Hep C Discussion Forum

Greg · Greg

http://www.healthcanal.com/immune-system/14223-10000-Hepatitis-patients-could-hold-the-key-better-treatment.html

Mano · Mano

need to talk..

Syxx · Syxx

I am in shock. Was just having routine tests and got called back by GP. I can barely remember what she said beyond something about my liver function being "off" So more bloods today except this time the nurse stuck a 'risk of contamination' sticker on the vial after she had taken my blood. Ho...

Hep Me · Hep Me

Hi, I'm a new member about to start treatment. I am wondering if anyone in treatment knows if there is any big difference in these two drugs other than one has the syringe and the other the pen type injector? The hep c book I have says one is basically a different consistency, but as far as the actual treatm...

rio · rio

Well... It just aint been happening for me at the moment folks, which is damn frustrating! If you haven't already picked it up via twitter or facebook, I didn't get to have my biopsy but just a rather expensive and annoyingly frustrating kind of a week. As I said on my vid, I was due to go in on Tuesday - Fant...

parkness · parkness

Hi The Hepatitis C Trust had a meeting with DWP on Monday of this week, here is a brief update on how it went. There have been an increasing number of calls (and discussiosn on forums) from people having trouble accessing benefits when on treatment or highly symptomatic so today The Hepatitis C Trust...

rio · rio

Hi folks, Just thought I'd post this before for I go back in to Jimmys' for a Liver Biopsy after my 1st year with my new Liver! (http://ianquill.blogspot.com/) Ian Quill : My World, A blog for me and people like me, beating HepC My Hepatitis C / Liver Transplant & Biopsy Video Diary http://youtu.be...

Keith Thompson · Keith Thompson

Ive had Hep C symptoms for 3 years,been tested 3 times(neg) and waiting for results of another.Can anyone tell me how accurate the basic blood test for it is?

bethland · bethland

Hi everybody that shot was full of air bubbles i couldnt get out ..oh well tried not to waste any.. one to go .... yep James it is what it is ...hope you are doing ok you sound like a real doer, always positive ... you are almost there, got any plans for the big day ? Jill i hope those sleeping tabs are working f...

Jillie1979 · Jillie1979

Hi all, I'm having my antibodies checked again on Monday morning and I just wanted to ask for some prayers. My RNA test came back negative so they're trying to rule out a possible false positive. I won't get the results until Monday the 17th and I think I might be a nervous wreck until then. Thanks! XO Jill...

hrsetrdr · hrsetrdr

Several days ago I attended the "hep c' class, my HMO conducts. I'm glad I went, I already knew most of what was presented, but I wanted to "go with the program" and not be seen as a 'rebel'. The PA ordered a pile of labs, and said that I'd be scheduled an appointment "soon", t...

AlexNY · AlexNY

hello everyone,My name is Alex, i've had hep c for about 10 years. never really thought of starting tx, but recetly started to consider tx because of increased fatique, weakness, feeling "cloudiness", inability to concentrate. just a year ago my vl was 1 mil, now it jumped to 6 mil. tomoro...

sunny77 · sunny77

I wanted to update you all...I was in the process of getting started on treatment when I had a real bad acute attack, at about 9 weeks post infection. Nausea, vomiting, slight jaundice, yada yada yada. My ALT went to 1900 and my AST went to 1300, yowzers!!! So my doc said to hold off cause this could be a si...

Bobbygrinns524 · Bobbygrinns524

Hello all, Please answer this question as I have been worried and have been told a few different things on different forums. My question is in regards to contracting Hep C from the following exposure. I was at the gas station pumping gas after pumping I used hand sanitizer on my hands (As I always do) and...

JPD53 · JPD53

Hi Everyone. I'm new here. I completed my pegintron treatment three years ago. I couldn't continue after 2.5 months of the regimen because my thyroid function was destroyed. I no longer have the Hep C. But I have no thyroid and huge psoriasis plaques have developed. I'm a bit pissed because no one seem...

rio · rio

Wow! Ya know, one of the best things about blogging (for me) is that it's a bit like keeping a diary! As with a diary, when you need a little inspiration, you can look back over some of your old stuff and very often you can sometimes amaze yourself. And that has just happened to me. Like many people, a new yea...

