Hello, I've never been part of a forum before, but thought I'd give it a try. I don't have anyone to talk to about this. Maybe it will help with anxiety and to gain some knowledge. I was diagnosed with hep c 1a awhile back. I was told my fibroscan showed I was at level 4 (I believe) and towards the end of the las...
Hello all, This is my first post. I will be starting treatment on Sunday July 3rd. I'm not real sure about the dosages of the Viekira pak the box has three pills in the morning and one at night. I will also be taking ribavirin 3 200mg pills in the morning and 3 200mg pills at night. One thing I'm really worri...
Hey all, here I am!!! i wrote such a long post last night asking for help with my wardrobe choices and wondering where my mates all gathered in this one horse town - and then lost internet connection. So I've done a bit of basic freshening up in the Ladies at the station and am now staggering o...
Hi friends I have been meaning to post good news. It is a little over a week since Doc lowered the RIBA to 600 mg with the Solvadi. Started to feel better a few days ago. Second blood test after 2 months of tx is still undetectable . I finish meds on 7/17. Plan a little celebration and ceremony tonite when...
Hi just a quick question - and perhaps some helpful info to newcomers regarding Harvoni and body temperature . When I last saw my liver specialist to begin my Harvoni a few weeks ago, he told me NOT to take my tablet with a hot drink (tea or coffee/soup etc). He told me that Harvoni is destroyed at t...
I am 58, male, hep C for 16+ years. I was put on pills and weekly shot back 15 yrs ago. No good results. Recently diagnosed with cirrhosis and started Harvoni 28 days ago. I've been clean and sober 5 yrs. I am having side effects mainly after meals. Reflux / heartburn severe.This is my one shot to get better...
Hi All-- Lets say you have a liver in pretty bad shape, and you have been on two treatments that failed you.Now let's say a new combo drug was just approved yesterday (sof-Vel) but you felt like you needed to hit the virus in three spots instead of just two, and the third drug was in trials and was proven in...
I've moved over here from the New Members Area because I started treatment yesterday. I'm G3a diagnosed in February and approved June 24th, 2016 for 24 weeks of: Daklinza 60mg Sovaldi 400mg & Ribavirin 1200mg I'm a 62yo male, treatment Naïve with an unknown fibrosis or cirrhosis score. Altho...
I'm new here but have been reading a lot of info in here. Seems like a bunch of really nice folks in here. Really nervous about this whole Tx thing. Just went for my first physical in many years back in Feb. and one test result lead to another and before I knew it I was being subjected to one major test (MRI, So...
GREAT NEWS. Gileads new HCV drug EPCLUSA ( 400 mg SOF, 100 Mg VEL) was approved for Genotypes 1-6. I added a link, Chris.-- Edited by Tig56 on Thursday 30th of June 2016 09:47:09 AM
Took the last of the 84 on Monday... I feel the same. Now I get to wait until September 19 for good news. Although I think I got the good news in late March, when the lady at the pharmacy called and said she had a prescription for me. I hope a lot of other people get that call. On with life. Thanks to a support...
Hi all,A quick update from the Golden TGV Bullet Train that arrived at its final destination gate on April11. The service in first class has been tremendous. Feeling very good no side effects. I'm done. Undetected (see below). I'm interested 3 months post EOT but something inside tells me not this ti...
Current Concepts and Challenges for the Direct-acting Antiviral Era in Hepatitis C CirrhosisA. Majumdar; M. T. Kitson; S. K. Roberts AbstractBackground The burden of HCV cirrhosis is high and projected to increase significantly over the next decade. While interferon therapy is problemati...
Hey all.....This is Dave ..I'm ten weeks in to my 12 week trip on 1200 Riba, 60 Dak, 400 Sol...../ At start I had hep C, G-3, with early onset Grade 1-2 cirrhosis...2mil VL, ALT-70, AST-66.....treatment naive..........16 days into treatment I was <12, ALT-19, AST-24..... This for my Hepotoligis...
Hello everyone, I'm in Canada, I don't know how it works in US, so here's the story. I need an advice. I have a friend in Maryland near DC. He was undergoing Harvony therapy (likely EOT and +16wks still UND ) when he got TIPS, since he already had a decompensated cirrhosis, a strong ascites and started...
As we reflect on our personal experience with the "Harvoni" treatment,we ask what stands out in your mind, and what happened that you did not expect, what would you change if you could do it again, Positive or Negative, Before, During & After treatment. Before- It takes some Insuran...
Hey All, I finished my 8 week treatment of Harvoni about 1 month ago. To be honest, the treatment was rather easy and alot of symptoms dissipated during that time. My energy increased greatly and my minor digestive orders like low level pain, bloating etc went away and the brain fog decreased quite a bi...
I am new to this forum. My sister referred me as she found it very helpful during her Hep C treatment with Harvoni, which is now cured. My husband is a 54 year old male with Hep C and cirrhosis. He received only natural therapies in the past 20 years. With cirrhosis getting worse including portal hyperten...
Hi everyone, I have just returned to UK from KIMS hospital Travandrum, I am 57 geno type 1a for 22 years, My liver stiffness Kpa is 12.4. I have returned with Generic HEPCVIR L (Ledipasvir Sofosbuvir)+ribavirin) Total cost of round trip was £3,500 for 24 weeks treatment.or £2,700 for 12 weeks. This i...
Hi....
I am new to this board. Hep C.....Genotype 1a. Stage 2.
My Harvoni arrived today. Will take first dose tomorrow morning. Also taking omzeropole 20mg. Was told to take both on empty stomach at same time.
Looking forward to picking up info from this group.
Most HCV sufferers in the world are genome type 1 and can be treated with either sofosbuvir or the sofosbuvir/ledipasvir compound (Brandnames: Sovaldi and Harvoni,) possibly with ribavirin supplements. Unless there are specific MEDICAL reasons why a genome type 1 patient cannot be treated wi...
so I was counting on seeing my liver Dr last thurs in great hopes that he may lower the RIBA the appt was cancelled and I sobbed for a 1/2 hour! I see Dr this thurs which according to my calculations is one month until EOT TX is 3 months long, started 4/25. I was undetectable at 5 weeks, next blood test on t...
Not sure if anyone else has experienced something like this but ever since I ended my Harvoni treatment in March I have been having recurrent and what feels like cold sores inside my nostrils! Really painful and far worse than a cold sore on the lip as at least I can put some zovirax on those. I've read abo...
Well folks, it is time once again to celebrate the slow, painful, death of another incredibly despicable dragon, who used to reside in my body. I am absolutely thrilled, and come to tears about it. I was kind of getting fond of that miserable dragon, but believe me, I won't be attending the dragon's...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
i wrote such a long post last night asking for help with my wardrobe choices and wondering where my mates all gathered in this one horse town - and then lost internet connection. So I've done a bit of basic freshening up in the Ladies at the station and am now staggering o...