Hey old friends and people I haven't met before... It's been just about a year since I've logged in here but I think of you folks often! I hope the world has been treating you all well and I'm super excited to see that the signature line on the bottom of some people's posts have three wonderful letters a...
Hi folks, Welp I offically have an appt. With a hepatologist (spell?) I had all but given up, my primary care person referred me to this place but I called and left messages 5 different times in about 3 or 4 different weeks at different times of the day ...always the answer machine. So I had complained t...
It is sad to note that many of you are denied access to life saving medicines from your insurance that does not cover it. I am a Patient Outreach Specialist for Soul of Healing, if you are a Hep c patient please email us and we will follow up with you for more information please visit XXXXXXXXX-- Edited by s...
Hello everyone. I have had HCV for about 25 years. I am an RN and contracted HCV through a blood-splash from an infected patient.It has been a long road. I am a genotype1b, with cirrhosis. I treated first with interferon/Riba, Next was Harvoni, and last with Viekira/Riba. I am going on 7 months, post t...
After being rejected by my insurance 3 times but not giving up I was finally approved. I've been on it for about a week. 1st time took it earlier in the day and got really tired and had a headache for about an hour or two so i started taking it just before bed and did not get the headaches or fatigue as I heard lo...
Hi All, have a look at the abstract below, just came out. The kind of paper I like to see. When I was told I am F4 I googeled it, as one does, and stopped rather quickly, in a very somber mood. Looks like things are not quite as bad with SVR, hopefully.Cheers, TomSurvival of patients with HCV cirrhosis and s...
I hate to repeat myself but I really want to find out more information on this. I looked it up and also because of my 365 on this one and read that it can be anything from negative things, even mono but it can also be due to the recovery of an acute virus / inflammation. Has anybody seen this before ... I would...
So far so good. Went in today for lab work. Alt level came down significantly, dropping from 264 to 117, that was real good news to hear. All other results within normal range. No issues or side effects that I can complain about. Today I noticed I just had too much darn energy. It is like I am chock full of...
I thought this was a good article and recommend it for those in search of current treatment data. There is mention of two protease inhibitors, Telaprevir and Boceprevir (NS3), they should be disregarded. They are no longer being prescribed, thank goodness... I was one of the last to ride that train,...
Re: HCV being anywhere in a person's body?I was interested in what Mallani said, about HCV having an affinity "in lymphocytes", so, I started googling up (fairly old) studies done about the relationships between lymphocytes and HCV, trying to find out more about HCV "in" lymphocytes, and about...
Hi All, my liver still seems fine, so here comes a story about my right eye... In 2014, when I was blissfully ignorant of my HepC , cirrhosis, and all that, I noticed some reduced field of vision in my right eye. It was checked out, and was diagnosed as a "vascular issue", and to be kept in view. Then came the...
1. Diagnosis, 2. Treatment and 3. Support. Take a moment to bookmark this website. It's loaded with useful information on our unwelcome visitor and how treatment has improved along the way. It's provided by the American Liver Foundation. http://hepc.liverfoundation.org/
Hello all,I am in BC Canada, thus why I have been using the handle "Canuck".I am new to the site, and have been meaning to "properly" introduce myself to all of you, and intend to share more. Up until now, I have not posted much, I have mostly just been reading the site, learning an...
Hello Brothers and Sisters! I have been on harvoni now for 3 weeks. Very few if any side effects. But I have been experiencing discomfort in both knees, and the left ankle. Shoulders are sore, but that is normal for me cause I swim every day. But the lower joint pain is not normal for me. My weight is steady...
The benifit to everyone that drops in makes a big difference in there lives. They may not relise it at that time they drop in, but konwledge on hcv is just as much a treatment drug as the treatment drugs themselves. So if your just droping in, take your time, have a good look around, we welcome you and you...
It seems that some or one character is being replaced by a ? mark but a black triangle with a white question mark inside. Odd, but can you see this? Â SF
Hi everyone, I`m very pleased to announce that Tig56 is our new forum Owner and Administrator! You all know Tig, he`s the one who`s always there with a kind word and cheerful encouragement for everyone. We all value his lasting commitment to the forum and all our members, his compassion, knowledge...
Well I started Zepatier a few days ago. So far pretty good. Other than feeling on edge, I have had mild stomach upset and have been dizzy on occasion. I have a huge move planned in a week so I don't know if that's where my intense frustration and bit of anger is coming from or if it's the meds? I can still keep u...
Ok people. We're gonna see if the 3rd time is really a charm. I start Harvoni next week, and I'm both excited and skeptical. I was given really great odds of a cure on round 2, which was triple therapy, inteferon, incivek and ribiviran. Looking for other two timers who are SVR on Harvoni their third time a...
I had the opportunity to speak with a patient that is currently undergoing treatment for HCV GT 3 and on the Sov/Dac protocol. The topic of lab testing came up and the difficulty of getting a request written by your doctor and approved by your insurance carrier. Normally we do not promote retail or medi...
i feel great. I have energy. I can eat. I can go for long walks again. I went to my integrative Dr.( that I credit with keeping me alive through my horrendous 32 year battle with the dragon and all the ever changing immune disfunctions that accompanied) and got some drops to detox the riba out of my system...
have been posting about liver transplant.am fortunate to have cleared virus.am SVR.but due the ravages of the virus my liver has not fared well.i have a 5 day medical coming up on the 4th of april.if found fit enough to go through op will be put on transplant list.so yet more waiting.would be great to he...
The FDA has approved the HCV RNA test as a first test option to confirm active infection. Previously all patients had to be tested for HCV antibodies and then progress to the RNA if a positive antibody test was returned. This is a positive advance in diagnostics. http://ipsite.org/3g9p
Just got the diagnosis last month that I have Hep C. Completed all initial test including Fibrosure with results of Hep C 1a or b, 300k blood virus level, and Fibrosure results of F2 / A2. I have not yet had my first appointment with my now new Hematologist so I don't know if I am good, bad, or ugly..... I hav...
My friend and I would like to know if a 4 week EOT appointment is still standard. If it is standard, can anyone who had a 4 week EOT appt let us know what this appt is for (if you had this appt)? Throughout treatment, all of her blood work numbers have been great and normal (from the beginning) - so we are cur...
Hey everybody!! I've been gone since Christmas....my Mother had a bad accident and I have been taking care of her. She will recover and is doing better every day....and I just received my last lab results. EOT+12.....UNDETECTED!!!! Woop!!!!!
Hello Members, Newbie here looking for a lil advise. I am computer challenged at times and especially in new settings like this, but will try to get it right. I was infected with Hep C in Viet Nam in the late 60's. I have never been treated with drugs for the Hep C. VA wasn't especially c...
Hi, I am posting because I am 16 months off Sobisvor, Daclatisvir and Riba. Now when I am ill I can still make it into work, over the last academic year I have only had 2 days off (I'm a lecturer) instead of the 2 weeks for each illness that I would have had to take off before. My life is so much better now and...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