James10500 · James10500

I took old Jackson my 12 year old yellow lab to the Vet today. His liver is inflammed and she told me he has Hep via ultra sound. As we all know dogs don't get HCV. She said it was probably age related. Anyway I'm sure you can relate to the look on my face when she told me.

rio · rio

Hi Folks, For what seems like forever, I have been saying Once Im better, Ill be able to! What? Get back to normal? Carry on like nothing ever happened? Put it all behind me? Well, the first two of those (get back to normal & carry on like nothing ever happened!!!) will never happen. Its not that Ive le...

rio · rio

One year on, A Strange New World... (Hepatitis C / Liver Transplant (Hep C) HCV Blog) Monday, 27 December 2010 On this run up to the New Year and with Christmas just behind us, as with many people, it has prompted me to sit back and take stock of the year and to cast my mind back over the highs' and lows' of 201...

bethland · bethland

Hi Everybody i have been pretty quiet, just getting along the best i can. I spent christmas in Scarborough, house sitting my daughters apartment only minutes from the beach ...yum swimming... Great news ... i went to the hospital pharmacy just before christmas and as it turns out this is my last box as...

James10500 · James10500

Celebrating all Those Who Reach SVR Somehow it came, we dont know quite when, Chances are from a stranger; perhaps from a friend. Often its hard to know who was the giver, Receiver, we know, is always the liver. Do the tests; get reports; slowly you learn Interferon and riba are cause for concern....

Kirstin · Kirstin

Went to clinic today, got to finally see the top guy, hooray!. Finally feel as though I am getting somewhere this afternoon, in a good mood now . I was told that I had genotype 2 but I don't, its 3a so basically the same, still only the 6 month treatment. Biopsy results were in, not too bad just band 1 scar...

espaeddie · espaeddie

Hi all got p***ed off being unable to find reply so un subscribed now calmed down so am resucribing. Finding things hard at moment .never mind move up and move on all the best eddie xx

RainbowDustin · RainbowDustin

I have known I was Hep C Positive for around two years... around the second month I found out I was sent to a specialist who checked my viral levels I guess and they were very low, almost undetectable. So I didn't have treatment, two years later for the past week I have had horrible pains in my liver area, I...

Kirstin · Kirstin

I am so confused/annoyed/po'd right now. The last time I visited the liver clinic & spoke to one of the Dr's there he told me that my next appointment there, scheduled for the 16th Dec, would be my starting date for treatment. Just the biospy, which I had done, then a visit to a shrink (which the clin...

Kirstin · Kirstin

I have wrote before of discrimination and how I was afraid of it happening to me...well.. & I may be wrong but I believe it may be happening at work. I work for one of the top 5 star hotels here in outer Sydney, been there for quite a while now & enjoyed the status of one of the top (preferred/reliabl...

Lesleypyramid · Lesleypyramid

Hi Everyone Not posted before as I'm new to this forum, but was advised that Laurie might be able to help? I've been asked whether I can provide any help with a heartbreaking situation. A young boy (7 years old) who acquired HCV as a consequence of vertical transmission from his mother. He is now being b...

Kirstin · Kirstin

After all of the visits to the liver clinic, doctors etc I still haven't really been told what to expect during the TX treatment. I know what I have to do, how long it's going to take etc etc but no-one has discussed the side-x's with me. I have asked & all I recieved is a booklet that really doesnt tell m...

bethland · bethland

hi everybody i just had my wk 39 shot which makes me in the single digits ....9 to go... hooooray!!!!! hope you are all doin well .... love to all Elizabethxx

sunny77 · sunny77

I have not yet started treatment, but am suffering from symptoms of acute hep c infection. I got infected 9 weeks ago and have been having fevers, fatigue, high abdminal pain, and now my urine has turned orange. My AST and ALT were 10 times normal at last test. Anyway, on Saturday I got extremely fatig...

