I am scheduled to see a hepatologist at the VA later this month, so would like to be well informed before the appointment. I have read many, many reports of the neural side effects of Harvoni (on other sites besides this one). I have decided against going that route, especially after learning that it w...
I've been diagnosed with hep c in February and I've been in considerable pain I've been to hospital 3 times and discharged and I've been to see my doctor who told me that there's nothing else they can do I'm not scheduled to see the liver specialist until July and the pain I'm suffering is causing me conce...
Hey All This thread will be dedicated to the 2015 AASLD / (American Association for the Study of Liver Diseases) This convention / Conference is held once a year with the latest info on Hep-C and related information. Post any info that seems relevant or that which might interest you or our membership...
Wooo Hooo!, I saw the Actual dr. that may be able to dispense the winning drug! I really don't want to get too excited just yet as there is a few preliminary tests to be done. I still have to be "sick enough" to recieve treatment as per my insurance. That just seems wrong to me. Anyway, the ball is rolling, I s...
Just quick hello..... Diagnosed years ago and have finally decided to start the 12 week treatment a month ago. Interferon, Ribavirin and Sofosbuvir. The pills every day, Interferon injection once a week. Going okay so far. Will come back with more details later today for those interested. Hope you...
Had bloodwork done on day 36 (required by insurance to secure the third 28 day Px). Initial VL of 10M is down to <15. The PA at my MD's office seemed stoked. Day 44 today... ...40 to go. I've seen several "undetectables" at four weeks, but with that high an initial VL, I hope I'm in business. Insom...
Hello, everyone. My name is Christine and I work for HepC Alliance, a non-profit organization on a mission to stop the spread of Hep C. If you are needing advice or just someone to talk to, a great resource is help 4 hep. The website address is http://www.help4hep.org/ . Our organization's website is w...
Hi all my Hep C Discussion Forum brothers and sisters. The Misses and I are getting on a big ol' jet aero liner tomorrow, destination Philippine Islands to do business, and visit some family, and pleasure. I still will be able to keep up with ya'all because this trip I am bringing my laptop for sure. So,...
Hi all,We have recently had some confusion about Viral Load (VL) results. This is a complex subject and outside specialist HIV/Hepatology Clinics, it is not surprising that Nurses and NP's have trouble relaying correct information.Knowing your VL is essential to diagnose active HCV, and partic...
Hi, I was able to get phone results of my husband's test. First of all, he was tested last summer for Hep C reactive, and it was positive. It took a long time to get him to agree to go back for more testing. The results of this test was "Undetected with a Quantitative number of 4770000". Can an...
HiIm starting a 12-week course of Harvoni on Friday the 13th.I'm curious what others think about:Ive been taking Milk Thistle for years. Recently started taking Turmeric. Im thinking Ill just take a break from them while on Harvoni.Should I stay away from high sugar products, like chocolate, ice c...
Well, today I start week #4. Yesterday and previous days I will all of a sudden get tired and go to sleep. The sleep is so deep and I have crazy dreams. I am a dreamer anyway, but on this Tx my dreams are almost stressful. I never have nightmares I just go through so many events that are actually stressful. I n...
Made my first batch of bread dough since early on in Tx ... Feels good to have enough energy to bake again ... fun stuff. Actually I'm making breadsticks topped with Parmesan to go with the beef stew that Jo made yesterday. Should start to smell REAL good here very soon ... I'm a bit of a carbaholic so I DO l...
Struggling with the thought of quitting drinking. The Doctor said drinking won't effect my Harvoni treatment? I use my alcohol to help with stress and arthritis in my neck, while my Mother has terminal cancer. My Harvoni should be in this week, and I am supposed to be going back to school for a job trai...
Greetings, This may be one of the all time stupid questions ever but in that I do not know the answer I am going to ask anyway. If one fails treatment, and it is determined they have RAV's, then they go on to re-treat and are found to be UND say during the second treatment, are the RAV's gone or assumed to be?
Just got a food dehydrator and vacuum sealer to dry and seal fruit and veggie snacks etc. Spent the afternoon preparing fresh and frozen fruits for the dehydrator ... it's drying now. This batch (maiden voyage) is frozen raspberies, frozen strawberries, kiwis,mangos, pears, apples ... And BOY, le...
its been about 1.5 years since SOF-RIBA was the norm for trials. With all the ns3-4"s coming out, along with the newer DAA"s , we are going to have a arsenal of drugs that will be effective against all geno types . I'm thankful for the early trials before mine , they layed down the tracts To get us here t...
I have 3 more days of treatment after today. A nurse told me today that it can take up to 6 months to clear these drugs from my system and that they remain in the body's fat cells for a long time. I am wondering how long before I can sleep without taking narcotics. I skipped my sleeping pill a couple of nights...
Hi friends, sorry for the gloomy question, however, I've not been feeling great of late (chronic fatigue, etc.). I've also developed a suspicious bump on my right hand, which I have had checked out by my GP and ultrasound and it has been Dx as early Dupuytrens contracture - and so I'm wondering about th...
Greetings, It's true I actually have a friend. LOL The woman is about sign up in Californaia for a Clinical Trial. She has no Insurance and has failed a previous trial. The trial consists of the following and if there are any thoughts, as always, they are greatly appreciated. Gilead Sciences, Inc. / P...
I had my EOT blood work done one week ago and repeated yesterday from my yearly Physical. There have been some changed in my LFT's and I am concerned and have a call into my NP for her opinion. I still do not know about VL of B or C Last week This week ALP 68 ...
Hi all glad to find you ive had hep c for 20+ years and can't get harvoni bc of having ppo insurance! i am going to India for an artist residency in June and will be in Trivandrum afterwards to see if I can get the generic drug. I do not have a contact there besides a homeopath. Does anyone know how I can conne...
This is an example of how I would start a new thread in the 'Hep C and Nutrition' section of the forum. You can choose which section to start your thread in based on the subject that it pertains to: 1 - Go to the 'Home' page listing all the forum categories, select 'Hep C and Nutrition' (circled in red, 1st at...
Hi, I am a nursing student at Newcastle uni, 2nd year, and have an upcoming assessment on empathy. This assessment is designed to help us imagine ourselves in someone else's shoes and attempt to understand how they might be feeling. I have access to journal articles but I feel that the best way to try...
I thought this was worth posting as there`s a lot of interesting and useful information here.Hep C: A Focus on Dietary Supplements Please note that anyone who has Hep C, or is currently on treatment for Hep C, should...
Just a week since tx ended and I already feel like a new person. I actually organized my shoe closet today along with a huge box of nail polish and not one shoe got thrown, nor a bottle of polish broken I also haven't walked circles around the house trying to remember what I was doing. I can still tell the ri...
HI, I have been on this website many yrs ago. I was dx 10 yrs ago. I opted not to do tx as my liver enzymes were normal and my liver biopsy was normal also. Last summer my enzymes creeped up barely above normal. I applied for Harvoni and was denied by my insurance co. I am considering trying again for appr...
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