Today my Doctor sent me a text: 12 weeks post treatment blood test results - Virus Undetected SVR Also, I had a liver scan yesterday, the Surgeon said he could easily see the lesion that has attracted attention and he believes it will be a simple matter to ablate it. In around a month's time I will not only...
Hi everyone, Just to let you all know that I contacted our Sparklit tech support last night to report the problem we were having with the chatbox, and they have assured me that they are working to fix the software issue that was the cause of the problem. It seems to be working fine again now. Cheers, Jil...
Hi all,Had my bloods drawn yesterday. The email results just arrived.I must admit that I'm always a tad anxious, even though the risk of relapse is <1%.As I have my results recorded since 1988, I'm happy to say my ALT (23) and AST(18) are the lowest they have ever been. All is quiet on the liver front....
been 15months since eot.am svr.liver though hasn;st got bettet.stayed stable for a fair while due to getting rid of virusbut last few months has been going down hill.so everything going good when i go for 5 days to hospital for complete medical will be put on transplant list.i was f4 cirrhotic when i w...
I'm sure this has been addressed before...however I have trouble posting pics. Had a really great one for Veteran's day, but it was HUGE, so I took it out. I posted the same pic on a different forum and it come out in about a 3x5 size. What am I doing wrong here? Bb, Iris
Hi All, I don't say much about myself on the forum anymore, my time has come and gone for highlights. But still wanted to share with you that I had a full abdominal ultrasound today. Liver is perfect, and my previously enlarged spleen is back to normal, pancreas is in good shape too. No masses, no problem...
We have #3 in the Hep C market today. Merck has been FDA approved for Geno 1 and 4. And it is cheaper than Harvoni and Abb-Vie. Only $53,000. Gilead's stock has dropped at this hour by 3%.
Hi all,This may seem a bit off-topic but I think there is a link between HCV and fat metabolism.Firstly, a bit about cholesterol. It's a complex waxy substance, essential for many body functions including hormone production and cell wall health. Most is produced in the liver, but we get some from foo...
Hi Everyone, i am reluctant to post this as I feel like a fool. I went for what would have been my final day on a 12 week treatment regime at the hospital yesterday. As you know I put up quite a fight to have it extended for another 12 weeks. i saw a nice doctor, in a private consulting room, she did a physical t...
Hello, Can anyone help me interpret the attached liver scan results. This is where my doctor said its possible cirrhosis when I had mild fibrosis two year ago.
Hello everybody, Went to my Gastroenterologist and after consultation approved me for treatment beginning March 9th with Harvoni for 8 to 12 weeks:) I am so ready to start dragon slaying it ain't even funny. And I know you are all right there with me. I will keep you posted. Genotype 1 Mike
Hi Archie, I appreciate the offer but am unable to allow that on the forum for safety and legal reasons. Please try and seek an individual locally that can use this opportunity, there must be options that don't include international shipment of personal prescription medications. I'm closing this t...
Well, I had a "not detected" at SVR 4. I am now one week away from my SVR12 test. I am thinking positive thoughts and I am shinning up my happy dance shoes. It feels like the Ribavirin is now FINALLY out of my system and I am now feeling great. I will be sure to post results as soon as my SVR12 test r...
Found these kind of interestinghttps://clinicaltrials.gov/ct2/show/NCT02427204?term=hepatitis+c&cond=%22Hepatitis+C+Virus%22&lup_s=04%2F18%2F2015&lup_d=30
I've got a question to ask those of you that have finished Tx. As some of you know, I finished triple therapy with Victrelis on Dec 4th. I noticed a big increase in my already existent tinnitus when I began the Victrelis. I know many I've spoken to here, mentioned that when they added Victrelis to the mix...
hi everyone, compared to many of you, waiting for trials or wondering whether to import drugs, I know I am very lucky. The hospital okayed the 12 week extension and so hopefully, when I go for my 12 week checkup next Friday there will be a month's supplyof the three at the pharmacy. Now I'm down to 6 previ...
Okay... Well. I am 24 and I have had Hep C since I was born. My biological mother was a heavy drug user and told me when I was young that I may have Hep C because of a blood transfusion done when she gave birth to me. I knew it was bologna when I was a kid. I found out for a fact when I was 18. I have a two year old son (9-...
Hi all I have just been tested after 4 weeks EOT and virus still undetected as it was not detected 4 weeks after starting tx I hope it remains undetected at 12 and 24 weeks. The tx was 12 weeks generic sovaldi,peg inter,riba, had some side effects during tx insomnia, brain fog,short temper,ups and down...
Hi everyone - My last day of treatment was 1/17 and all was great for about a week. I felt fantastic!! One week after treatment I started getting daily headaches (during treatment I had a total of 4 headaches in 12 weeks). They were not too bad but they were there. I finally went to the Dr. and he said I p...
Hello Everyone, I am 49 and was diagnosed with Hep C Genotype 3a on 19th August 2015 Viral Load 1005000. Not sure how I got this last Tattoo 15 years ago. My Dr is now looking at treatment options available in Malaysia where I live. In the meantime I have switched to a high fruit mainly raw diet and I am takin...
I was diagnosed with Hep C back in 2002. I've had very few symptoms or problems along the way. Over the years I've had several blood tests which showed elevated liver levels and recently I had escalated viral loads. My PCP decided to treat it now before it got out of hand since 14 years was long enough and I...
Greetings Y'all, As I contemplate options and in preparation for discussing the same with my Doctor on 03/08, I know one of the options on the table is Harvoni x 24 weeks. I know that my Doctor if he agrees will want to add RBV. That due to the fact I take Omeprozol. What I am not sure of because I have never se...
Hello Everyone, I got a call from the doctor today that said I havent relapsed with hep c and the Harvoni worked. I stopped taking Harvoni Septmber 2015. However, I had an MRI liver scan yesterday and the doctor said it shows some scary and possibly cirrhosis. I found that strange since I have alway...
Thursday is our big day. Tom finds out if the ablation and radiation worked. I pray it did. He has been four months hep c free so I know the "dragon" is officially removed from him. We did hear from his doctor that many people are still having insurance problems getting the harvoni approv...
Hi passengers past and present, I am trying to get about more this week. i have been very down as well as putting on weight and itching, itching, itching. I have a light hive like rash all over my body. There are not really very many of them but they are really itchy. I have included my blood results which...
Hi everyone,
I have been very isolated in regards to this disease. I am in my late 30's, but I was diagnosed when I was 20 years old. I have carried SO much shame through my life because of this disease and it has affected my self esteem, my ability to seek relationships and it has also instilled a horribl...
Hi Everyone, I have not logged in for a bit - I got overwhelmed by life in general compounded by continuing struggles with recovering from treatment. I was tired a lot and feeling unwell - lucky I am starting to improve now. It's 10 weeks post tx. I got down for a bit until about a week or so ago it occurred to...
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