On this type of message / support forum, each member has some HCV related information which pertains to them specifically. For example, each of us may have different genotypes, fibrosis stage, HCV medication, treatment start / end dates, etc. When you start a new thread or respond to another member...
I cmpleted 12 weeks of SolvadI and Daklinza 15 months ago. Genotype 3. The new drug is Solvadi wit 2 others I believe. I have stage 3 cirrosis. I'm not sure how to read the ultrasound report but am concerned about the elast reading of 216 with 271 being failure. Any advise or info will be much appreciate. ...
So, 2 weeks ago I started a trial for 8 weeks of ABT 493 ABT 530. Today was my fourth visit/blood draw - the doctor got my lab results back for Day 1 and Day 3. Results showed that on day 1 my viral load was over a million, and on day 3 of medication, it had dropped to 700ish. She said this is good news and exactly t...
I am hearing conflicting reports about svr and the increase of HCC. Can someone give me some stats/thoughts or news on HCC post svr? I have been SVR for almost 2 years - but i do have cirrhosis. Hope everyone is well!
Hmm, seems a litle brief to me, this little "brief". Perhaps a wee bit short on numbers and shy on data and details, but good that they announce they are "looking into things"! We shall see how the info grows and what more and all is revealed. Dejavu all over again, smacks of the tainted blood scandals in...
Hi all. First time on the forums. I have been on Epclusa for 5 days. I wanted to know if anyone has experienced sever changes in taste. Things that I am accustomed to eating and drinking taste dramatically different and unappetizing. I am also experiencing some gnarly diahrrea and wondered if an...
Hi everyone, Im 35 and about to begin Epclusa. I'm very happy to finally begin treatment. I've had this condition for over a decade. I've read about and watched videos regarding the side effects of this treatment, but Id really like to speak with some people who have taken or are currently taking this...
I am on my 4th day of Epclusa - I felt alright until the middle of the night last night. Terrible diarrhea, major heartburn, stomach pain. I have always had stomach acid problems, but it was under control with Prevacid. Cannot take Prevacid with Epclusa, so was switched to Famotidine. Last night...
Happy July 10 everyone! I know it's not an official holiday, but it's Monday so it's a start to a new week I just began week five on Zepatier BUT here is my dilemma: Last Monday, 3 July I only had one pill left of week four, I go to the doctor where I assumed my new box was waiting I get there and I'm told i...
I found an organization that assists individuals in finding available clinical trials in their area. The section I am providing, deals with HCV specifically, but you can go to the homepage and find information on everything under the sun. I hope this is useful and encourage anyone interested in par...
C-Crest trial data on new Merck coformulation. This is one to watch in the future. We need to pay attention to the Phase 3 results and trial opportunities. C-CREST DATA Coming Phase 3 Trials/EU (Scroll down)Efficacy and Safety of the Fixed-Dose Combination Regimen of Grazoprevir/Ruzasvir/Uprif...
On this type of message / support forum, each member will have some specific HCV related information which pertains only to them. For example, each of us may have different genotypes, fibrosis stage, HCV medication, treatment start / end dates, etc. When you start a new thread or respond to an existi...
Today a nurse called on behalf of the NP that is handling my Hep C case; she reports that the recent ultrasound showed no change, just some suspected "mild cirrhosis". I pressed her to define "mild cirrhosis" in real medical terms,asking her if that was like stage 1 cir...
Can somebody please tell me if its okay to drink lemon juice while on treatment. Also, what, if anything, is possibly considered helpful to you while your on the treatment. RIBA, Sol, Daklinza.....I drink plenty of water and a daily kale, spinich, beets, pineapple, blueberry smoothie......Anyt...
How is hepatitis C treated?Hepatitis C virus is treated with all-oral medications. These pills, called antiviral medications, are usually taken once per day. These antiviral medications are extremely good at attacking the virus and preventing it from multiplying.Antiviral medications wer...
