Hello everyone, I've visited this site everyday since starting Harvoni treatment 3wks ago today. It's great to know that I'm not alone in this battle. The info here is great. Tks all.
I feel very lost and frightened. I was diagnosed with Hep C in 1994 but I was advised not to take Interferon because of side effects. I was supporting four children and couldn't afford not to work. The virus has been decimating my liver, particularly for the last two years. my specialist had been hoping...
I haven't posted in here for awhile, frankly I was disappointed in the system after getting rx'd sof/riba 24 wks and after fighting with ins for 8 months even with support path couldn't get the meds. But 10 days ago I got a call from University of Penn asking if I was interested in a all gilliad phase 3 tria...
Hi All, just an update, I am now 4 weeks post 12 weeks Harvoni & Riba. I was spared any post tx sides, same as during. Really happy all went well. Saw my Hep doc on Dec 31, he wants to do the next VL 12 weeks past, for probably good reasons I keep trying to guess (money? psychology, because if I am detected...
Finally!!! got my lab results. Had to call as usual. 12 week EOT "HCV NOT DETECTED"!!!!I'm still in shock. I was so nervous to call and felt like the news would be bad as I have felt lousy since eot and was experiencing liver area pain for a few weeks , this past week I had no pain though.N...
Hi everyone.. I need to be away from the forum for a while and so Tig (Tig56) will be standing in as acting administrator for me. As most of you know, he`s very capable and knowledgeable and will do an excellent job of steering the ship. I`ll be checking in from time to time anyway, and will be back in due co...
Hello Everyone. I completed my 12 weeks of Sovaldi and Ribo about 3 weeks ago. Yes, I am feeling a little better every few days, but I am still far from my pre-treatment energy. I am needing about 10 hours of sleep every night. After I try a 4-5 mile hike, I need 11-12 hours of sleep for 1-2 nights afterwards...
Angelo and I want to wish all of you a very HAPPY AND HEALTHY NEW YEAR! 2015 has been a crazy year for many, but also a good one in so many ways. Love, Mena & Angelo
Hi - I am wondering how well the immune system works post treatment. Has anyone post treatment noticed if they get any less other other infections? I have an autoimmune problem (lichen planus) - my specialist tells me it flares up when I have other infections (e.g. a cold or sinus infection) as my immun...
I am so lost on my situation. Felt as if something was wrong, around 2000s computer and internet access became more available and by mid 2000s search engines of my symptoms lead me to Self-diagnosis of HepC. General Physician conformed this in 2004 through antibody blood testing. Started with a G...
I am so lost on my situation. Felt as if something was wrong, around 2000s computer and internet access became more available and by mid 2000s search engines of my symptoms lead me to Self-diagnosis of HepC. General Physician conformed this in 2004 through antibody blood testing. Started with a G...
Hi could someone please tell me if Harvoni has any effect on RBC? Just got my two week blood work results back with AST 16 and ALT 14 but RBC dropped a little to 4.19 (4.22-6.81) is this normal for Harvoni? Thanks.
65 years old, teacher, probably infected in a 1976 blood transfusion. Stage 3 Fibrosis. 1b Genotype. Joint pain and fatigue primary symptoms prior to treatment. Still working as a Math teacher. Have scaled back on non-work activity over past few years as fatigue worsened. I'm eating well, drinkin...
When I was on treatment and before, I was always looking for posts from people who had finished and how they were going, especially positive news. I just want to post some of my observations so maybe it can help other people on treatment or considering it. I was on Riba/Solvaldi for 6 months and nearly 9...
Well it seems there are a few of us out there that are done with harvoni and experiencing some very real side effects. Thought if we compared them, at least we would know we aren't alone. I completed my treatment 10 days ago. I had pains in hands and feet throughout, and they are still there. I seem to be ti...
My father in law was on harvoni. I really don't know much about it other than its a cure and its crazy expensive. He cashed in about everything he had to buy it. Unfortunately he was killed in a car accident a couple months ago. My wife and I recently came across his harvoni. He had several bottles. Two wer...
I think we need a feed for side effects alone for those of us on treatment. This will help us all know that we are not crazy and that these side effects are shared by others. It's such a new and powerful drug, and the phrase "too good to be true" keeps popping up in my thoughts. Keeping track will h...
Hi all, I haven't been here to visit in a while so I thought I'd say hello and wish everyone a merry Christmas! I work for Amazon so I've been a busy little elf since Thanksgiving. Found out that our son and his wife will be are having our first grandson in June so I'm obviously delighted about that. They'll...
Hi All, I hope everyone pre, on and post tx is doing well. My pcp wanted to do full labs went on Saturday so far got some back alt and ast at 29 my platlet 247 haven't received load count yet. How does this look thanks for your replies. I still log in about every other day to see whats going on. A
Hello to all. I'm glad to find this group! When I was diagnosed last year, I ran into some difficulties with Michigan Medicaid refusing to cover the medications. I had appealed but was denied. Then I changed to another HMO with the same results. Some months later, I got a notice stating I was no longe...
Good Tidings, Everyone! I haven't been around for a bit, but didn't want to let today go by without wishing everyone a Merry Christmas, and saying Happy Birthday, Jesus! Paul and I are doing well. Paul has 9 days to go, and I'm just about 12 weeks post tx. We'll go for VL labs on January 4th. I'm...
After one week of Harvoni so far so good. Had minor headaches the first two or three days but after that all is well. Compared to the old treatments it makes you wonder if this is working. I get me first blood work next Monday but only the basic CBC and another set but no viral load. I did have a question can yo...
Jill (Cinnamon Girl) has published to link to 'How to evaluate a Clinical Trial'. This is great info. I sincerely hope that all who are on Trials achieve SVR.There is one point that should be considered. 'What happens if I don't achieve SVR?' This is especially of interest to those with significant li...
I meant to post this earlier but I've been super busy elsewhere all day. You had quite a journey trying to get that SVR report Tig and you certainly deserve a big party to celebrate your 2 yr Hep C free accomplishment. You are such a big part of what holds this forum together and I'm sure I'm not alone in wis...
Hi - I just finished 8 weeks of Harvoni TX. The Dr said the labs looked fine and my viral load was "barely detectable." I needed to come in 3 months for my next lab. Can anybody help me understand how the virus can be "barely detectable" and be gone? Would greatly appreciate your hel...
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