Hi all,
Just wanted to let you know how well both tom and I are doing. I went back to get another swallow study one month after surgery and doctors were thrilled my swallowing improved. I'm now at least on a soft diet like scrambled eggs, French toast, mashed potatoes, etc. still no loose fluids as I am as...
TIG One phone call and my Harvoni was approved! The Dr is waiting for the prescription to be in the pharmacy! Thank you thank you Thank You, I made the call to the insurance and was approved immediately because of the active status without any cause except Hep C. You said to call! I did, I was polite, I had t...
Hi everyone. I've had hepC for over 20 years and tried all form of treatments. Finished 6 months of sovaldi in November. After 4 weeks my results were un detectable. Just got my results of my test after 5 weeks of finishing treatment and the virus is BACK. Anyone has experience this? I am totally frustr...
Hello Everyone. I wanted to share with you my very exciting news that I just received. One month ago, I finished 3 months of treatment using Sovaldi and Ribo. My treatment was for HVC Genotype 2. It was like a dream to hear the word, "undetected" as I called in for my test results. From my readi...
Hello. I was diagnosed positive with hep c in 1998. I have not taken any medication. I still struggle with consuming alcohol, and am intent on stopping. And I have a positive outlook, and love my family very much. I have a new granddaughter, she is ten months old. It is important for me to take care of m...
Just seen my doctor - very happy to say that my liver stats for the first time in many a year are within normal range, and, viral load at 4 weeks post treatment is undetected! Viral load start of treatment HCV RNA 191810 IU/ml 4 weeks into treatment - undetected end of 24 weeks Viekira Pak plus Ribavirin - u...
Hi Rick and Miracle, I saw your post Rick regarding Geno 2 treatments and wanted to give that to you on a different thread. I don't want to change the topic on the Harvoni Train, so I will post it here. Here is some of the recent information on the subject. There is also an upcoming treatment from Gilead, st...
Just wanted to share the story of my hep c journey so that others may find encouragement & enough to keep trudging along through this journey:I contracted Hep C sometime in my younger, wilder years through either a piercing or tattoo. Like most people, I did not find out I had it until March 2014. H...
The end of my treatment coincided with the celebration of the New Year. I allowed myself a considerable amount of alcohol. Could this affect the outcome ? Do I understand correctly that if the virus at the end of treatment completely destroyed, it has no chance for recovery ? And that we monitor 12 week...
Firstly this site has become such a crutch for me. Thank you to everyone who contributes. There is always something here that makes me feel less alone. Moderators must give up so much of their free time to help people going through this journey. i have just received blood tests for Four week marker. ALt...
HelloI intend tobuygeneric by a person whobrought from Moroccoand wants to knowif somebody have alreadytested this generic.the person isselling the3 boxes for 6000 £thank you forreply
I know I haven't been on here an a little while. Just was frustrated about how things were moving forward. However, I finally got my Fibroscan. The radiologists said they can't tell me but I did see the result of 9.7 Kpa. Now, I tried to look up conversion charts. From what I found, If you have over 1...
Hi all,I haven't done a technical post for a while, and for some this may be of interest. I have been fascinated by Sovaldi (or PSI-7977, then GS-7977) for the last 2 years . Initial claims about it's action (subsequently often repeated by Gilead Sciences) made me question why it could not be used as mon...
Long time since triple therapy, life is much better still getting strength back daily but then I will be 65 not the 18 year old mind . hope all are doing well and happy new year to all
Hi All, Just wanted to share my lab results...SVR12!!! Couldn't think of a better way to start the New Year! Thanks to everyone who carried my sorry butt through this. I am truly grateful for the support and encouragement I've gotten from each and every one of you. Gonna go share a happy dance with...
Hello, I hope the New Year is being good to all of you! I was wondering if after the Harvoni treatment, anyone has noticed any decrease in hearing and or vision. Thanks. Mena
Hello Has anyone taken the 12 week course of Viekira Pak? I'm on week 10.....2 to go!!!! My side effects have included depression , disturbed sleep patterns, irritability and anaemia (due to the Ribavirin I take with the other drugs in the treatment). My question is this; does anyone know about long t...
Hello Everyone, I have a question regarding labs at different clinics.At the Cancer Treatment Center my liver enzymes were slightly elevated using the CBC panel below.However, when I had the same labs done at Emory my enzymes went down in numbers but still showed slightly elevated due to their C...
Happy New Year to everyone and their families. Let me start by saying I have been reading this forum since the summer of 2015 when I found it and it's now my turn to chime in and finally be active. It is a wonderful place to learn and read about others that are in the same place and have been through so much. T...
Hello to all the people who took the time to answer my post. Yes the Ribavirin really knocks you about emotionally and the weakness from anaemia is difficult...all worth it to be hep C free though!!! May we all have a HC free 2016. I will learn to navigate this site ASAP! All the best, Pixel
Just started my 3rd week of 12. The sides compared to failed treatments is a cakewalk. I have been taking Tramadol in smallest dosage for a considerable time. I thought after my body would get use to the harvoni, my usage would slow down. It hasn't. All Drs are aware. Just hoping someone has experience o...
The year prior to tx (Harvoni 24 weeks) I experienced a significant increase of fatigue. Within a few days of SOT it pretty much all went away. I did have increased fatigue about 8 weeks into tx..not as bad as prior to tx for about 6 weeks which I thought I had resolved with an increase of hydration. During...
Hello everyone, I've visited this site everyday since starting Harvoni treatment 3wks ago today. It's great to know that I'm not alone in this battle. The info here is great. Tks all.
I feel very lost and frightened. I was diagnosed with Hep C in 1994 but I was advised not to take Interferon because of side effects. I was supporting four children and couldn't afford not to work. The virus has been decimating my liver, particularly for the last two years. my specialist had been hoping...
I haven't posted in here for awhile, frankly I was disappointed in the system after getting rx'd sof/riba 24 wks and after fighting with ins for 8 months even with support path couldn't get the meds. But 10 days ago I got a call from University of Penn asking if I was interested in a all gilliad phase 3 tria...
Hi All, just an update, I am now 4 weeks post 12 weeks Harvoni & Riba. I was spared any post tx sides, same as during. Really happy all went well. Saw my Hep doc on Dec 31, he wants to do the next VL 12 weeks past, for probably good reasons I keep trying to guess (money? psychology, because if I am detected...
Finally!!! got my lab results. Had to call as usual. 12 week EOT "HCV NOT DETECTED"!!!!I'm still in shock. I was so nervous to call and felt like the news would be bad as I have felt lousy since eot and was experiencing liver area pain for a few weeks , this past week I had no pain though.N...
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