Hello Everyone, I got a call from the doctor today that said I havent relapsed with hep c and the Harvoni worked. I stopped taking Harvoni Septmber 2015. However, I had an MRI liver scan yesterday and the doctor said it shows some scary and possibly cirrhosis. I found that strange since I have alway...
Thursday is our big day. Tom finds out if the ablation and radiation worked. I pray it did. He has been four months hep c free so I know the "dragon" is officially removed from him. We did hear from his doctor that many people are still having insurance problems getting the harvoni approv...
Hi passengers past and present, I am trying to get about more this week. i have been very down as well as putting on weight and itching, itching, itching. I have a light hive like rash all over my body. There are not really very many of them but they are really itchy. I have included my blood results which...
Hi everyone,
I have been very isolated in regards to this disease. I am in my late 30's, but I was diagnosed when I was 20 years old. I have carried SO much shame through my life because of this disease and it has affected my self esteem, my ability to seek relationships and it has also instilled a horribl...
Hi Everyone, I have not logged in for a bit - I got overwhelmed by life in general compounded by continuing struggles with recovering from treatment. I was tired a lot and feeling unwell - lucky I am starting to improve now. It's 10 weeks post tx. I got down for a bit until about a week or so ago it occurred to...
Hello Everyone, I have been off Harvoni since September 2015. I have been monitoring my labs for almost 6 months and notice that my all of my liver enzymes keeps on increasing. I had my last hep c test in January and it was undetectable. Can someone please provide insight on why liver enzymes would k...
I purchased Kale yesterday for the first time after learning how good it was for us and the liver as well. I had it in a salad with other assorted vegetables but I had seen a few recipes about Kale chips and thought I need to try this. Earlier today I did but was skeptical ... was being the operative word. The...
I'm not sure when I was exposed to HCV. Probably as a teenager (I'm 52 now). I've never shared needles, and as I understand it's quite hard to get from unprotected sex, I don't think I got it from that either (question mark though). I probably got it from surgery/contaminated needles in hospital during...
Hi all,Here is the Mid-February Newsletter.I like the article on cryglobulinaemia.Zepatier plus Sovaldi seems to be a great treatment for Geno 3's.http://hcvadvocate.org/news/NewsUpdates_pdf/Advocate_2016/advocate0216_mid.pdf
I've had this happen before but I tried to reply to Tig's post at the Sov/Riba Train and it just brought up my previous post as if I had tried to edit it (I didn't hit the edit button). Tried several times and still can't post there, still having the same results. In another incident, I noticed a new member (...
Hi! I am a recovering heroin addict, been clean 2 years and 2 months. Was diagnosed with hepc 2 years ago. I am a 25 year old female thats generally healthy so medicaid has denied medication. My first gastro doc hasn't helped me with anything, will be seeing someone else soon and I really hope they have so...
Hi. Tried private messaging to someone tonight (a long one I started yesterday and came back to finish today) - when I was ready to send it - it would not go - message at the bottom saying ... "Sparklit" unable - start a new message ...?, and/or ... try again in 2 minutes ... (or something like th...
I've been using Gatoraid Propel kiwi strawberry water flavoring in my bottled water. It's single serve packets. I just realized today that the packet says in small writing "water beverage mix with vitamins". Anyone know if these are safe to use with treatment? I've used these for a few ye...
and just as i get through posting events of the last three months ...the letter from my doc arrives and on the second v-load test (month and 1/2 after end of treatment) ...drum roll ... my viral load is STILL undetectable. feeling particularly blessed and wishing the same for everyone here!
We need a quick means to identify trash and take it out. A hot button designed to alert All Mods of an attack on our Forum. JimmyK -- Edited by JimmyK on Thursday 18th of February 2016 06:39:50 PM
I can't help but notice that we can edit but not delete a post. Am I missing something or is it meant to be this way? Just curious in the event we write something, post it and think, nah, I really did not want to say that Cheers
As a 44 year old male, I have always been blessed with good health. After about a year of overdrinking, I was getting "liver pains" last summer so I decided to stop drinking and to seek counseling. Part of the regime included a CBC and tests for a series of diseases including HEP C. As usual al...
hello all! sorry i haven't been in contact and participating as i should but... some of you know that last year i was exposed to rabies and went through a hell-treatment which in turn "kick started" the hep-c necessitating treatment (probably a good thing as i shoulda been taking care of it...
I would really appreciate some help/advice with these two questions: 1) Post treatment has anyone had any relief from the chronic ache in the upper right quadrant that Hep C sometimes causes? Or know of any research into this? 2) Does the post treatment ache in muscles and joints go away with time? Th...
Hello everyone! This is Candy Swift from XXXXXX very nice to be in this forum! (Link removed by forum moderator) -- Edited by Cinnamon Girl on Wednesday 17th of February 2016 12:27:04 PM
Hi,I have found out that I have Hep C and the viral load is pretty high (14 mil). I was wondering if anyone knew what makes the viral load increase. Why does the viral load not have a link to progression? Is there anyway to make it go down on your own (not in replace of treatment but to help)? I just don't under...
Does anyone know if the topical application of "essence" or "pure" oils, cut by 50% with a carrier oil like grape seed oil is recommended by treatment team doctors?
Hi Everyone,New treatment - 2nd. round: Sofosbuvir, Velpatasvir, GS-9857. 1 pill a day with food. I'm in the Deferred Treatment Substudy. This will be the one for all genotypes that will hit the market later this year or early next year I assume.Its been 10 days and no side effects whatsoever. Vieira...
Please note : This section is an area set up for individuals to discuss their views on the benefits of nutrition, complementary medicine and therapies to help with the symptoms of Hep C.It does not reflect the medical profession's definition of a cure for Hep C, merely complementary help with sympt...
My 24 week treatment with Daclynza/Ribavarine/Sobusvir ended on 29 January and today I met with my doctor to go over the latest lab results. HCV is undetectible and liver values all fall witin the normal range! I am overwhelmed with joy and so thankful that I got to be patient #1 in the Netherlands wi...
Cinnamon Girl wrote:I think that the topic of dealing with the changes in our lives that an improvement in health, energy and independence can would bring is well worth discussing, maybe on a separate thread. It`s certainly something I experienced after getting so much better after I cleared the v...
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