im back iwas on the forum about a year ago awaitint retreatment but they put me off in favour of waiting for the new drugs (inneffective ahgainst 3a) im a 3a non responder and had 24 weeks long time ago now theve put me on 48 weeks of interferon and ribas better luck the second time round (been awaiting this...
Just had to share that I took my last dose of ribavirin this morning and I am officially done with treatment. It has been a rough ride, but I am hoping the results will have been worth it and I am looking forward to getting my red and white cells back to normal. Althought I wasn't very active on...
New to site - my sister (LanaiSurferGirl) started same treatment in November, I started in February. Both contracted from mother at birth - both previous nonresponders to combination interferon. I have been on incivek triple tx since 2/7. Had my 4 week labs done on 3/8 and still no results. Anyone...
this is a post just to vent.. took the day off work. got hold of all my kids by text. theyre not worried, its a stormy rainy day anyways. ive been so damned tired this week. ive come home from work and slept. woke up. had a tiny dinner, watched a bit of tv and gone back to sleep on the couch. this aint living. i fe...
Got my blood work in from my week 12: I'm not too anemic My WBC are a little on the lower side (I guess from the low end they were at at week 8 ish) My enzyme lvls are great and my Viral Load is clear (Still UND) YAY :) The depression has kicked in after 11-12 weeks and am being put on Celexia. Physically the last t...
Hello All! I am into my third week of treatment and have started to go off food a bit - which is TOTALLY out of character! I loooooooooooooove cooking (and eating usually ) so it's a bit of a bummer when the w...
hey is there anyone who is on 21st injection?hows everythng going..i lost my hairs.back bone hurting.no appetite and extreme fatigue...tcs all please keep updated
I had a biopsy yesterday in hopes of being Stage 3 or less so I can go on a trial for 7977 and the BMS drug ( forgot # ) and maybe riba. Several people are starting it or have started this week. If I am above stage 3 I am not elligible for this trial. I will look for something else then. I was on Triple Tx w/telap...
I have tried all the creams and bendryl orally makes me tired - any suggestions for this itch? genotype 1 week 4: 3 log drop to 5000 week 8: waiting for results. -- Edited by JLynch30 on Thursday 15th of March 2012 03:28:50 AM
Hello everyone i m on riba and interferon almost 4 injections to go..feeling fatigued asusual,,but cant smell or taste anything...and appetitie is no more...is it normal to loose senses in this tx...my brain is already lost...waiting fours help..take care stay blessed bye
I had taken my Vic at 10PM and at 11;30 my riba was due, I put the wrong pills out and took 1 before I realised my mistake. The vic help line said its fine. Scary.
its coming into winter over here in nz... my nurse said i should get a flu shot coz my neutrophyls are low... i never usually get one.. even tho im asthmatic... i guess i should do as they say...?? anyone got any input on that... and secondly, um brain fog what was i gonna say, ummmm.... oh yeh i know they sa...
Disappointed. lab results show I don't respond to tx. (no 1/2 log drop in VL which means I don't respond to interferon. Dr. advised I stop. :( but I will wait for the new nucleotide drugs in the pipeline, or get into a study. I know several pharmacutical co. are developing new stand alone drugs for tr...
Hello, I started tx last Friday and ended up in hospital a few hours after my first PegIntron injection. Worst reaction my Dr said that any of her pts have ever had......always love hearing stuff like that, lol. Anyhow, I was hoping you guys could tell me which things you check for the most with your bl...
Today got to see the PA--she is great and I get to start Procrit--numbers are starting to drop. Yea more shots! My thyroid is continuing to climb-- up to 17. The PA is calling the endrocryoogist (sp??). My dearest friend said she thinks you should be dead with thyroid at 17--she's always good for a laugh...
Hey guys, just wanted to share that 4.5 weeks labs are in and YES, it's undetectable, little lower WBC levels, but RN says it's not concern. Who knows any data/stats on tx success after 4th week UND? Thanks all
i have worked in the same job for years. i hate the monthly database bs but i do it. this time round, it was late. didnt care. had boss on my case. didnt really care. had to stay up late and do the job, late, made it barely before a warning. never had stuff like that before. i dont really care. got a bit narly, wa...
Well I have been off tx now for 5 months and I actually finally am feeling back to my old self. Thank goodness however I had a couple of what I have been told is gallbladder attacks back in Oct. I was told after my liver ultrasound that I did have gallstones. My bloodwork is really good but I was wonderin...
Just to update and thank everyone who helped with my husband stopping the Incivek. We saw the doctor yesterday, and first she told us that the rash was the incivek, but the rest of his symptoms (short of breath, exhaustion, and fluid retention) was either congestive heart failure, or acute liver fai...
Many people on HCV therapy report that on days when they drink plenty of water there is a marked decrease in the side effects compared to days when they drink little or no water. The benefits of drinking water for side effect management include: - Water flushes out wastes, transports nutrients, and re...
Hello everyone, Newbie here... I just purchased some Pancreatin digestive enzymes for the lipase in it and started taking it this morning.... but I was somewhat alarmed when I noticed that one of the enzymes listed was "protease." Does anyone know if this the same enzyme protease inhibi...
Here is an update on progress. I am involved in a clinical study using Pegasys, Ribavirin, Victrelis and Incivek. Here is a viral recap. When I was screened for the study my viral load was 9,170,000. The day I started tx it was at 5,360,000 at week 1 it measured 75 and at week two <25. Week 4, 8 and 12 have...
Hi,I work for (deleted) a marketing research company, and we are conducting a paid opinion research study with Hepatitis C patients and caregivers. This study will take place in New York Cityin August of 2011 and we are offering a generous honorarium for participation. If you are interested, ple...
Hi folks, I signed up here back in September at the beginning of triple TX with Victrelis. I am 65, reasonably good health, with Genotype 1. VL 2.5 million. It has been difficult for sure but I am making my way through this. The first four weeks of treatment was Interferon and Ribavirin only. Blood test a...
Hey guys, it's been my 4th (lead on) week of tx, and cant say that sx have been bad, except that I cant fall asleep until 5 am then can't get up untill 1-2pm felling crashed. It gives me feeling of wasted day. thankfully my work is 4pm-12am so I can afford that luxury. I was just wondering if anyone experienc...
THIS FORUM, IT'S OWNERS, ADMINISTRATORS, MODERATORS AND MEMBERS DO NOT AT ANY TIME GIVE MEDICAL ADVICE AND IN ALL CASES REFER ANYONE HERE TO SEEK APPROPRIATE MEDICAL ADVICE FROM THEIR DOCTOR.
) so it's a bit of a bummer when the w...