Hi all...haven't checked in lately and wanted to give an update. I am on week 21 out of 24 week tx. We moved to Wyoming in September and I was already short of breath and had to pace myself. Thing is...we went from an altitude of 13 ft. to 6,700 ft. There are days I can't even brush my hair without having to cat...
hot diggity! had to post this and hope it encourages those just starting treatment (even though i haven't been in treatment very long myself) i started my med. (sovaldi/riavirin) on oct. 1st. if i remember correctly...two weeks ago i had my enzyme level checked and they have dropped to...
When I think about my experience with interferon/Ribivarin vs. Harvoni it is amazingly different. I can remember the extreme loss of memory to the point where I would be driving in my car and be on the freeway and completely forget why. I took no time off from work and I worked 6 days a week. Have no idea ho...
From the blog of Greg Jeffreys, good news on the importation of generic medication for personal use. I hope this is a signal of equal opportunities for people everywhere. UK Generics Hep C Medication Importation
Hi all,I did a post on peripheral neuropathy a few months back.http://hepcfriends.activeboard.com/t60802131/peripheral-neuropathy-and-hepatitis-c/ Since then, I did have an EPP (plasma electrophoresis) and nerve conduction studies. They were both normal. In view of my cirrhosis I was a...
To all of my old friends I hope you are well and life is good. I'm still Hep-C free after 2 years. All my ALT's are normal and my liver is slowly coming back from end stage 2 sclerosis. I still get a ultrasound every 6 months to check for cancer. Other than my COPD killing me I'm very healthy. LOL Oh well life is...
Started Harvoni Sept. 9 2015. Was a real miracle for me to even get the medication. Failed interferon/ribivarin in 2009. Left my body in worse condition. I am experiencing a side effect I didn't expect to have during my new treatment with Harvoni. I was told I may have headaches, nausea, diarrhea. How...
hey all, 1 1/2 months into the treatment (sovaldi/ribavirin) and just got the results from my 1st. blood test. they didn't test the viral load but my enzyme levels have dropped from AST level at 286 to 29 , and the ALT level from 356 to 30! both in the normal range. my dr. says she is very optimistic.not sur...
Hi all i was mentioning my water intake today at the health club and later on I received a phone call from a friend who had just had a kidney ultra sound. In talking to the tech she told him how much water I am drinking and they said it could raise sodium levels and harm my kidneys. Honestly, I love drinking a l...
Hello, I just joined the forum although I have been a lurker in the past. I am level 4 fibrosis/ cirrhotic and am/was treatment naive I started treatment yesterday. I am taking the Abbvie "Holkira" pak as well as rbv. Dr wanted me on a 12 week treatment but here in BC the pharmacare will only pa...
I just spoke with my Dr's Office. I'm Undetectable at this point. I was still positive at 4 weeks. 11 mill to 54 units. I was nervous because this was my third treatment & I was still somewhat skeptical. Im not sure what the relapse rate is for 6 month check ups are but today I'm truly excited. Thanks fo...
Hi all started treatment yesterday sofobuvir, Ribavirin,Peginterferon 12 weeks first treatment I could have had Hep c 35-40 years very excited -- Edited by Mikaere on Wednesday 4th of November 2015 04:48:18 AM
I am a serious worrier and now I am worried that my treatment for Shingles with Valtrex( Valaciclovir )caused the virus to mutate. Anyone else here clear the virus after being treated for Shingles before treatment(for me 4 years)? I am also scheduled to receive my second shot for the Hep B vaccine w...
Well, time to change the theme of my posts since I no longer have Hep C So 3 months since EOT and I have very little to complain about. Some aspects of my body function are the best they have been in many years. I am amazed. I'm back on the bike after my initial comeback was derailed for a few weeks due to so...
It has been several weeks since I posted last. I reached SVR 12 in my last post. I have really good days and then out of nowhere I feel horrible. My blood pressure seems to be on the low side. My feet burn and feel numb sometimes. I sprained both my ankles and threw my back out. I'm in worse shape than ever. I'm...
Hi and hope hope everyone is well. I've not posted in a very long time after failing treatment twice I just decided to hide away (easier than facing reality). Anyway ive been offered a chance to try treatment again. Now I'm really stressed I've been given the choice between sovosfibir and simemprivi...
Just had my second blood testing done. Have not talked to doctor yet but have appointment this Friday. Went online and saw my results. Everything looked good but something new was there. High (12.7) monocytes. Previous tests were okay. I am in week 8 of my Harvoni treatment. Anyone have any info on why...
Hello everyone, I posted on this forum last year and earlier this year. As my siggie states, I am a 42 year old male currently in the UK who has genotype 3 Hep C, and is co-infected with Hep B. Last year I did a 24 week course of Peg/Riba, and ended up relapsing 3 months after treatment ended. Treatment was ut...
Hello all, New here day 11 of Harvoni, feel good, moving forward. Cheers and good health to all type 1b diagnosed 2013, who knows, maybe 30 years with HCV/ treatment naïve until 11 days ago//in very good health walk 1-3 miles a day with 2 large dogs/eat very well and always have/grow my herbs an...
Its been one week to the minute since the love of my life lost his battle with his Cirrhosis/HC/Cancer..... found out on the 25th of Sept he had liver cancer, one oncology appointment then Oct 4th we landed in ICU for two days then moved to Hospice wing of the hospital as there was nothing more they could...
I was in the barber shop owned by a man who had cancer. One of the customers was talking about his brother who has liver cancer and Hep C. Then the man stated he had Hep C but had been cured. His brother had not and had subsequently developed cancer. I asked about the treatment, time frame and this is what the...
Hi all I just took my first dose of Viekira Pak/Ribavirin today! I woke up this morning with such a feeling of dread and isolation. I'm obviously hoping and praying that my side effects are minimal. And that the next 12 weeks fly by as quickly as it seems this year has!! Seriously, when I opened the packa...
Hi all, ok I have completed Tx - SVR+12 (yes!) . My Hepatoligist wants me back in 6 months. I have an ultra sound and blood work to get done prior. He said he now he wants to watch for liver cancer. Is this the route? Shouldnt I be getting an MRI? What technical words am I looking for on my test? I remembe...
Maybe this is not a good excuse for not checking in but it is what is I guess my journey continues The Harvoni train was very excitingand seeing so many of usmaking it to End Of Treatment and feel the freedom. I and began to think about what to do now.For me I now look at this journey as a stop I did to g...
Finish 9th week of 12 tomorrow. Still hitting the gym 4 days a week. Had a great 1/2 mile swim tonight. Coming out the other end of this ready to roll. Signed up for a Triathlon in June. Good luck and good health to all. G
Hello Everyone. I would like to thank all of you that participate in this forum. I have found the forum to be very helpful and reassuring during my journey to a cure. I am presently taking Sovaldi and Ribo to treat my stage 2 Genotype 2 HVC. I just got back my viral load test at the half way point of my treatme...
Staying adequately hydrated is vital to good health as well as very helpful with reducing the severity of many side effects caused by Hep C treatment medications. Don't overdo it. Although not as likely as dehydration, excessive hydration can cause issues too such as headache, cramps, bloating a...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
So 3 months since EOT and I have very little to complain about. Some aspects of my body function are the best they have been in many years. I am amazed. I'm back on the bike after my initial comeback was derailed for a few weeks due to so...