Topic		Started By	Replies	Views	Last Post
	In the news for UK residents (Preview) http://www.healthcanal.com/immune-system/14223-10000-Hepatitis-patients-could-hold-the-key-better-treatment.html	Greg	2	1150	Feb 5, 2011 by Hexen Hour
	anyone around? (Preview) need to talk..	Mano	22	1564	Feb 3, 2011 by Mano
	Terrified (Preview) I am in shock. Was just having routine tests and got called back by GP. I can barely remember what she said beyond something about my liver function being "off" So more bloods today except this time the nurse stuck a 'risk of contamination' sticker on the vial after she had taken my blood. Ho...	Syxx	24	2258	Feb 2, 2011 by greenqueen
	Pegasys vs. Pegintron (Preview) Hi, I'm a new member about to start treatment. I am wondering if anyone in treatment knows if there is any big difference in these two drugs other than one has the syringe and the other the pen type injector? The hep c book I have says one is basically a different consistency, but as far as the actual treatm...	Hep Me	13	3871	Feb 1, 2011 by Samby
	Time goes by so slowly... (Preview) Well... It just aint been happening for me at the moment folks, which is damn frustrating! If you haven't already picked it up via twitter or facebook, I didn't get to have my biopsy but just a rather expensive and annoyingly frustrating kind of a week. As I said on my vid, I was due to go in on Tuesday - Fant...	rio	2	1277	Jan 30, 2011 by Killer Bee
	DWP and Benefits (Preview) Hi The Hepatitis C Trust had a meeting with DWP on Monday of this week, here is a brief update on how it went. There have been an increasing number of calls (and discussiosn on forums) from people having trouble accessing benefits when on treatment or highly symptomatic so today The Hepatitis C Trust...	parkness	8	2051	Jan 26, 2011 by greenqueen
	My Hepatitis C / Liver Transplant & Biopsy Video Diary (Preview) Hi folks, Just thought I'd post this before for I go back in to Jimmys' for a Liver Biopsy after my 1st year with my new Liver! (http://ianquill.blogspot.com/) Ian Quill : My World, A blog for me and people like me, beating HepC My Hepatitis C / Liver Transplant & Biopsy Video Diary http://youtu.be...	rio	1	1027	Jan 26, 2011 by Minerva
	How accurate are the blood tests?? (Preview) Ive had Hep C symptoms for 3 years,been tested 3 times(neg) and waiting for results of another.Can anyone tell me how accurate the basic blood test for it is?	Keith Thompson	11	1761	Jan 21, 2011 by Minerva
	week 47 (Preview) Hi everybody that shot was full of air bubbles i couldnt get out ..oh well tried not to waste any.. one to go .... yep James it is what it is ...hope you are doing ok you sound like a real doer, always positive ... you are almost there, got any plans for the big day ? Jill i hope those sleeping tabs are working f...	bethland	9	1380	Jan 14, 2011 by DGiga
	Nervous (Preview) Hi all, I'm having my antibodies checked again on Monday morning and I just wanted to ask for some prayers. My RNA test came back negative so they're trying to rule out a possible false positive. I won't get the results until Monday the 17th and I think I might be a nervous wreck until then. Thanks! XO Jill...	Jillie1979	19	1657	Jan 14, 2011 by Jillie1979
	Someday soon (Preview) Several days ago I attended the "hep c' class, my HMO conducts. I'm glad I went, I already knew most of what was presented, but I wanted to "go with the program" and not be seen as a 'rebel'. The PA ordered a pile of labs, and said that I'd be scheduled an appointment "soon", t...	hrsetrdr	15	1857	Jan 13, 2011 by greenqueen
	College, work, pre-tx (Preview) hello everyone,My name is Alex, i've had hep c for about 10 years. never really thought of starting tx, but recetly started to consider tx because of increased fatique, weakness, feeling "cloudiness", inability to concentrate. just a year ago my vl was 1 mil, now it jumped to 6 mil. tomoro...	AlexNY	2	926	Jan 13, 2011 by ty
	Spontaneous clearance! (Preview) I wanted to update you all...I was in the process of getting started on treatment when I had a real bad acute attack, at about 9 weeks post infection. Nausea, vomiting, slight jaundice, yada yada yada. My ALT went to 1900 and my AST went to 1300, yowzers!!! So my doc said to hold off cause this could be a si...	sunny77	15	1897	Jan 8, 2011 by Jillie1979
	Is this a risk for HEP C (Preview) Hello all, Please answer this question as I have been worried and have been told a few different things on different forums. My question is in regards to contracting Hep C from the following exposure. I was at the gas station pumping gas after pumping I used hand sanitizer on my hands (As I always do) and...	Bobbygrinns524	1	1948	Jan 6, 2011 by greenqueen
	Pegintron Side Effects (Preview) Hi Everyone. I'm new here. I completed my pegintron treatment three years ago. I couldn't continue after 2.5 months of the regimen because my thyroid function was destroyed. I no longer have the Hep C. But I have no thyroid and huge psoriasis plaques have developed. I'm a bit pissed because no one seem...	JPD53	8	1725	Jan 3, 2011 by JPD53
	This Year, Resolutions AND Revelations (Hepatitis C / Liver Transplant (Hep C) HCV Blog) (Preview) Wow! Ya know, one of the best things about blogging (for me) is that it's a bit like keeping a diary! As with a diary, when you need a little inspiration, you can look back over some of your old stuff and very often you can sometimes amaze yourself. And that has just happened to me. Like many people, a new yea...	rio	0	1188	Jan 3, 2011 by rio
