Got my first bloodwork after four weeks. The nurse made a mistake and ordered a genotype which I already had done instead of the viral load. Doc said well I know the virus is still there otherwise the genotype would not have shown up. Most puzzling is my enzymes didnt go down. I went back and had another bl...
Welcome to The Family here! We are glad you are here. Use this thread to tell us a bit about yourself. Not the personal stuff mind you, we would not be much help there. You are in a battle that you do not need to walk alone in. We are here for you! JimmyK
Howdy, ho. Just checking in. I'm in my third week of Epclusa/Riba. Started treatment 2/10/2017 with reduced dose of Riba at 600 mg/day and yesterday upped it one pill to 800 mg/day. My Monday labs: Pretreatment: 2/7/2017 Total Bili: .7 AST: 133 ALT: 162 Alk Phos: 178 Platelets: 108 Posttreatment:...
It's my pleasure to announce our new Moderator. Long time member, JimmyK, has accepted my request to help us on the Admin team. I appreciate his willingness to continue providing the support and helpful information he's known to provide. Please join me in welcoming him aboard! Wave, Jimmy! :belo...
As the topic of these tests (as well as "fibroscans") keeps resurfacing, I thought I would just share this, I pulled it up as I needed to review them all (again), as it is impossible for someone like me to retain this kind of stuff in my head for very long (or at all!). Copied from hepcbc.FibroTest (F...
Epclusa APPROVED! I'm starting therapy tomorrow Whew..it's been a bit of a trek to get to this point....requesting approval for S/D which was approved then the game changed once Epclusa became available. With all the paperwork, lost paper work at the insurance company and simply sitting and wai...
Greetings, It is my hopes that the following information will encourage folks to seek treatment. Fact is, it works. Yesterday Carol and I had a follow up visit with Dr Sussman. We were both scheduled for tests to be performed. Mine of course have yet to be drawn as doing so is somewhat of an adventure. Th...
Just feeling very alone. Went to get a blood test in January for Insurance & bam...seems I'm on my deathbed. Haven't smoked for 20 days now & saw a specialist 3 days ago & haven't drank since then. Future seeming bleak. Sorry to be a downer - hope everyone gets thru' this ok.
Hello I am new here. I have hep.c 2b fo about 40 years I am 55 years old. My liver is normal the cyberscan could not dedacte any liverdamage. Myliverparameters are gpt i 38 ggt 29 and got 25. I do not have the result of the last viral load but its been about 2 millions. I have been on epclusa for three days. Y...
Hello my name is christina. I have been on epclusa for 6 weeks and I am having very bad anxiety and depression and insomnia. I want to make it through this but I am at my breaking point did anyone else experience any bad side effects like mine.
Is anyone else dealing with this kind of thing? I've told very few people that I have Hep C: my husband, my children, my sister, and my ex-husband's wife (perhaps surprisingly, we are friends and I think she is a wonderful person). More recently, I've sent private messages in FaceBook to 4 people who ar...
This is an article Cheddy brought to my attention. I recommend it. It tells the story of a Soldier that acquired HCV as a result of battlefield injuries while serving in Vietnam. RIP Warrior.... Vietnam Memorial
Not a fun thing to experience or share, but I was wondering if any others out there have similar experiences? My bowels have always been on the loose side, but manageable with psyllium to slow things down. It has been just a nuisance going on for decades, but cleared up to almost constipation for a coupl...
I just got the news. What I know so far is wife tested POS for exposure, but no infection, so I got tested and Bingo, POS for "Chronic Hep C". My AST, ALT #'s are low, around 17 -ish but have been as high as 27 in previous yearly blood work. I don't know genotype, viral load #s yet, but will see my gastro, a docto...
Had the Fibroscan and an ultrasound on Tuesday. Doc called just a bit ago. Said the Fibroscan said I was scarred, the ultrasound said the liver was smooth. Ultrasound found a 2cm mass on the right lobe, so now I'm going to be scheduled for a CT next week. Doc said he did not know what the mass is and cou...
Greetings, we are glad you are here. This morning I felt compelled to write this. I have been reading and noticed a few very old threads, some better than 10 years old have have been brought to the top via recent responses to them. Generally this happens when a new person seeking information uses certai...
Ok so I started Harvoni about a month ago. I had one month bloodwork last week. I have not talked to my nurse but I had a voicemail today that said "it is working, you are less than 15, keep taking them." I got off work too late to call back but I am thrilled that it is working but what does less than 15 usually me...
Does anyone else (who is not currently on Tx) fret over everything they put in or on their body? I've become obsessive. Some of this comes from listening to public radio where they talk about how everything is killing us and the government dosen't care, etc. I've trained myself to pay attention to all o...
Aloha, My name is Maddy and I am new here. I've been diagnosed with HepC in 2003 and have only been doing "natural" remedies, such as tinctures. (Edited) (dandelion, milk thistle, etc.) I've been watching to see what works and what doesn't. I'm looking to get started with Harvoni, but have some questi...
I'll update his progress if anyone is interested. The cost was $75,000. Medicare paid, as well as his secondary policy. The co-pay was $585, but a Foundation here in Ohio paid it. Interestingly, his viral load recently dropped from 4.7 million to 2.2 million, with normal liver enzymes. ALT at on...
I treated with Sovaldi Olysio succesfully and have had SVR for about 3 years. Last month I developed Bells Palsy and was given a course of Prednisone tapering from 60mg to 5mg over a period of 10 days. My doctors OK'd this, but now I'm wondering if there's any research on Prednisone and Hep C relapse ...
Diagnosed 1a in 2004, did interferon and ribavirin thru 2005, it was hell. Did not clear the virus. Started out at 5M, ended up at 100K. Figured I would not go thru that treatment again, so I hoped technology would find a better way and when it did, I'd try to clear this thing again when I was ready. New...
Thought I'd update you all. First want to thank everyone for their knowledge, experiences, and support for one another. While I don't post often, I continually glean much from you all. As of last night, finished 24 weeks of "unconventional ?" treatment. UND by 6wks & 14wks. After 1 or 2 wks, I incr...
Hi - I'm 64 in great health except for being diagnosed with Hep C when liver enzymes were elevated in a blood test. Figured I had it, been over seas, worked as a plumber in a hospital 35 years ago, the right age group...so who knows how long I've been infected. My issue is I feel fine, active, no real health...
I came across this report and found it interesting. Is fairly recent and discusses current treatment recommendations for all genotypes. I thought you might find it informative as well.TigINITIAL TREATMENT OF HCV INFECTION IN PATIENTS STARTING TREATMENTUpdated 09/16
Hello Friends, I'm 37 years old and was diagnosed 6 years ago. But really don't know much about it. I also have lupus. Now I say that to say, women, when you are on your menstrual cycle, do you get extra extra tired?? -- Edited by Molo on Thursday 13th of April 2017 12:19:10 PM
So this is it, I was randomized to the 12 week arm of sof/vel and took my first dragon bomb at 12 noon today. I'll update my most recent bloods in my sig later, but my fibrosure test done 2 weeks ago was a .29 or F1, and VL was 509,000. I got caught up in the moment and forgot to ask my lft results, but I go back next...
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