Well all it seems I'm done needing a liver specialist after 16 years of dancing around with 3 different treatments and a host of side affects from the disease and the treatments. I had a FibroScan last month and I'm a 0,1 I was a 3,3 before my last treatment of the dreaded triple combo of 48 months. I I just h...
Hear Ye, Hear Ye: It is with great pleasure that I introduce our new administration team member, the "unhinged" one, Linuxter or Dave as I fondly call him. You all know him well and he has graciously accepted my offer to join the team in the Moderator position. I have every confidence that he will provid...
Updated HCV guidelines have been released by the AASLD (American Assoc. for the Study of Liver Disease) and the IDSA (Infectious Disease Society of America).Multiple sections of the guidance posted on HCVguidelines.org have been revised to reflect the FDAs approval of Epclusa (sofosbuvir/vel...
Hi friends, I am having a huge celebration tonite (sitting in my pjs with the dog & cat on the couch which has become my all time favorite thing to do). Just took the last 2 Riba pills...I was hoping to somewhat breeze thru the last week, but, a darkness and a sadness has been constant. I live in Dallas a...
Just got my one year viral load results in. Not detected just as it was at 4 weeks and every other time I was tested. Great stuff that Viekira Pak. And my viral load was 21.8 million at start of treatment. Sounds like a cure to me!
More information from the Conference on Retroviruses and Opportunistic Infections (CROI) 2016. In PDF format and technical, but is very informative and separated into easy to find subjects that may be of interest to you. Viral Hepatitis and Liver Fibrosis
Third time I've tripped in last few weeks. Two other times I caught myself. This time I went down and couldn't get up. Sat on steps till my husband came. Icing the leg now. Back of ankle hurts like hell. Hopefully nothing broken
I thought this was an interesting article and wanted to share it with those of you that continue to wonder about where or how they contracted this evil disease. Doesn't matter in the big picture, getting rid of it is. But the school of thought may be changing. This was published by the Lancet recently an...
Was <12 on day 18.....Week 12 levels are HCV RNA, QN- UND....... HCV RNA, QN-(Log IU/ML) UND....... AST= 25 ALT = 15. 12 weeks to go. -- Edited by Winfrey50 on Friday 15th of July 2016 01:51:22 PM-- Edited by Winfrey50 on Friday 15th of July 2016 01:54:24 PM...
May 27, 2016 The European Committee for Medicinal Products for Human Use granted a positive opinion for Gilead Sciences Marketing Authorization Application for Epclusa for the treatment of all chronic hepatitis C genotypes, according to a press release from the manufacturer. Epclusa (s...
So since my husband's endoscopies for banding of varices have had him on a higher dose omeprazole (for the healing), we have had to postpone Harvoni (at least 3 more weeks), which I'm not comfortable doing. Really want to get going! We also have the option of Daklinza/Sofosbuvir combo but I was feelin...
Hi All, I just posted about healing the liver after treatment and this came up on one of my newsletters this morning. Hope it is the wave of the future after SVR for those of us with liver damage. Liver Fibrosis - Galectin Therapeutics Receives US Patent for Combination Treatment http://hepatitiscn...
Just had my blood work come back. Still held my breath while I scrolled down even though its been 2 years. HVC NOT detected!!!!!!! AST 16 ALT 9. Did a little happy dance. wohoooo!!!
Ok friends, I just returned from the hospital with my husband after his 3rd round of esophageal banding, which did not go well. The doctor says things look worse although 4 weeks ago she said things look better. She now wants us to consider a TIPS shunt. So again, no Harvoni for the next 2 weeks while on th...
I got a link showing a study extolling the benefit of the correct(liver focused) acupuncture combined with Curcumin. I have started both. Loved the acupuncture; as for the Curcumin- I am feeling rapid relief for my chronic pain. I am using Doctor's Best (brand) Best Curcumin C3 Complex. Just becaus...
Been waking up with headaches in the morning. Also quite irritable and a little nauseous. This has been happening for the past week, maybe two. 2 ibuprofen and a cup of coffee seems to kill the headache and irritability and a light breakfast helps the nausea. I'm still drinking water, not as much as whi...
Does anyone know if the little red spots that appear on the body, which they say are from the hep c virus, do you know if these stop appearing or do they go away. Or are they like a hep c tattoo? thanks, CH
Hi Everyone, I was diagnosed with Hep C in April and the whole experience has been pretty tough. I've only told my partner and one other person, and am still adjusting. To compound things, my recent Fibroscan was surprisingly high (13.6), considering that my GP said that my liver enzymes were normal a...
I know lemon water help the liver but I was wondering if I can just use RealLemon juice to add to water instead of having to squeeze fresh lemons, it's just so much easier to use and the easier it is, the more I'll drink. RealLemon is made from concentrate, don't know if that makes a difference. Any thought...
Hello, I need your help again. So now I am 5 months after relapsed. To remind you. F1, 1b, Relapsed 4 weeks after EOT Viekira+Exviera (12 weeks) in December. Now viral load 24000 I have just received my RAVs test that I did privately. In region NS5A among mutations L31M and Y93H: mutation L31M c...
Hi All, Just got the news ... (Message below is from my Infectious Disease Doc's Nurse) "Hepatitis C RNA PCR Quant (07/06/2016 10:06 AM) Component Value Ref Range Hepatitis C Quant Not Detected <=15 IU/mL Congratulations! Sally has not seen this yet, but she when she does she will tell you that yo...
I just realized that I do not see an AST score on my pre-harvoni blood work from Quest. Does it go by any other name? Would the doc not have ordered it?
Information for our Friends from England:* This is the new link for NHS treatment information, for England, Northern Ireland, Scotland and Wales...http://www.hepctrust.org.uk/nhs-treatment Linux * Edited for updated link, thanks Dave. -- Edited by Cinnamon Girl on Tuesday 16th of Augus...
Hello, I received my first month treatment of sovaldi and ribavirin, I was going to start it this morning at 10 am and I talked myself out of it, I know I shouldn't be so scared but I am terrified!!!! I am genotype 2b viral load is 4080377/6.61. This past year has been EXTREMELY stressful for me, I went thro...
Hi everyone. I have been lurking these message boards for a few months now as I wait to begin my eight weeks of treatment on Harvoni. You all seem like lovely folk and I could sure use some emotional support right now as I'm a bit of a mess. I picked up my bottle of Harvoni two days ago, and it is sitting .....
just got my PCR EOT+12w result today, undetected! Now, i will again lay low and won't celebrate yet, since my hepa told me to do EOT+24w PCR too. A big thank you to all the folks on this forum for all the help and support! And of course a BIG thank you to chemist Jeremy L Clark for inventing a wonderful molecu...
I'm in week 3 of Harvoni. Are there any indications if it's working? I don't feel any different. Felt ok before and feel ok now. Do people all of a sudden "feel something"? I guess I'm just obsessing.
Hi Everyone :) I am currently waiting to see which therapy I will be going on. According to Momentum and Claire Program I have been verbally approved for Sovaldi and Daclatasvir (Daklinza) All my paper work is in, now just waiting for my medical info to reach my insurance company and/or other hands...
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