Jill (Cinnamon Girl) has published to link to 'How to evaluate a Clinical Trial'. This is great info. I sincerely hope that all who are on Trials achieve SVR.There is one point that should be considered. 'What happens if I don't achieve SVR?' This is especially of interest to those with significant li...
I meant to post this earlier but I've been super busy elsewhere all day. You had quite a journey trying to get that SVR report Tig and you certainly deserve a big party to celebrate your 2 yr Hep C free accomplishment. You are such a big part of what holds this forum together and I'm sure I'm not alone in wis...
Hi - I just finished 8 weeks of Harvoni TX. The Dr said the labs looked fine and my viral load was "barely detectable." I needed to come in 3 months for my next lab. Can anybody help me understand how the virus can be "barely detectable" and be gone? Would greatly appreciate your hel...
http://www.healio.com/hepatology/hepatitis-c/news/online/%7B5c0f28b9-dd4f-4b31-8ceb-f92e3e944f89%7D/statin-use-may-reduce-risk-for-cirrhosis-in-patients-with-hcv-- Edited by Linuxter on M...
Nice to see awareness becoming more mainstream. Ok State Medicaid(s), The Ball's in your court ... you're holdin' up the show.http://www.huffingtonpost.com/ryan-clary/state-medicaid-restrictions-for-hepatitis-c-cures-are-creating-one-of-americas-worst-health-disparities...
Hi All, Looks like pre-treatment Viral Load varies a lot between people and doesn't appear to be a determining factor of SVR. My Doc did say that since I have a Viral Load of ~10 Million it qualifies me for 12 weeks treatment vs 8 weeks if lower. Does anyone know the reasoning behind the longer treatment f...
Finished a 24 week Harvoni course about 18 days ago. For any of you considering undergoing the Harvoni treatment, my experience matches the accounts of many others. I had minimal sides of note, though I did have occasional headache, fatigue, and tinnitus which may have resulted from the drugs. I tho...
Hi Friends! Just got my 24 weeks post lab results! My labs are all normal improved from 12 weeks. I am still undetected! I have been feeling a lot better. I have some lingering tummy stuff going on. I get some wicked heartburn. My acne has improved a lot! Any physical discomfort or joint stiffness is not...
Does anyone know if getting ultrasonic liposuction cavitation treatments to my stomach will be bad for me since i have hep c n will it effect my harmoni tx. Please respond to here or send me an email at kbulla2@aol.com. Thanks, Kelly Bonavena
I know some are having difficulty in getting approval for the new DAA HCV drugs via Medicaid. I think most of the problem lies at the State level not at the Fed level. Here's a "Communication" from Medicaid (the Feds) and I think there is little doubt that they intend for Medicaid patients to...
Hi All, Just diagnosed mid November. Apparently I've had HCV for over 40 years and didn't know it. (Guess that's actually fairly common). My PCP picked up on it when she did a blood test showing elevated ALT/ AST Next was a blood test to check for HCV ... that came back positive. Next HIV test ... fortunat...
Hi - when I started on Viekira Pak with Ribavirin in June (24 weeks) I was good for the first 3 weeks of treatment then side affects kicked in at the same time as I got a bronchial infection. I was very unwell for around 6 weeks until the bronchial infection cleared. Side effects were mostly nausea and I was...
Is anyone having pain in their liver area? I feel a lot of pressure at times. I have to wear loose clothing when pressure is bothering me. Feel nauseated often and lots of indigestion after eating....really bad if I eat sweets. Also, if I eat salty food my lips get chapped and burn. I have started cutting...
"And in the end, the love you take is equal to the love you make" 60 year old Geno type A1, F4 Cirrhotic, started 24 weeks on Harvoni 12-17-14 ,EOT-5 week = UND, 8-31-15 =UND , SVR-24BabyYES! Well then HAPPY ANNIVERSARY and yes I watch! VICTORY!!!!!
Hello. I created my account here for this question. Thank you all for creating this good community. I live in Japan so I have trouble communicating with my doctor using my Japanese. But I was able to land a 12 week Harvoni plan. Problem is: at 6 weeks, my viral load is 2.5 i don't know what that me...
Hope someone can help me with what the abbreviations used in posts mean. It seems that every country has different health systems, names for health professionals and ways of doing things - this makes some of the abbreviations people use in their posts even more confusing. I have figured tx means trea...
Not sure it will help anyone on Medicaid trying to get meds but there's some pretty strong language from CMS re. the restrictions states are putting on their Medicaid clients (i.e. Letter from the Feds to states saying you may be in violation of 1927 Social Security Act (Section ?) by placing these res...
hello, This is my very 1st post here. am from Egypt where Genotype 4 is dominant. Just about every family in Egypt is touched by hepatitis C. Egypts hepatitis C epidemic dates back decades when glass syringes used during a mass vaccination campaign were not properly sterilized between use. prevalen...
Just got the latest edition of hepcbc.ca . It has several very good articles in it. The article on drugs from India was excellent. So were a couple of others, but I can't remember what they were. It is a newsletter from Canada that generally has excellent info (not just about Canada). Check it out....
Hi All- I haven't posted in a while, but it is now 7 months since finishing treatment with Harvoni and I am still Hep-c free. I wanted to bring up the topic of Type 2 diabetes as it relates to hep-c. About 5 years ago I was diagnosed with sustained high blood glucose which is also called adult onset type 2 dia...
I received this bit of information in an email today and thought those of us that are experiencing memory issues and or brain fog, may like to review it. Even though this is an OpEd by Dr. Neel Jr., it may provide you with some food for thought. I find that I am either on some of these medications now or have b...
Hi All Well my 12 week post treatment bloodwork results came today and no virus detected!! The clinic doesnt want to see me until June. Cheers and thank you for a very well run and informative forum kathy
Hi - I finished Viekira Pak with Ribavirin 8 days ago after 24 weeks. The last 3 weeks on treatment were difficult, I had water retention, sleeping only 4 hrs a night, heart beating like having an endless panic attack, high blood pressure, totally hyped up, exhausted and generally miserable. A couple...
Greetings Y'all! For all of 2015, the Company I work for offered Express Scripts / Accredo. That is going away and being replaced by CVS / Caremark. So I get a letter today informing me that Viekira Pak, which I have taken "within the last few months" will not be covered and to see the "en...
I was offered Clinical trials for the treatment with Viekira no Ribavirin I am genotype 1b, F1, 1,5mln viral load, TT. PLEASE PLEASE because I do not know if I should wait for Harvoni. Maybe somebody here is on Abbvie train with no riba I am music composer, I am especailly interested in: 1. Can I have a bra...
Hi all first time post. Start Harvoni today for the 12 week haul. First diagnosed 1992 and tried the interferon 3 mg 3x a week non responder then was put in a trial 5 mg 3x a week plus 1200 mg of ribavirin non responder. I have had two biopsies one back in 1992 and the other 2006 minimal damage. After seeing co...
I apologize for the long rant - it contains no helpful information on dealing with treatment. First a history lesson: I love Christmas, I love decorating my tree with 15 years collection of beautiful glass ornaments, but most I love wrapping gifts. I even make my own bows and had folks (girls, anywa...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
