Hi all, Went back to Mt Sinai Friday for Tom's MRI lthree month liver scan. Sad news, the "shadow" which was seen three months ago is still there. They determined it is a small tumor in the middle of his liver. The surgeon cannot remove it surgically like the previous one. We are very di...
Lots of very interesting reading in this month`s issue, including articles on: Post treatment issues and how long it takes for the drugs to be eliminated from the body; An examination of RAVs and what causes them to occur: Up to date news on the latest drug developments. Link to full newsletter... htt...
I have insurance but I am wondering what kind of money people have ended up spending to get treated? I am looking at 24 weeks, we have insurance but I am kind of worried. Any advice on how to navigate this? Thanks
Hi all, I was EOT on 9/27. Had no blood work scheduled, so I called my Dr's office to see when they had my eot+4 scheduled. They didn't, and told me I didn't need it because I've been undetected all the way through. Long story short, I had to pull up the aalsd guidelines and read from table 6 that the tes...
Bristol Myers-Squibb announced today that the U.S. Food and Drug Administration (FDA) has accepted for filing and review three supplemental New Drug Applications for Daklinza(daclatasvir), an NS5A replication complex inhibitor, for use with sofosbuvir with or without ribavirin.The applic...
On October 5, 2015 FDA approved revisions to the Olysio (simeprevir) label to include dosing recommendations for the treatment of HCV/HIV-1 coinfection and to expand the indications and usage to include genotype 4 infection.Full details...http://hcvadvocate.blogspot.ca/2015/10/olysio...
Still not detected.....YAH!!!!!!! Alt-38 Ast-33 On my 8 week my results were Not detected Alt-17 Ast-21 Is it normal for these numbers to fluctuate during treatment??
I just came across this today, I guess it's a little late for me having got on the Sovaldi Treatment already, But It might help out people seeking a more affordable treatment. http://www.abc.net.au/news/2015-08-20/hepa...
Are there other treatment options that are cheaper than Harvoni? Or possibly I can use the Harvoni as a last ditch effort, trying to get 24 weeks, but not sure if insurance will cover. I think I read that you can take S/O and if you fail that you can still do Harvoni with success. Actually considering Bu...
Hi all, just got results, everything is WNL , except the Platelets at 132, which isn't bad . Dr. said he didn't think my liver was cirrhotic because of the fibrosure results a few months back, Said he couldn't ever feel my liver. Well Woots me. Then why the low platelets? Love and best wishes all around , k...
In Remembrance of my husband Art Schlosser who lost his battle on Oct. 2, 2009Hi there Papa Bear, I just wanted to let you know that we are ok though not a day goes by that we don't think of you. It's been six years today since you left us and though we had some really hard times for a few years things have been s...
The reason I'm asking is I have lost my sense of smell in the last few months. I had a bad cold a few weeks prior to treatment in June and it never returned. Just wondering if anyone here has heard of this? My ENT has me on steroids for 2 weeks but I can't help thinking maybe the ribavirin might have somethi...
I need help with some information. I was treated in 97 with mono therapy Iterferon alone, did not work. Did not try anything else...fast forward to 2015. Heard about new treatment went through lots of test including Fibrscan (F4) Blood work normal except Alt and AST. Ultrasound came back norma...
I found this letter below on another forum and wanted to share with everyone. I just wanted to cry when I read this because I was fortunate enough to get accepted into Support Path on June 11,2015. What really breaks my heart is that this is going to devastate so many people who's insurance denies them. H...
Just wondering how many decades can this dragon survive undetected in the body?? I figure that in my case I got exposed in the US Navy basic training in 1964 as I have never done IV drugs in my life or got a transfusion. My Hep C was Dxed in the year 2000, and started to feel fatigue earlier than that. So far...
Here's an interesting article on Biotech stocks, IPO's and Big Pharma's battle to be the best (and wealthiest) industry. "Gilead's Sovaldi and Harvoni were breakthrough treatments for the disease, but they were also the poster children of overpriced drugs. At list prices, a regimen o...
Hello Everyone. I have been reading posts on this forum for some time and I thought it was time for me to contribute. I would like to share my story. I was born with some chronic GI problems that required surgery when I was 7 days old and again at 7 years of age. I received blood transfusions during my surge...
An update effective Oct. 01, 2015 was made to the U.S. Medical diagnosis coding system. It's known as the ICD-10 or the International Classification of Diseases, 10th Revision. These are the codes your doctor must use when submitting your records to insurance for reimbursement. If these codes are...
If you are taking truvada and start harvoni be careful. I started my harvoni treatment 4/2/15. I did not reach undetectable status until between weeks 8-10. Around week 13 I started having activity intolerance. I would get tachycardic, light headed, and short of breath with about 15 minutes of ligh...
30 days in. No problems. A little tired now and again. Have managed to go to the gym 4 days a week. 20 min. weights and a 1/2 mile swim each visit. Blood work on Monday. Hoping for good news. Heading up to Vermont for a week of vacation in a couple of weeks. Keep the faith. Be well. G
I didn't think I'd get my lab results until I saw my doc tomorrow, but the lab posted them last night. I was afraid to open the file, but of course I got over that bit of silliness in about a minute....NOT DETECTED! So the first hurdle has been passed! Thanks to God, and to you all for your encouragemen...
Well it has been two weeks since I started taking Harvoni. Doing okay as far as minimal side effects but I am really being bothered by this loud constant ringing in my ears. Just wondering if anyone else has experienced this.
Hello everyone, just wondering if anyone else can relate to this. I was checking Angelo's blood results throughout the last 2.5 yrs. and I noticed that his sugar levels have been high then normal, then high again. The last 5 x the results were as follows 98, 111, 147, 72, His doctor never questioned...
Hello! Sorry for my English , I write through an interpreter , although few know English , but it's easier. And so : I am 35 years old , 19 of which I have hepatitis C. F=0. 11 weeks ago I started treatment with the Egyptian sofosbuvir and ribavirin 24weeks. The treatment produced faster results , but I'm a...
Hi Everybody I am new to this forum and was diagnosed with HCV in 2009. Since it was no cure for the virus up to now I tried to maintain healthy lifestyle all these years (doing sports, not drinking...) and the virus did not bother me much. Now I am past 65 and applied for treatment covered by OHIP. Even tho...
Hey all hope everyone is tamming this wicked dragon ,i was wondering if anyone post treatment is suffering with stiff hips nfett n back everyday since treatment i struggle each morning till round 10 am to get goin im post about 8 weeks not sure if i should still have sides thanks Matt
Hi all, I'm finishing up 24 weeks of sov/riba today. Been undetected all the way through TX and I've gotta go get my EOT labs drawn tomorrow. I kind of dread the drive (I'm being treated at a clinic that's quite a distance from home). But my wife has a colonoscopy scheduled for tomorrow morning, so I'...
I am on day day 4 Holkira pak with Rib, I have noticed I seem to be getting very dark, rather large and random bruises, mainly on my legs and without obvious cause. Is that something forum members have seen before from treatment? thank you Alison
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