let you know that your viral load is not detected!This is exactly what we want!! Let me know if you need anything or have any questions. Continue taking your meds!!! Have a gr...
Hi. Am about to Start Epclusa, I believe within a week, or a bit longer. Everything has been okd as of this morning. Just waiting for the doctor to write the prescription. Its been a trip. Fortunately I have a sense of humour + in retrospect typed too much.... lol Sort of introduced myself in anoth...
ok, I'm going to do my best to post in a way that makes sense. I indeed did ask for a got my Baseline report and the results of blood test done at 3 weeks (Monday of this week) here we go: Quantative VL 3 weeks ago 6811894 ALT 36 AST 45 Quantative VL today 41 ALT 7 AST 13. I am Soooooooo...
I may have posted this question in the wrong spot, so will post it here as well. Please forgive me if I am not following the correct protocol! Still learning the ins and outs of this forum. Can someone please explain the necessity of the Viekira Pak and Ribavirin over another medication? My doctor r...
I was diagnosed with Hep-C in 2006 and have traced my contraction of the disease back to 1977. I have type 1A and was initially told I had a high viral count, but I don't remember the number. After a liver biopsy I was told I had F0 to F1 fibrosis. My doctor advised me against treatment, as at that time the tr...
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