I ended treatment on Thursday. So I've had one full day without any medicine. Last night I didn't sleep for more then 6 minutes at a time waking up in a panic and/or dripping sweat. Dreams and reality were very mixed. I knew where I was but had very bad dreams that felt very very real and were connected with...
My doctor and I were interviewed a while back for a article in The Sun, our big local paper. This one has been different, because all sorts of people are stopping me in the halls or sending messages to say they read the article. It's scary. Anyway, wanted to share it with you. The photo clearly shows my thi...
Starting Week 15 with a call from the doc this morning to get my husband to the hospital for another transfusion and no it can't wait until tomorrow. Maybe having blood work done on Friday isn't such a great plan if there is a problem (like now) when they read it Monday morning. She put him bac...
After moaning about being old, cirrhotic, completely stuffed I was jolted back to earth by the Incivik rash photos. You poor buggers. Yes I'm stuffed, yes my skin is a bit dry ( fixed by some Nivea), yes my mouth is a bit dry ( fixed by tooth gel), yes I sometimes get a headache ( fixed by a panadeine) but t...
Ive been lurking on here for about a month now trying to gauge how treatment effects everyone. I received my first shipment of meds today and I'll take my first shot on Friday morning when I get home from work (just love working nights). I'm on night 6 of a set of 18, so I'm very nervous about working Friday...
I know I'm a supporter but thought my question is most likely seen here. Renee is having to take Neupogen weekly now. I helped her two nights ago...the first time I've helped with the Neupogen shot. It hurt seeing her in so much pain, and she still felt pretty bad yesterday. I'm just wondering if asi...
On July 6th 2009, we lost a great friend who was tireless in his work to promote Hep C awareness and support. He became the backbone of The Pea**** Project in West Yorksire, a support group for all those affected by Hep C. He also devoted much of his time to fundraising for the group and motivating others w...
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got my call today from my doc to the 4 weeks results with triple therapy..she said there are 31 copys of the virus found!! so not UND !! i asked her how long should i do tx,she said she dont know because 31 copys are very low number but its still not UND,she told me we will wait for week 12 for more conclusions a...
I did run a search and tried not to bother with another question, but the responses seemed contradictory. My husband just developed the bad rash in the past week and nothing is helping with the itching. Is the rash from the riba or the incivek or both? He had been off of riba for 2 weeks and just started...
About six years ago I began getting some nasty wounds on my forearms, from the slightest bumps or scraps. I didn't know what to think, except that I had started a [mild] blood pressure med called Hydrochlorothiazide which does list "unusual bleeding or bruising" as a possible side aff...
have been in touch with a nurse educator from Vertex and he let me know about this study. More research needs to be done on post treatment side effects/new illnesses but I am glad we have some sort of guideline. Let's push for a bigger study to be done here. Encourage your doc, pharmacy, and write the d...
I have been in touch with a nurse educator from Vertex and he let me know about this study. More research needs to be done on post treatment side effects/new illnesses but I am glad we have some sort of guideline. Let's push for a bigger study to be done here. Encourage your doc, pharmacy, and write the...
So 4 more shots and I'm done. I've been UND since week 2 so I think I've got this licked. I'm SOOO happy to be on the down hill slide. Now if we would get some rain and the heat would abate life would be just ducky.
Some good news for people in the US"Under the Obama Administration's health reform law, insurers would not be able to reject adults with Hepatitis C or another preexisting condition starting in 2014. Advocates of the ACA and those with the goal of reducing the burden Hepatitis C places on our societ...
My wife was just told by her doc that she tested pos for hcv but she is does not fall in any high risk category at all. I had her call the doc back and the the S/CO value and it was 1.4. From my reading, a value of 3.8+ would indicate a 95%+ confidence rating, but a 1.4 is just 'barely' positive IMHO, consideri...
Hello all
My wife had an affair with a guy who probably has HepC. His wife is a serial cheater and we know is a cocaine and pot user at a minimum. My soon to be ex wife stated to me that she and this other guy had 'vigourous' sex for several hours each night over the course of about 10 days and used condoms.
W...
Anyone experiences swelling in the hands and stiffness? Its hard to make a fist in the morning, feels like I'm wearing gloves. I am sure it's from drinking lots of water, isn't that what I'm supposed to do?? Without enough water I itch, with water I swell, isn't it always something with incivek??
I just did my last shot and I posted a long, heart felt letter to you all, thanking you for your support, friendship, understanding, and advice. then I went to add a photo and, poof! It was gone. Not sure why, but everytime I try to upload a pic, it just shows the timer forever and never uploads! Anyway, I s...
Has anyone had their skin peel during tx? My husband's hands have been peeling for the past week or 10 days. Backs of the hands, palms, fingers are all peeling. It's very thick, dry skin peeling in large patches. And it's peeling over and over -- not like sunburn where it peels and then heals. We're...
Hi everyone. I just started treatment this week. I was hoping I would feel OK and so far so good. I was wondering if this is the norm or will I feel worse over time? I tried doing this a couple of months ago, but upon receiving the first injection, i had a severe inject site reaction, was sooooo sick that...
My insurance offered both Victrelis and Incivek. I made my choice before I discovered the forum and was on my way to becoming dangerously semi-knowledgable. I chose Incicvek simply because the trials showed a slightly higher success rate. I learned later that that numerical advantage was stat...
this post is a very personal one - Greg and I have found it so helpful to read other people sharing of their experiences - recognizing things others say as relevant to us - so we am going to share this one Greg is a cheerful happy person who whistles and hums through his days We had a difficult day on Tuesday...
My name is Trudy and my husband David started Ribavirin and Pegetron 6 wks ago and Victrelis 1 week ago. He contracted Hep C in 1982 from a transfusion. He was diagnosed in 1992. He was diagnosed with a malignant tumor on his liver in October 2007 and he received a living donor transplant in February 2008...
i'm unsure of how to tell new people i meet i have this virus. i feel like if i tell somebody right away they will run away, and it would be wrong of me to wait or not tell somebody. how do you handle this?
"OWWW" Question, how big is the Interferon needle? Is it small and thin like a diabetic insulin needle or is it a few inches long and as big around as a toothpick like the needle they use for flu shots? I was also thinking that since the shot is once a week, I wonder if it's possible to arrange...
The 12 wk test, which is really 13 wks, came back UND in spite of being off of riba for a week and on half dose for a couple of weeks and stopping incivek in week 11! <of course the cynic in me wonders if it really is or if, after the 2 weeks of messed up tests, Mayo Clinic just decided to make him UND>
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She put him bac...