For the first 18 weeks, I was very adherent to the Victrelis protocol. Last week I slept through my alarm twice (for my 6am Vict. and Riba.). Fortunately my wife woke me, and reminded me to get up and take my meds. I will try 2 alarms, and possibly one on the dresser, as I evidently turn off the alarm and go ba...
Hi, Is anyone in the UK on the trials or know anything about the trials for psi7977? I am seeing my consultant tomorrow and I need to find out infoo as he seems to have very little himself! Thanks, Dragonfly xxx
So admist treatment and all the lovely side effects it entails (ie: Immune system suppressed/wbc's loooow etc) I noticed my arm hurt and kinda burned from my elbow up under the arm to my wrist. About a day or two later I had red bumps show up along the path of pain, a day or so after that; it spread and the ori...
Hi all, This has been discussed before. I would be grateful for any input. The reason for bringing this up again is to make sure my facts are correct. A number of HCV patients here are following my progress- none are cirrhotic, and are willing to wait for further trials. I have already been asked whether...
Very disappointing...Because my PAST medical chart showed mild depression when taking anti-virals I was not accepted into the study. Here is what was going on..wouldn't anyone be "mildly" depressed (all occurring within 13 MONTHS) ...
Hi all! I haven't been on this forum in aaaaaaages *slack much?* probably since April or so... A few things have happened since then, work, completing a Tafe Cert III in Tourism, Jury duty, wisdom tooth removal to name a few! As far as tx goes I am finishing it up in 4 weeks I got tested last...
Can't believe one week of incivek left! I called to reorder thd interferon and RIBA and the pharmacy rep tells me that I have 1 more order of incivek. I almost had a heart attack, of course it was a mistake.
I usually request my medication to be left by the door.
Rep: "Are you sure you dont need some...
Hey guys, I was always wondering what the incivek rash looks like and the degree of the rash that it ranges from mild to severe. Can someone post some photos?
David is on week 9 of interf/riba, week 3 of victrelis. He is really down for the count. He has zero energy, no appetite, sore mouth, gagging, lost 15 lbs and hasn't left the couch for 3 weeks. He seemed to do not bad before the victrelis but now its almost scary how sick he is. Is this par for the course and do...
Vitamin B12 May Significantly Enhance Standard Hepatitis C Treatment Adding Vitamin B12 to hepatitis C virus treatments significantly improved the body's ability to keep the virus at bay, according to a new study. The new study, published online in the journal Gut, found that the effects of B12 we...
Milk Thistle, Taken by Many People for Liver Disease, Ineffective as Treatment for Hepatitis C, Study Suggests ScienceDaily (July 17, 2012) Silymarin or "milk thistle," a popular herbal dietary supplement that many people take for liver ailments, works no better than placebo in pati...
I have 4 days of incivek left and the past 2 weeks have been a torture. I don't sleep at all. My morning routine of drugs include: Zyrtec, Benadryl and Allegra and Benadryl and hydroxyzine at night. I see that people say that post incivek they feel worse with continuing itching. Is there ever a relief???...
hello all i just wanted to write a note i was diagnosed with hep-c type 1a in sept. 2012 and came on here for support. and after 9 months waiting to start treament and all the bull that cvomes with waiting, i am glad to wrtie my doctor did all labs and found out i am absolutley Hep-C free. my system cleare...
Interferon rots teeth! This is now well known, but back in 1998 when I had my first course of Interferon, I lost 3 significant teeth. My dentist back then was astounded how quickly caries could spread. Pre-treatment dental checks and 3 monthly followups should be part of all instructions to patients...
Hi All, This is a radio play that took real people's experience of Hep C treatment from their blogs. The people concerned are played by actors.It's been on the forum for a long time, so I thought all the newbies would like to hear it. It's a very emotional experience Llama Lashes and Grumpy old Gits Love S...
Hello boys and girls... Nurse was happy to email me the results today! Thanks to everyone on this board, and of course my dad who helped me through it!
I ended treatment on Thursday. So I've had one full day without any medicine. Last night I didn't sleep for more then 6 minutes at a time waking up in a panic and/or dripping sweat. Dreams and reality were very mixed. I knew where I was but had very bad dreams that felt very very real and were connected with...
My doctor and I were interviewed a while back for a article in The Sun, our big local paper. This one has been different, because all sorts of people are stopping me in the halls or sending messages to say they read the article. It's scary. Anyway, wanted to share it with you. The photo clearly shows my thi...
Starting Week 15 with a call from the doc this morning to get my husband to the hospital for another transfusion and no it can't wait until tomorrow. Maybe having blood work done on Friday isn't such a great plan if there is a problem (like now) when they read it Monday morning. She put him bac...
After moaning about being old, cirrhotic, completely stuffed I was jolted back to earth by the Incivik rash photos. You poor buggers. Yes I'm stuffed, yes my skin is a bit dry ( fixed by some Nivea), yes my mouth is a bit dry ( fixed by tooth gel), yes I sometimes get a headache ( fixed by a panadeine) but t...
Ive been lurking on here for about a month now trying to gauge how treatment effects everyone. I received my first shipment of meds today and I'll take my first shot on Friday morning when I get home from work (just love working nights). I'm on night 6 of a set of 18, so I'm very nervous about working Friday...
I know I'm a supporter but thought my question is most likely seen here. Renee is having to take Neupogen weekly now. I helped her two nights ago...the first time I've helped with the Neupogen shot. It hurt seeing her in so much pain, and she still felt pretty bad yesterday. I'm just wondering if asi...
On July 6th 2009, we lost a great friend who was tireless in his work to promote Hep C awareness and support. He became the backbone of The Pea**** Project in West Yorksire, a support group for all those affected by Hep C. He also devoted much of his time to fundraising for the group and motivating others w...
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