Hi- new member. I was DX'ed in 2003, waited around for the end of interferon treatments. Got myself into a telaprevir trial but dropped out when my damage was slight- never dosed. In 2013 my damage had increased quite a bit and I was fortunate to get into a Gilead phase 3 trial (ION 1) for naives. I was cur...
I have just finished a 3 months course of Harvoni. I experienced most of the side effects; nausea, headaches, fatigue and insomnia. But I hung in there. My 4 week bloods showed the virus is gone. Have not been able to find another specialist to get more bloods done. Have been off it for 5 days and feeling l...
A lot of us are either offered places on trials or have to make decisions as to what direct acting antiviral (DAA) medication combo to choose for our treatment and, as such, we end up having to read complicated scientific papers to inform our decision-making process. I did a masters degree in science...
Hi All,The cost of running the Forum in it's present form has become an issue. Costs have increased and our monthly charge is determined by the Forum volume, with quite a large quarterly fee. We have many features on the Forum which add to the cost. These include having photo avatars, being able to post...
Getting back to some sense of normality with life. I would say the fog has dissipated ~98% from when on Tx. I find myself not dreading having to do an errand or chore now. Find myself at least thinking about resuming some major home projects and getting out to do some recreational activities. Seem to get...
I started my tx sept 4th last year on harvoni and riba 12weeks EOT November Dec I went for 4/wk post tx and they said it was back...I'm one of the low % that the virus has come back, They did offer me retreatment but it was a trial with many ifs and buts..I have declined tx for now as my body is feeling battere...
This is so new to me I don't even understand all the blood work results yet. Just started the Viekira pak with the 4 pills on Thursday "ombitasvir, paritaprevir, ritonavir and dasabuvir . I also take Xanax and remeron, the Dr. told me the viekira could cause my other meds to seem stronger so I'...
I've got 2 friends in the UK who bought generic DAAs through FixHepC and Dr Freeman, and I'm on a mission to try and find out which hospital in the UK is following up such patients. A doctor at my hospital mentioned this to me at an appointment in passing a while back before I even knew about the whole gener...
I posted this article in a seperate thread and feel it very informative. We often have questions about the potential for improved liver health after SVR and this helps address it. Reversal, Maintenance or Progression: After SVR
I know it is not advised to add table salt etc. to the food a person with liver damage eats. How exactly does salt effect the body with liver damage? Thanks, Mike
Hello all, we're all aware of the high prices of Hep C drugs. I've just watched a movie 'Dallas Buyers Club' where they had the same problem with HIV drugs in 70s and they created a so called buyers club where you could get all HIV drugs. Is there some similar thing for Hepatitis C? I don't really have $100...
Forum Guidelines Welcome to the Hep C Friends discussion forum, whether you`re posting for yourself or on behalf of your partner, spouse or friend. We hope you will find this forum helpful, informative and supportive. We like to maintain a friendly and non-judgemental atmosphere here so that all o...
HI I have read all descriptions and updated my signature, saved but yet I don't see it on my posts or replies. your Signatures and status of treatments/experiences help me tremendously. I want to do the same. Can someone advise what I may doing incorrectly that my signature is not saving? This one i...
Hi Everyone, Today, I'm faced with the duty of announcing that our friend and Admin Team member "Mallani" (Malcolm) will be stepping down as Moderator. He has been a member of our forum since March of 2012 and has provided endless support and assistance to the membership during his time here. As a Hep W...
I found another trial notification site and wanted to share the link. It lists over a thousand trials, past and present, that pertain to chronic Hep C. The main page offers info on all things trial related. Might be helpful for those searching for information. Looks like it notifies, but requires you...
Hello! I'm new to the site & to HVC. I learned I had Hep C in Feb. I'm just finished my third week in a ABT-493 ABT-530 study. I take 3 pills a day. I have not noticed any improvement yet but I have high hopes that I will be cured. I think I am geno2 with cirrhosis. The doctors think I may have been infected in...
Hi, I am a Hep C patient and with a type 4 Genotype, I got married to a hep B patient. I really would appreciate if my questions can be answered here. 1. What are the risk involved if we have sex without protection 2. What are the risk for my offspring 3. If we get treatments for these viruses what are still t...
Selenium is included in the protocol for many Complementary Alternative Medicine CAM protocols for Hepatitis C. Selenium is a nonmetal chemical element with the atomic number 34, represented by the chemical symbol Se. Selinium is a primitive mineral antioxidant. Although it is toxic in large do...
At least once a week now, I get on facebook and see some trending news about Hep C. Today's article trending - Judge orders Washington Medicaid to provide lifesaving hepatitis C drugs for allhttp://www.seattletimes.com/seattle-news/health/judge-orders-apple-health-to-cover-hepati...
I had my scan today, and I've passed all my gallstones through. I am gallstone free YEAH! Everything looks normal, no swelling, no fibroses, kidneys are great, stomach is good. So I am left mystified why my panels are so bad, if everything looks normal? I am not complaining, but have to wait until the 7t...
Do you ever stop being afraid of your blood? I have read that once an individual is cured, the antibodies still show, but there is no longer risk of transmission to another individual. Since dx in December, I bought everyone in the house their own set of nail clippers n such. And I tell my son things li...
Hi All! This is Cayohueso 1 and I have been hanging in there for the last several years with my failed 6 month attempt with Peg/Victrellis ****tail. Heavy side effects including relapse after 8 years of being clean and sober. I stayed out there for 2 years and happy to say that Im 2 and a half years clean...
Hi everyone , its been a year since I had to have the pancreatic mass tested before treatment. I had my 1 year follow up CT scan , and the mass is gone, resolved, history ! So a Christmas Miracle for me . The doctor seemed dumbfounded, as it wasn't a pseudo- cyst . He asked me if I had been drinking l...
HEPATITIS C RNA BY PCR, QUANTITATIVE See notes below2650000 Reference range: NOT DETECTED Unit: IU/MLRESULT, HCV See notes below 6.42 Unit: Log IU/ml THIS SPECIMEN WAS TESTED BY THE ROCHE DIAGNOSTICS HCV REAL-TIME PCR ASSAY. THE RESULT GIVEN ABOVE IS THE NUMBER OF INTERNATIONAL UNITS (IU) OF H...
Many studies have been done showing coffee is beneficial to the liver. Helps the ant-viral response, lowers risk of HCC and more. Reading through below link ( and my eyes spinning in my head from the medical terminology), it appears 3 or more cups per day (8 oz being 1 cup) can only be good. Tea and caf...
Hi all, Even folks with genotype 3a, stage 4 cirrhosis, HIV+ and 2 failed attempts with PegInterferon & Ribavarine can achieve succes with these new meds. My latest lab results confirm that 3 months post treatment I am HCV free, my 20 year battle is over and I feel good. Not James Brown-like I fee...
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