Hi Folks, Haven't posted in a while as I wanted to wait for all results to come in. I'm still virus free at 3 months post treatment. AbbeVie says I'm SVR but my doctor feels 6 months virus free would be SVR. Either way, fine with me. However, cryoglubulins are still in my blood and he feels that since I was vi...
Results came in this evening: For me, after 12 weeks of tx, EOT result is UNDETECTED! For my husband Paul, half way through a 24 week course of VP/Riba, result is UNDETECTED! We never thought we'd see this day and feel so blessed to have had the opportunity to be treated with these miraculous drugs....
Hello all, I work on behalf of a nationally recognized 501c3 non-profit called the HealthWell Foundation (www.HealthWellFoundation.org). HealthWell provides a lifeline for underinsured Americans. Since 2003, HealthWell has distributed nearly $900 million to over 200,000 Americans in n...
Has anyone experienced tinnitus (ear ringing) due to taking Harvoni? My right ear started about two weeks after I started my treatment. I went to my ENT doctor Monday but he can find no reason other than the possibility of a reaction to Harvoni. It is not listed in the noted side effects. I just today pur...
Had post tx 4 wk blood test done last fri.. and a couple of other tests my reg. doc wanted done also. Have been using a cane to help me walk for 2 wks now. 1/2 way thru harvoni tx I started getting a lot of pain in L hip, that went to L knee and to R foot. Some nights could barely, seriously walk. So last Fri. had...
hi, just got the results back from the 1st blood test under treatment of ribavirin/sovadli . my dr. is keeping a close eye on my blood work ,hemolytic anemia being a concern.i am pleased to say that not only are the meds not giving me too hard of a time but that also my blood work shows that everything is on c...
I've recently been seeing advertisements for Xifaxan for treatment of irritable bowel syndrome w/diarrhea (IBS-D) on TV. As some of you with advanced liver disease know, Xifaxan can also be used for the treatment of hepatic encephalopathy (HE). It can also be used to treat travelers diarrhea (TD...
I am Geno 3a with F3 Fibrosis. I was on Interferon/Ribaviron for 24 weeks in 2012 and relapsed after EOT. I will be starting treatment in the next couple of weeks. I retain Iron and have done many phlebotomies. I am 63 years old and in good shape BMI less than 30. My biggest question is why do the cirrhotics...
I have had some crazy muscle twitching in my triceps recently. It is driving me nuts. I am not on treatment yet but am experiencing many symptoms. Has anyone experienced this? I read online that muscle twitches are common sign of dehydration so I drank some cranberry juice and ate a bunch of green...
Well, the good news is that I'm still undetected after a year from a mere 6 weeks on Sovaldi/Olysio which I had to stop because of heart flutters. My heart flutters are still here and some days I have as many as 10 to 15-- rarely will I have a day with no flutters. Before treatment, I used to have one or two a ye...
The pain in my hip has been diagnosed. My PT rolled me around and had me do some moves and now feels that I have a bulging disk. I have been going at least twice a wk. for 3 wks. Another light at the end of the tunnel. Had no idea a disk could cause me to not be able to walk. Thank you all for all the feed back, very i...
HAS ANYONE ELSE HAD TERRIBLE INTESTINAL ISSUES? I am so sick in my tummy all the time. I am on treatment but these things popped up before treatment. I have gas, bloating, rolling feelings, gnawing feelings. I did have my gal bladder checked. On a scale of expulsion with 30% being normal mine is at 24%. N...
hey, so I have just finished week 4 of holkira pak and ribiviron. Alt and AST are the lowest they've been in 32 years YAY 15 and 18 but...hemoglobin has dropped below normal Pre treatment-----145 week 2. ---129...normal range week 4 ---115....normal being >120 I really want to stay on...
I am just about to start Harvoni in California, but still haven't been told by Kaiser what it's going to cost (I'm on the silver marketplace plan). Based on my research this morning it seems that, in 2016, my out of pocket cost for Harvoni will be capped at $250 a month, so I would only pay $500 for an 8 week r...
Very good news for Hep C patients in the UK with Gen 1 and 4, and some with Gen 3!The National Institute of Clinical Excellence (NICE) have announced which of the new treatments would be made available by the NHS to people living with hepatitis C. This NICE decision is concerned with widening access be...
Lab report says: NEGATIVE, It does not say undetected but says, "Hep C /PCR,QUAL negative" I am beyond thrilled! Still a bit anxious as to platelet count falling, but not too low... down to 101 now PT slight high but lower than last month at 14.6 INR is 1.17 last month 1.17 Alk Phosp ...
Hi Everyone, I would like to make a request of the membership. It seems that in light of today's new technology, we're experiencing some problems with picture formats and the lengthier website addresses (URL's). Whenever an attachment, such as a picture or image is added to your post, if it is a large...
I have a friend who also happens to be infected with Hep C. I last saw him in June, when in my eyes, he just did not look well. I opened the conversation with news of my Harvoni treatment and my Hep C affliction. He shared with me news of his recent discovery; he also has Hep C and was to begin treatment with...
Some very good news indeed! WOOT!!"FOSTER CITY, Calif.--(BUSINESS WIRE)--Sep. 21, 2015-- Gilead Sciences, Inc. (Nasdaq:GILD) today announced topline results from four international Phase 3 clinical studies (ASTRAL-1, ASTRAL-2, ASTRAL-3 and ASTRAL-4) evaluating a once-daily, f...
I know it doesn't mean much at this point but still feels pretty good. All my Bloodwork is normal now except my platelets hanging on to 80. This plus pumpkin pie is really making this Thanksgiving weekend pretty awesome!
Here are some new updates that you should find helpful and informative. FDA Updates Labeling for Olysio C Tracker App Caffeine Decreases Fibrosis in HCV Infected Men
Final dose just went down the hatch! EOT labs tomorrow, then the wait begins. Bye-bye mean Mr. Riba and your nagging old cough. Penny -- Edited by Penelope PePod on Monday 12th of October 2015 12:37:13 AM
I just finished 12 weeks of Harvoni and can honestly say that I feel as bad or worse than I did pre TX and from what I'm reading in this 'post treatment topic' no one has returned to pre TX energy levels. I realize that my liver and other systems involved have to regenerate, but how long will it take? I realiz...
Hi all, Went back to Mt Sinai Friday for Tom's MRI lthree month liver scan. Sad news, the "shadow" which was seen three months ago is still there. They determined it is a small tumor in the middle of his liver. The surgeon cannot remove it surgically like the previous one. We are very di...
Lots of very interesting reading in this month`s issue, including articles on: Post treatment issues and how long it takes for the drugs to be eliminated from the body; An examination of RAVs and what causes them to occur: Up to date news on the latest drug developments. Link to full newsletter... htt...
I have insurance but I am wondering what kind of money people have ended up spending to get treated? I am looking at 24 weeks, we have insurance but I am kind of worried. Any advice on how to navigate this? Thanks
Hi all, I was EOT on 9/27. Had no blood work scheduled, so I called my Dr's office to see when they had my eot+4 scheduled. They didn't, and told me I didn't need it because I've been undetected all the way through. Long story short, I had to pull up the aalsd guidelines and read from table 6 that the tes...
Bristol Myers-Squibb announced today that the U.S. Food and Drug Administration (FDA) has accepted for filing and review three supplemental New Drug Applications for Daklinza(daclatasvir), an NS5A replication complex inhibitor, for use with sofosbuvir with or without ribavirin.The applic...
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