Hi everyone, I have just returned to UK from KIMS hospital Travandrum, I am 57 geno type 1a for 22 years, My liver stiffness Kpa is 12.4. I have returned with Generic HEPCVIR L (Ledipasvir Sofosbuvir)+ribavirin) Total cost of round trip was £3,500 for 24 weeks treatment.or £2,700 for 12 weeks. This i...
Hi....
I am new to this board. Hep C.....Genotype 1a. Stage 2.
My Harvoni arrived today. Will take first dose tomorrow morning. Also taking omzeropole 20mg. Was told to take both on empty stomach at same time.
Looking forward to picking up info from this group.
Most HCV sufferers in the world are genome type 1 and can be treated with either sofosbuvir or the sofosbuvir/ledipasvir compound (Brandnames: Sovaldi and Harvoni,) possibly with ribavirin supplements. Unless there are specific MEDICAL reasons why a genome type 1 patient cannot be treated wi...
so I was counting on seeing my liver Dr last thurs in great hopes that he may lower the RIBA the appt was cancelled and I sobbed for a 1/2 hour! I see Dr this thurs which according to my calculations is one month until EOT TX is 3 months long, started 4/25. I was undetectable at 5 weeks, next blood test on t...
Not sure if anyone else has experienced something like this but ever since I ended my Harvoni treatment in March I have been having recurrent and what feels like cold sores inside my nostrils! Really painful and far worse than a cold sore on the lip as at least I can put some zovirax on those. I've read abo...
Well folks, it is time once again to celebrate the slow, painful, death of another incredibly despicable dragon, who used to reside in my body. I am absolutely thrilled, and come to tears about it. I was kind of getting fond of that miserable dragon, but believe me, I won't be attending the dragon's...
Hello fellow members, thought might be interesting to ask our members for their personal observations on what food and drink seems to agree with their Liver and body in general. Also what food and drink causes irritation to their Liver or pain.This little analysis is not for judging and criticizing...
Hi everyone, I don't have any other Hep, I got all the all clear, it was pesky stones after all, my stats are already lowering :D I gave in my prescription and pick it up Friday. I am so excited I can't wait. I thought I'd share my good news. Hurrah :D x
I get pains in my liver when I do moderate (or greater) aerobic exercise, and I was wondering if someone could explain this to me. I very occasionally get liver pains when not exercising but they are very rare. I got them today after playing a 10 min football (soccer) match with my young son and his pals...
I called my doctors office to arrange a prescription for a post TX blood test next Tuesday. No. They won't prescribe another assay until 12 weeks out. Protocol. I was initially told by his PA and by the pharmacist that I'd have three tests: One for the insurance company before the last four week scri...
I'm looking for information to me have diagiosticate hepatiti C c 4 years ago but I was told that i have analisi perfect ,but now i will to know how function sistemy of health in England
Day four of viekira plus 1200mg riba and my head is pounding. Had to come ho.e from work. I am drinking water and talk to the pharmacy said to take Advil but only two. So did anyone else have this problem? The pharmacy said it should go away after about a week.
Hi everyone! Right now, two of my ex-students are researching the current availability of Hepatitis treatments in the US, and they asked me to release this survey to any groups I was a part of. It is very short and quick to fill out. Any responses at all would be appreciated! If you want, feel free to em...
Greetings I was diagnosed with Hep C in 2008 and believe it came from a transfusion I had in 1996. My viral load has remained low and other then scarring there were not many signs. However there are things going on with my health that I did not attribute to Hep C like being tired and having digestion proble...
I just got back some of my blood work. ONE MONTH POST TREATMENT and UN-FRICKEN-DETECTED!!!!!!!!!! Happy dance, happy dance, happy dance. My general chemistry results from last week have gone missing. I only saw direct bilirubin which came in at a happy 2. Last month, at the end of treatment, my...
Took a five-day vacay in N. CA, then missed dose on day 73... Called Drs office, and when pill count on day 74 revealed one too many. I was horrified and remorseful, but was told no big deal, just extend Tx to 85 days. I was embarrassed to ask if anyone else had screwed up like this. so day 76 today, last pill...
hi, i am on week 10 of 24 riba/solvaldi, i have a lot of shoulder pain that has got worse since I started treatment and it is really effecting my sleeping. The doc has said its ok to take panadol but I need something stronger, the lack of sleep is getting to me.i am going to see him in 2 days but has been reluct...
Hi everyone,
It has been about a year and a half since I was cured. I treated with Sovaldi and Olysio. I am fairly healthy considering I'll be 70 next month. Except - for wheezing over the past four months or so. Inhalers only make it worse and Cetrizine doesn't help. And, this last month I've lost much of...
Good morning/afternoon/ evening, I picked up my prescription yesterday. I have 20 thousand euros sitting in the cupboard, that kind of feels crazy! :D I am still starting on the 21st as I have guests arriving in a few days, but wow, its going to be the most expensive thing I've ever swallowed. I don't k...
Hi All, Thought I'd start a thread for good news for those starting treatment to see the potential after treatment. I just had my post treatment fibroscan done and it went from 15.5 to 8.8. I watched every ping. All were in the 8's except one 6 and one 12. Amazing really. I know my liver has a way to go yet as f...
So, I had two sets of blood work done on Tuesday, my regular ones from my specialist and some Thyroid from my GP. My thyroid tests have come down some but I noticed on the lab report something that seems totally unrelated. Mitochondria Antibody ** I google and read and it just seems and I don't know why h...
Hi everyone :) A new member here and I am looking forward to receiving info and hopefully being able to give some information to help others. Looking at going into treatment this month....the stale is waiting hear which treatment I will be approved for. The meds are between Solvardi/Daclatasvir O...
I have been searching to see if there is any relationship between the two. I was hit with this syndrome 6 years after interferon. It took specialists months to diagnose. I doubt that this was a result of interferon, but I do hope that if someone else did a Google search, they might find this.
hi everyone hope all is well and copeing with the addons thus far I would like to say things are improving with myself the awfull thoughts and depression if much less frequent and easier to handle.. supprisingly work is becoming much less of a challenge and just over the last month ive felt almost norma...
Hi- new member. I was DX'ed in 2003, waited around for the end of interferon treatments. Got myself into a telaprevir trial but dropped out when my damage was slight- never dosed. In 2013 my damage had increased quite a bit and I was fortunate to get into a Gilead phase 3 trial (ION 1) for naives. I was cur...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
