i feel great. I have energy. I can eat. I can go for long walks again. I went to my integrative Dr.( that I credit with keeping me alive through my horrendous 32 year battle with the dragon and all the ever changing immune disfunctions that accompanied) and got some drops to detox the riba out of my system...
have been posting about liver transplant.am fortunate to have cleared virus.am SVR.but due the ravages of the virus my liver has not fared well.i have a 5 day medical coming up on the 4th of april.if found fit enough to go through op will be put on transplant list.so yet more waiting.would be great to he...
The FDA has approved the HCV RNA test as a first test option to confirm active infection. Previously all patients had to be tested for HCV antibodies and then progress to the RNA if a positive antibody test was returned. This is a positive advance in diagnostics. http://ipsite.org/3g9p
Just got the diagnosis last month that I have Hep C. Completed all initial test including Fibrosure with results of Hep C 1a or b, 300k blood virus level, and Fibrosure results of F2 / A2. I have not yet had my first appointment with my now new Hematologist so I don't know if I am good, bad, or ugly..... I hav...
My friend and I would like to know if a 4 week EOT appointment is still standard. If it is standard, can anyone who had a 4 week EOT appt let us know what this appt is for (if you had this appt)? Throughout treatment, all of her blood work numbers have been great and normal (from the beginning) - so we are cur...
Hey everybody!! I've been gone since Christmas....my Mother had a bad accident and I have been taking care of her. She will recover and is doing better every day....and I just received my last lab results. EOT+12.....UNDETECTED!!!! Woop!!!!!
Hello Members, Newbie here looking for a lil advise. I am computer challenged at times and especially in new settings like this, but will try to get it right. I was infected with Hep C in Viet Nam in the late 60's. I have never been treated with drugs for the Hep C. VA wasn't especially c...
Hi, I am posting because I am 16 months off Sobisvor, Daclatisvir and Riba. Now when I am ill I can still make it into work, over the last academic year I have only had 2 days off (I'm a lecturer) instead of the 2 weeks for each illness that I would have had to take off before. My life is so much better now and...
Hello, I need your help to associate things. I have finished a month ago Abbvie Trial Viekira Pack no Riba. I am genotype 1b, TT, F1, upon start treatment I had 1400000 units of virus. After 2 weeks 120 units. After a month below the possibility of detection. After 3 months no virus. 3 weeks after treat...
I was diagnosed to my initial disbelief back in early 2002 with Hep C. I was reckless in IV drug use with my husband who was infected and I was unaware. After 14 years, I've had very little problems with the virus progression but still did whatever I wanted in my life. I'm not anything but a social drinker s...
I realize this is open and many factors would change but in general I would like to know what you have been told regarding prognosis of your cirrhosis or in general. I am compensated but was told I have ESLD (End stage liver disease) so I am wondering if some Doctors consider any cirrhosis to be that. This...
I'm almost reaching a year since I began Harvoni Tx. I figured out my tummy problems but now I have out of control acne. Does anyone else have this? If so, what helps clear it away?
Sofosbuvir/velpatasvir, a forthcoming combination that effectively treats all hepatitis C virus genotypes, can be safely used with most boosted antiretrovirals for people with HIV and HCV co-infection, according to a study presented at the Conference on Retroviruses and Opportunistic Infe...
I have noticed that when I leave the forum and I click on the mark all as read because they have been or were older, that many come back highlighted as if there was a new comment and in fact there was not. I do clear my cache regularly to avoid any of those types of problems Has anybody else noticed this?
I have tracked down the thesis on SBEL1, but have not been able to read it yet. I do believe it is accessible to read, but I cannot figure out how to do so as of yet. It may still not reveal the Chinese herbs which make up SBEL1, however. See below for link to thesis. If someone can figure out how to read it, plea...
As a part-time California resident, I've been following the ongoing debate there over the cost of the new treatments. The final report from the California Technology Assessment Forum isn't due until next month. I expect that report will establish guidelines that California insurers will use in a...
I have been hep c free for 6 months now - I have cirrhosis and it seems like my bloating is worse - stomach gets HUGE! Any suggestions for bloating? Any medications I can bug my doctor about?
I relapsed one year ago after 8 weeks of harvoni... next month I start with some cruddy Marketplace insurance until I get medicare in 3 years I got a call from the Baylor Clinical trial folks in Houston and i could start a trial as soon as I want... the drug is Merck.... MK 3682B which is a combination of MK...
Hi everyone. Third day on Harvoni. Side effects none that I can feel, and daily activities remain the same. Exercise in the am, plenty of water, sensible diet (low in fat and dairy), and taking medication around the same time each day. There is nothing unusual to report. On another note, the support g...
My name is Yvonne and today is my 4th day on Harvoni. Hep C Geno 1b. I am hoping to not get cancer again ( liver cancer treatment march last year), get rid of low playelets(53), hypoglycemic episodes, digestion probs, brain fog and for once in 30 yrs have some energy. I haven't had pancreatitis and AF sinc...
Hi all, Much to my amazement my Doc did not order a HCV Quanitative. My Fibrosure is still showing F3. My AST: 30. My ALT:41. OK. Glucose is up over the limit by 2 points (Nothing new). Platelets have returned back down to 159. It has been 32 weeks since I have been off treatment. Did acheive SVR12. This is...
HEPATITIS C RNA BY PCR, QUANTITATIVE See notes below2650000 Reference range: NOT DETECTED Unit: IU/MLRESULT, HCV See notes below 6.42 Unit: Log IU/ml THIS SPECIMEN WAS TESTED BY THE ROCHE DIAGNOSTICS HCV REAL-TIME PCR ASSAY. THE RESULT GIVEN ABOVE IS THE NUMBER OF INTERNATIONAL UNITS (IU) OF H...
To all of YOU that oversee and participate in this Forum, I want to share my joy with all of you. Today, I heard the word, "CURED" when speaking to my doctor. Yes, I have achieved SVR12 using Sovaldi and Ribavirin for my Genotype 2 HCV. I am still in a state of amazement, the news is still sinking...
I have been supported, informed, encouraged and welcomed on this forum. This is a silent disease. It is a lonely disease that has a stigma that makes it a quiet fight will little information available generally. The point I want to make is that I don't post. I don't know much about the newest medicines o...
Hey everyone, I can't believe they gave me Harvoni pills today enough for 14 days. I took the first pill around 12 noon. No side effects yet, hope none in the future. I know you are all standing in support of me, and I am deeply indebted to your support and love you send me. Thank you I'll be keeping you post...
During my lifetime, I used to get mildly depressed on occasion, BUT since SVR and now I'm well over a year and still clear, I am staying VERY depressed (I have to stay obsessively busy not to notice the depression). Also, I used to sleep like a baby, but now I'm lucky to sleep 4 hours a night! This is no coinc...
After a 16 month wait for a re-treatment, I start tomorrow at 1:oo PM. I will be doing 12 Weeks Sof-Riba-Peg. I was hopeing (waiting) for a triple W/O Peg, But Doctors say this has the best SVR for 3a treatment experienced W/cirrhosis, so I"m going for it. Looks like a few of us type 3"s nee...
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