Hi everyone! I posted on Epclusers corner at the beginning of my treatment. I have 8 weeks to go . The virus was undetectable after 2 weeks of treatment. Then the same at 4 weeks. I just had lab drawn last week and have an appt next week to find out those results. I have insomnia, headaches and fatigue which...
Clearing Hepatitis C Linked to Better Diabetes Control - Veronica Hackethal, MD, July 06, 2017(Excerpts from article)Eradicating hepatitis C virus (HCV) infection with new antiviral medication may improve glycemic control in patients with type 2 diabetes, according to a new study publis...
Here's an update on the ongoing medical position regarding pregnant women and the unborn, as well as addressing the current pediatric dilemma and trials. Pediatric HCV
HI people My story is good and very bad, Yeah !! I am cured I took a 12 week treatment with Viekera & Ribavirin. I instantly felt a calm when I joined this site, a place where I can relate, ask those questions and feel like that I not judge for my past as a wild child of the 80s, dealing coke passing th...
Hello, i'm Chloe. I have had Hep C since birth and today was my first day taking Epclusa. I have had a series of stomach aches throughout the day so far but nothing too serious. What side effects have others had with this medication? I have severe anxiety about starting this treatment and I was wonderin...
Hi everyone, I have Hep C GT 1 which I likely contracted in 1970 or so but was diagnosed in 2000. I opted not to treat at that time since my liver tests were only slightly abnormal and a biopsy showed grade 1 stage 1. I decided to wait for an option with less side effects and continued to monitor through live...
Just took my first Epclusa after staring at the box on and off all night. My special alarm to remind me went off at 7.50 am and I nearly cried as I opened the bottle. Great big tablets to swallow lol but I got it in one without gagging cause I've waited so long for this moment. A little wave of anxiety but mostl...
Wow it took forever but I will Pick up my Zepiter on 7/5/2017 . Sorry I have had no energy to post been workin 55 hours a week @ 28 degrees then the 5 mile bike ride @ 90 degrees it really kicks my ass . So I can't wait to start this battle . I think I will take it after work and then sleep ??? Any thoughts ??? I do h...
Just to let everyone know, because a couple of people in Washington sued the makers of Harvoni I believe and they won a settlement and now in this state you cannot be denied treatment because of your viral load or any other factors concerning your levels... Just thought this may be useful info. If you li...
Has anyone developed CIU (chronic Idiopathic Uticaria) post Harvoni tx? Finished Harvoni 8weeks tx in May 2016. January 2017 severe hives (daily), itching (daily), angioedema (x2) Currently taking 360mg of Allegra twice a day plus Zantac, (prednisone 40mg -Dr took me off, replaced with Zanta...
I found an interesting article, not good, just interesting. Strange stuff! In the water? I hope they run out of Hepatitis Types before they run out of alphabet...Five French patients infected with hepatitis E strain found in rabbitsIn a rare finding, researchers in France discovered five cases of...
We have a name for the latest and greatest triple DAA from Gilead, it's called "VOSEVI". The trial name(s) of the three drug combination that comprises Vosevi, should ring a bell for you. We have a few good folks here that have traveled this path, Canuck being one of them. She'll be happy to know they've...
The Hepatitis C Trust will be celebrating World Hepatitis Day on July 28th 2017, with a free conference for everyone affected by or interested in hepatitis C. The programme for the day and details for registering your place are available here http://www.hepctrust.org.uk/blog/jun-2017/hep...
C-Kat 1969 underwent the old Interferon treatment for a year ('03 -'04) and it was apparently successful despite although it having been physically rough. I appreciate Jimmy K's remarks regarding the changes that have improved the quality of treatment in the last few years. My only regret is the s...
Dr. told me today. Cancer, right lobe. Rest of the liver looks actually very good and my bloodwork looks good. cholangiocarcinoma as opposed to hepatocellular. Talked to me about interventional radiology/targeted radiation or targeted chemo.
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