I am looking for anyone here who has completed a 24-week Telaprevir based treatment who was also placed on a lowered Ribavirin dose at some point. If this is you can you tell me the following: What was your Riba dose lowered from/to? At what week was it lowered? For how many weeks did it stay lowered?...
Hi, I started treatment a week ago. Incivek, peg, ribavirin. It's been a little tuff at times but hanging in. Would like to hear from others doing this treatment....
What is the criteria for who goes 24 or 48 weeks? My Google research indicates that you should be UND at weeks 4 and 12. But I seem to remember someone saying that your baseline VL had to be under a certain level? However I can't seem to find that info now. I've been planning to go the distance as my doc to...
I am wondering if anyone else is experiencing this. Since being on treatment my skin has lost alot of elasticity. I am only 31 and have stayed out of the sun for a while. I have also noticed many white spots on my forehead. I don't know if all of this is from this treatment, just happened naturally, or i...
ok. well ive told my work i have hep c. i work with youth, and id had a couple of more days off than i ever do, and couple of things happened, and long story short i felt i owe them that much. ive worked there 6 years and theyve looked after me. sooo. i told them i wanna talk, but in person. and i intended fully not...
Hi - sorry to make it a sort of catch-all title, but some things have come up. I'm type 1B, week 8 on telaprevir, pegasys, and ribavirin. Undetectable in week 4. 1 - I haven't had a biopsy, but based on everything else my Doc things I'm f3-f4 - a good amount of fibrosis, possible cirrhosis. Because of th...
Hi all, Just got a 2 week viral load, done by mistake by the lab. Now on week 3 of Peg and Riba, prior to starting victelis as well next week. Genotype 1b, cirrhotic, pretreatment viral load log 6.1 ( 1, 278,000). After 2 weeks went for usual FBC, E/LFTs, and they did a viral load as well. Very happy to get the...
I would love to talk to someone via chat online real-time, I need to talk about my sides, tx, expectations, everything and I kind of feel like my posts here are out in cyberland!
Brothers and Sisters, I have just gotten back from the doc and reviewed 2 weeks labs. I don't know I might break down, scream, explode, breath, cry or something. In two weeks of trible tx incevik labs went from ~5 million to detectable but <25. After all the years of trying....wow! I am in shock. I kno...
Hi. My Dr. is reducing Interferon to 90 and told me to wait an extra 3 days before doing the injection. My WBC is down to 1.5 RBC is also low 9.6 this week. Up .3 from last week. Starting my second week of 600mg Riba. Feeling pretty weak these days. Hopefully this will get things moving up. Hope all you guys ar...
My mother is a Patient of Hepatitis C genotype 4. she took treatment for 48 weeks with both Alfa 2b Interferon and ribavrin. She had an early viroligical response and her report was target not detected after 1 month in real time PCR test. After one year 5 months from the treatment now her latest report re...
I am fuzy on the sx of Procrit--actually I am just fuzy about everything. But--how does it make you feel?--just did the 1st shot yesterday--at the doctor's office. I made my nurse so happy & proud--she said I shoot like a pro. And I felt somewhat energetic when I got home--had a delightful evening (...
Hello all, Ive managed to contact my nurse direct today--- cant believe, my results are now undetected am so pleased. 15 months post tx. My nurse told me it must have been a false positive previously because the machines are so sensitive. I am a bit sceptical tho. has anyone had any knowledge of t...
I did not show any symptoms (although I never had much energy) when I was diagnosed as having hep c. Do folks that complete treatment feel like a new person? I'm in my 3rd week of tx and so far not many bad sx's. I'm geno 3, my biopsy report says grade 1 inflammation, stage 1 fibrosis. i know my past has come ba...
We got a weird call from the liver doc today. My hubby is recovering from a severe allergic reaction to the Incivek that the liver doc mistook for congestive heart failure. But the primary recognized and treated it, and frankly we just chalked it up to a new med, and lack of experience. Today hubby go...
Well got a call from my nurse today with a report on my numbers AND the reason I am feeling better is my TSH has finally dropped and is getting much, much closer to normal. It is truly amazing how much better I feel--I have energy, my brain has rejoined my body and the two are actually getting along. Found...
well ive had such a crap week last week. sleeping a lot. feeling pretty down. well today a good friend dragged me out, and we went fishing.. didnt catch a thing, but had a good day at the beach... im beat, but hey, i wouldve been beat anyway, and it was just good to get out in the wind and sea air, and just 'be'....
I have found in these early weeks that the absolute best weapon I have against beating this disease is staying mentally positive! Also doing the recommended things: drinking heaps of water, compliance with medication, talking with trusted others, eating as best as possible, mild exercise, and ju...
This is probably more of a rant BUT... went to re-order meds & the speciality pharmacy is oops insurance company wants prior authorization. HUH??? didn't we do that??? Isn't the tx for 28 weeks & why at week 12 would they need authorization again?? I am out of meds at the end of the week and reall...
My hemoglobin dropped another 5 points this week, down to 93. I am starting week 9 today. The top Dr in all of Sweden called me to discuss my concerns about lowering the dose. He said with the new drugs (Incivo/telaprevir) the reduction of Riba is not an issue in SVR for rapid responders. He seemed very cl...
Joined yesterday. started tx day before. I can't stop logging on to read what people are posting. I get comfort to see that sooooo many good people can support each other through this rather nerve racking experience.
Wow!I didn't realize I would get so emotional about this... but I gotta tell ya, I was weeping like a baby after the phone call from my nurse... "virul load is 0!" I've had this virus for 30 years and it has ruled my life for the past 8 years, and now it's gone. Wow! Wow! Wow! Hell Yeah, M...
Feeling tired and depressed. I can't believe I am taking medicine that makes me not feel well. I get the point....I really do.... Just feeling sorry for myself and No one around me has this or truly understands. Had a bad weekend.
HCV Team, On 3rd week of Incivek Tx. Go to doc on Fri hopefully he will have the two week pcr results. As all of us know, I am playing the "what if" mind game and preping myself for lab results in either direction..... I know it is very early in the game, but can any of my hcv/incivek brothers and s...
So I just wanted to share this awesome news.. My uncle has hep c type 1a as do I... He got into a clinical trial at a hospital near our area.. They are still using rib and peg plus either bocepavir or a trial drug it starts with an m right now.. 2 months in and my uncle has viral load! He has had this v...
Im sleeping through alarms, cant drag myself out of bed to take my applesauce and Vitralis. I was undetectable. I had no bad blood content results like super anemic or worse. I wonder how this will affect my next bloodwork, I couldnt get out of bed and beg a ride to the lab this week. Im going to do somethin...
I have itchiy problem. It keeps from falling asleep. I couldn't fall asleep, it keeps me awake for whole night for several times already. I put itchy-relief lotion on, but it didn't help either. Do anyone has any solutions? Thank you very much for any advice or sharing your experience. Katie
just did shot 12. usually a slight sting but nothin to worry about.. this time tho, it hurt a bit and it bled when i pulled the needle out, and looks like gonna be a helluva bruise... just sayin.... buggar...
I went to the doctor this morning to visit with the nurse practioner. She said my labs from last Monday look real good, and specifically my hematocrit was up to 40. This is almost normal for a regular guy. So before I knew what was going on I blurted out "So when do we up the ribavirin dose?" She w...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
like a baby after the phone call from my nurse... "virul load is 0!"