Hi all since I haven't found much improvement in my hands and feet hurting since treatment I finally went to the Rheumy doctor. I had x rays of both hands and feet and lots of blood work done. Blood work was normal but the xrays are showing what they feel is inflammatory joints in my left foot, which is th...
Now this is a beautiful sight! It feels like I've been working on this same bottle for ages. I literally dumped them all out and counted them once because it seemed like it just wasn't moving lol But today, that gorgeous plastic at the bottom is gleaming (well hello sweetheart) haha! 1 more day y'all...
Hi all, I'm 45 years old, got HCV for 27 years, genotype 3a, fibrosis 3 (fibroscan). Treatment naive, I was waiting for interferon free cure. My decision was to wait until fibrosis gets to 3 and then start with whatever would be available at the moment. So I started this September with Daclatasvir and S...
Well, the topic says it all. I have been lurking, reading this forum over the last nine months. I am pretty certain I contracted Hep C in the summer of 1982. My doctor noticed high Liver Enzyme readings in the late 80s and I was diagnosed in teh summer of 1995. For years I took Milk Thistle and went about my b...
Hi All, I really appreciate this forum exits. I started taking Harvoni 27 days ago and got a few questions. FYI, i have had very few symptoms from the medicine. Sometimes i fatique if i take it on an empty stomach or earlier in the day and this lasts for maybe 1-2 hours. Sometimes i get minor headaches but v...
It is supposed to be stored below 30 C but we have been having pretty high heat this summer. I put it in the fridge for a while and then decide to take it out. I then put it back and took it out after talking to the pharmacist. He said he will call the company tomorrow. I hope I haven't done it any harm...I have 1 f...
Buffalo News, April 27th The seven insurers have reached an agreement with Attorney General Eric T. Schneiderman to allow improved access to meds needed to fight hepC. Prior to the agreement, a number of the insurers restricted access to the medications by requiring members to develop advanced...
Hello, my husband has it and went for treatment, however a kidney lesion was also found. His Gastro told him to treat the kidney lesion first, then he would get treatment. The urologist said he should have the kidney lesion removed because my husband's brother had kidney cancer. Full disclosure ab...
Hi guys, I've had Hep C since I was 1 year old - discovered only at 11 years old due to a decompensated cirrhosis event (burst varices and blood vomit) which repeated a couple more times. Other complications came in time - such as encephalopathy, high ammonia - yet no ascites in the belly, but definitel...
I'm on week 3 of holkira and riba, I'm experiencing the worse brain fog ever and I'm feeling kinda depressed and really Moody.. I also got the rash going on which I read is normal, but I'm wondering how this has effected anyone's psych ...
I literally feel like a loose canon but also fee stupid at the same...
I thought you might like looking at the Healthline website on HCV. There's a lot of information available, some behind the current SOC's, but in general it seems to be very informative. As you look through the data, there is information provided on the new DAA's. I think you may find it a good reference...
On stock already, contradictory availability. Links removed...sorry but these are not appropriate to post here.Jill (Forum Administrator)-- Edited by Cinnamon Girl on Sunday 22nd of February 2015 08:34:18 PM
Hey allCheck out this hyperlink about a study new study by researchers at Baylor College of Medicine found that treatment and cure of chronic hepatitis C reduce the risk of hepatocellular carcinoma (HCC), especially if given early, before cirrhosis develops, and while patients are still young...
Don't forget to add some fresh fish to your diet. A Mediterranean diet is a good one that includes 2 servings of fresh fish per week. -- Edited by Tig on Wednesday 19th of July 2017 08:55:37 AM
It just occured to my foggy mind that a lot of my symptoms [pre-TX, during-TX, and early post-TX] are very similar to alz/dementia. Having care given my father for 5 years before his death at 92, I witnessed dementia advance in his aging [but once sharp] mind and it's not a pretty sight. Just wonderin...
Hi Everybody, I am 63 years old and I have had HEP C for 40+ years. I have been monitoring my liver fibrosis, liver enzymes and viral load since 1990. My fibrosis levels had slowly increased from level one to level three, but my liver function was perfect and there was no indications of cirrhoses. In octo...
Just wanted to say hello and let you all know I just got my 24 weeks EOT results and I'm now SVR24. My post treatment fatigue has resolved itself about 8 weeks now and everything is great. I have good energy and strength and I'm back to my heavy weightlifting and 2-3 hour walks with my dog. To those like me wh...
This morning I took my Rib, Harv, Dak to start my 4th day of treatment. I'm on a 12 week course (gnome 3 with early cirrossi) with every reason to believe that I am on my way to being cured. I truely feel the virus slipping away with every bottle of water I force feed myself. I'm doing the 3 1/2 liters of H20 per...
This a question which crops up fairly frequently on the forum and I hope the information contained in this updated HCSP fact sheet will be helpful.Testing positive for antibodies doesn`t necessarily mean that you have an active Hep C infection, it just means that you have been infected by the virus a...
I have been taking Zepatier, accessed through Mercks Compassionate Care Program, for 29 days. I had blood drawn on the 21st day of treatment and to my surprise the virus is already UNDETECTABLE! I'm shocked and thrilled but I still don't actually believe it! Its hard to wrap my brain around it, consid...
After so many years, the third time was most definitely the charm. Met with my hepologist today, and she gave me the official SVR 12 (actually 13) weeks still UND! I just am really finding it so hard to believe. I talked to her for a bit about me, and my tests etc., with my platelets rising and AFP normal, an...
Hi! I'm Anna, i live in Melbourne, Australia. I have geno 3 and i've been living with it for 17 years now. I've just started sov/dak combo and i'm 8 days into the treatment. My liver has always been good, and my doctor and i put off treatment until these were on the pbs. We're lucky to have the drugs so chea...
Two weeks ago I was lucky as **** and got approved for the 3 drug ****tail by Aetna and CVS Specialty ( Sofosbuvir 400mg/ Daclatasvir 60mg/ Riboviron 600mg), and I was amazed. I had gone on my girlfriend's insurance not having a clue what would happen with my pre existing c.......I didn't know about the...
new to this chat room and its the first room i have ever joind boy what a pain in the arss. im hopeing to have a meaningful discussion with anyone with hep c im feeling a little down today and could rely use a helping hand.
I just discovered my boyfriend has hep c. We both just had an std panel done. mine was negative for everything. There was one time of sex without protection but he didn't ejaculate, one instance of giving him oral sex and he ejaculated , a kiss when he had a fever blister but don't think it was bleeding...
Hello everyone, I'm Jamaica. I'm new, obviously, as well as new to this kind of forum. I found out a couple of years ago that I have hep c. I was not surprised, however I've been kind of in denial about it ever since. I was pregnant with my youngest daughter and freshly clean and on a personal path to recover...
As I have seen more and more people writing about bad after effects on Harvoni on multiple forums and chat rooms, I dived back into research. I found that it was fast-tracked for approval by the FDA. That is never a good sign with pharmaceuticals. So, with further research, I stumbled onto a product ca...
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