	My Dog Has Hepatitis (Preview) I took old Jackson my 12 year old yellow lab to the Vet today. His liver is inflammed and she told me he has Hep via ultra sound. As we all know dogs don't get HCV. She said it was probably age related. Anyway I'm sure you can relate to the look on my face when she told me.	James10500	4	1649	Dec 31, 2010 by Jillie1979
	Get A Job – Get A Life! (Hepatitis C / Liver Transplant (Hep C) HCV Blog) (Preview) Hi Folks, For what seems like forever, I have been saying Once Im better, Ill be able to! What? Get back to normal? Carry on like nothing ever happened? Put it all behind me? Well, the first two of those (get back to normal & carry on like nothing ever happened!!!) will never happen. Its not that Ive le...	rio	0	1873	Dec 30, 2010 by rio
	One year on, A Strange New World... (Preview) One year on, A Strange New World... (Hepatitis C / Liver Transplant (Hep C) HCV Blog) Monday, 27 December 2010 On this run up to the New Year and with Christmas just behind us, as with many people, it has prompted me to sit back and take stock of the year and to cast my mind back over the highs' and lows' of 201...	rio	3	3022	Dec 29, 2010 by James10500
	week 45 (Preview) Hi Everybody i have been pretty quiet, just getting along the best i can. I spent christmas in Scarborough, house sitting my daughters apartment only minutes from the beach ...yum swimming... Great news ... i went to the hospital pharmacy just before christmas and as it turns out this is my last box as...	bethland	3	1233	Dec 28, 2010 by ty
	Murariji's Poem (Preview) Celebrating all Those Who Reach SVR Somehow it came, we dont know quite when, Chances are from a stranger; perhaps from a friend. Often its hard to know who was the giver, Receiver, we know, is always the liver. Do the tests; get reports; slowly you learn Interferon and riba are cause for concern....	James10500	3	1219	Dec 27, 2010 by James10500
	Good News :-) (Preview) Went to clinic today, got to finally see the top guy, hooray!. Finally feel as though I am getting somewhere this afternoon, in a good mood now . I was told that I had genotype 2 but I don't, its 3a so basically the same, still only the 6 month treatment. Biopsy results were in, not too bad just band 1 scar...	Kirstin	11	1948	Dec 21, 2010 by Minerva
	need some one to talk to (Preview) Hi all got p***ed off being unable to find reply so un subscribed now calmed down so am resucribing. Finding things hard at moment .never mind move up and move on all the best eddie xx	espaeddie	7	1958	Dec 17, 2010 by Cinnamon Girl
	Pain in Liver Area... (Preview) I have known I was Hep C Positive for around two years... around the second month I found out I was sent to a specialist who checked my viral levels I guess and they were very low, almost undetectable. So I didn't have treatment, two years later for the past week I have had horrible pains in my liver area, I...	RainbowDustin	1	1218	Dec 14, 2010 by James10500
	Really Annoyed (Preview) I am so confused/annoyed/po'd right now. The last time I visited the liver clinic & spoke to one of the Dr's there he told me that my next appointment there, scheduled for the 16th Dec, would be my starting date for treatment. Just the biospy, which I had done, then a visit to a shrink (which the clin...	Kirstin	6	1422	Dec 14, 2010 by ty
	Work & possible discrimination (Preview) I have wrote before of discrimination and how I was afraid of it happening to me...well.. & I may be wrong but I believe it may be happening at work. I work for one of the top 5 star hotels here in outer Sydney, been there for quite a while now & enjoyed the status of one of the top (preferred/reliabl...	Kirstin	4	1478	Dec 13, 2010 by hrsetrdr
	Heartbreaking -Can anyone help with info /contacts? (Preview) Hi Everyone Not posted before as I'm new to this forum, but was advised that Laurie might be able to help? I've been asked whether I can provide any help with a heartbreaking situation. A young boy (7 years old) who acquired HCV as a consequence of vertical transmission from his mother. He is now being b...	Lesleypyramid	3	1350	Dec 6, 2010 by ty
	What to expect.. (Preview) After all of the visits to the liver clinic, doctors etc I still haven't really been told what to expect during the TX treatment. I know what I have to do, how long it's going to take etc etc but no-one has discussed the side-x's with me. I have asked & all I recieved is a booklet that really doesnt tell m...	Kirstin	12	2132	Dec 3, 2010 by James10500
	i am in the single digits (Preview) hi everybody i just had my wk 39 shot which makes me in the single digits ....9 to go... hooooray!!!!! hope you are all doin well .... love to all Elizabethxx	bethland	15	1482	Nov 28, 2010 by bethland
	yucky taste in mouth (Preview) I have not yet started treatment, but am suffering from symptoms of acute hep c infection. I got infected 9 weeks ago and have been having fevers, fatigue, high abdminal pain, and now my urine has turned orange. My AST and ALT were 10 times normal at last test. Anyway, on Saturday I got extremely fatig...	sunny77	3	2007	Nov 27, 2010 by sunny77
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