Hi all, This is a bit lengthy. I'll start with a brief summary for the newbies.Prologue:Almost certainly infected in Vietnam in 1969.Abnormal LFT's during 1970's led to liver biopsy in 1982= A0,F0.After diagnosis of HepC in 1990, biopsy in April 1990 showed A1,F1.After 2 attempts with Interferon...
I actually had to make the receptionist look for my results because the nurse hadn't called back and it's been a couple of days...but I'm too happy to be angry at the anxiety she caused me making me wait longer than I needed to. It seems my battle with the post tx fatigue is finally ending...I feel much bet...
Hello out there, I am new here and just got approved for Salvadi and ribravin, after a long wait. I am truly thankful that I got approved have never been on any treatment before and have had hepc for over 20 yrs. I am blessed to be in good health despite this. So when I heard about harvoni and the one pill a day...
European Commission Approves Daklinza (daclatasvir) for the Treatment of Genotype 1, 3 and 4 Chronic Hepatitis C Patients with HIV Coinfection, Advanced Cirrhosis and Post-liver Transplant Recurrence of HCVBristol-Myers Squibb has announced that the European Commission has approved Dakl...
I have Hepatitis C with genotype 1a and viral load of approx. 2,000,000 copies/mL, and I purchased on my own the generic medicine Twinvir - which has the same composition as the original Harvoni (Sofosbuvir 400 mg and Ledipasvir 90 mg). The cost of my treatment with Twinvir for 12 weeks (84 pills) was 3...
I have Hepatitis C with genotype 1a and viral load of approx. 2,000,000 copies/mL, and I purchased on my own the generic medicine Twinvir - which has the same composition as the original Harvoni (Sofosbuvir 400 mg and Ledipasvir 90 mg). The cost of my treatment with Twinvir for 12 weeks (84 pills) was 3...
Hello everyone, We went to Mt. Sinai on friday for a follow up MRI and blood work. The MRI showed NO HCC, and that everything was pretty stable. The blood results are however very puzzling to me. NO HCC, NO HepC, Comparing BLood work from 11/11/2015 to 1/22/16 AFP went down from 8 to 6.3 Platelets went...
I saw the Infectious Disease Doctor today and had a pretty good appointment. She ordered quite a bit of blood work for tomorrow, and went over some newer blood test results that came in. AST 191 ALT 246, Viral Load 1,976,000, Alpha Feto Protein was Negative for Liver Cirrhosis. The tests ordered toda...
Hello to anyone that has advice or an opinion. ( I know you are not Drs but I have no support) I have 20 days left of Harvoni alone but the symptoms are so bad I think I should quit. Extreme fatigue, my wrists and fingers are just about useless and I had zero symptoms before I started. Just got an earache 3 days...
I don't want to get too excited but if I'm not mistaking this suggests I have gone from F4 to F2? How accurate and reliable is this test? My meld score is now .651...it was 1.083 in 2014. -- Edited by Jaded on Friday 29th of January 2016 03:19:55 AM
Chia Seed Jam "If anything is a superfood, it's chia seeds. They're packed with omega-3 fatty acids, rich in fiber and protein, and most important for our jam-making purposes they turn any liquid into a thick gel."I haven't tried this yet but plan on making some blueberry jam for toast (ho...
Sprouts are easy to grow, even in Winter. Nutritious and tasty in as little as 5 days. I might have to give this a try. Here's an article about it. Dave
Hi all,RAV= Resistance Associated Variant. Also called mutations, treatment-induced variants or viral polymorphisms. When infected by HCV, we know there is a dominant viral structure called the 'Wild-Type', and it has a family of very similar viruses, with substitutions of an amino acid or two...
I am now in week 23 daklynza/sobusvir/ribavarine. I haven't posted here for a while, so tired lately. The initial energy burst of the first few months went away, replaced by increasing fatigue, insomnia and itching only soothed by - nothing. I have been prescribed sleeping pills but only use 1/...
Some good information from one of the most ardent HCV advocates you will meet. Thanks to Lucinda Porter and Hepmag.com. https://www.hepmag.com/blog/hepatitis-c-and-wait -- Edited by Tig56 on Monday 25th of January 2016 02:55:40 AM
hi fellow train riders, I have just finished week 6 of 12. So half way. Viral load at four weeks had dropped from 4 million to 115. alt 41 ast 58; before treatment alt 220 sat 409. So I am jiggling along on my train seat very happily. The diuretics for ascites have been halved again and doctor says that I wa...
Well Folks I braved up and took my first pill 3 days today. 1. St day I thought omg if I'm going to feel like this for 3 months I'll never make it. Didn't sleep till 5 am that first night which didn't help, next day has not been as bad. Pressure in head eased up have a bit of a headache which is to be expected....
I am a bit worried about the way I have been taking my Harvoni pills after reading about RAVS. I haven't missed any doses, I took my 1st pill in the evening around 5:30 PM(Nurse wanted me take the first pill it in front of here). I realized this time would not work for me so I took the 2nd pill at 9:00 AM the n...
Hi Team, I saw my Naturopath today - first time since before starting treatment. She said I looked the healthiest she has ever seen me! She also suggested I stay on the same supplement routine for another 6 weeks or so (which will be after my post tx final blood test) when, if virus undetected, we can revi...
I had all the test done which costs my insurance company a bundle. All test must be done within 90 days of submission. I have severe fibrosis, although I don't have the test scores yet. I am very close to cirrhosis, the doctor wants to start Harvoni immediately BUT my insurance will not give me the drugs f...
Hi everyone. Just curious to find out who uses supplements. I have been using milkthistle and a quality multi vitamin since being diagnosed in 2002. I had a biopsy done about 8 years ago which showed only stage 1 at the time. I contracted the disease back in the 70s so it has been progressing very slo...
Hi! Well, I've known that I carry this virus since 2001 but probably contracted it in the late 70's. I lived in denial for the first 5 years after I tested positive, still drinking on the weekends. Even so, I've tried to lead a healthy lifestyle and have experimented with a few supplement protocols ove...
i have had Hep C for 35 years from a tainted blood transfusion given after a Caesarian birth. Diagnosed in 1999. Refusing previous treatments for my liver sake which is and has bee a stage 4 cirrhosis for 5 years or more. I have the meds and am about to start on them. Needless to say I am scared to death. Me...
I take all meds with yogurt otherwise I can't swallow pills. I was wondering as pill is supposedly very bitter has anyone taken or drank Cranberry/Raspberry juice after taking pill and if so have you noticed a reaction? Upset stomache. Acid indigestion anything?
Just thought I'd put this out there, my trial location informed me today they have immediate openings for all geno 3's and anyone that has cirrhosis. Message me in you are anywhere near Philadelphia PA and still need treatmeant. You would need to go to all study visits about 9 over the course of 9 months...
Hi All, Just killing time and reporting in, I won't really know if I am actually getting meds for another month or two (I'm assuming that I will unless I'm informed otherwise somewhere down the road). In the mean time I've been making as many lifestyle changes as possible to increase my odds of ridding m...
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