Just to update and thank everyone who helped with my husband stopping the Incivek. We saw the doctor yesterday, and first she told us that the rash was the incivek, but the rest of his symptoms (short of breath, exhaustion, and fluid retention) was either congestive heart failure, or acute liver fai...
Many people on HCV therapy report that on days when they drink plenty of water there is a marked decrease in the side effects compared to days when they drink little or no water. The benefits of drinking water for side effect management include: - Water flushes out wastes, transports nutrients, and re...
Hello everyone, Newbie here... I just purchased some Pancreatin digestive enzymes for the lipase in it and started taking it this morning.... but I was somewhat alarmed when I noticed that one of the enzymes listed was "protease." Does anyone know if this the same enzyme protease inhibi...
Here is an update on progress. I am involved in a clinical study using Pegasys, Ribavirin, Victrelis and Incivek. Here is a viral recap. When I was screened for the study my viral load was 9,170,000. The day I started tx it was at 5,360,000 at week 1 it measured 75 and at week two <25. Week 4, 8 and 12 have...
Hi,I work for (deleted) a marketing research company, and we are conducting a paid opinion research study with Hepatitis C patients and caregivers. This study will take place in New York Cityin August of 2011 and we are offering a generous honorarium for participation. If you are interested, ple...
Hi folks, I signed up here back in September at the beginning of triple TX with Victrelis. I am 65, reasonably good health, with Genotype 1. VL 2.5 million. It has been difficult for sure but I am making my way through this. The first four weeks of treatment was Interferon and Ribavirin only. Blood test a...
Hey guys, it's been my 4th (lead on) week of tx, and cant say that sx have been bad, except that I cant fall asleep until 5 am then can't get up untill 1-2pm felling crashed. It gives me feeling of wasted day. thankfully my work is 4pm-12am so I can afford that luxury. I was just wondering if anyone experienc...
Okay, so I see that the meds make everyone have different sx, but I am wondering if people who have done almost the whole year have had an easier time in the summer or the winter? Stupid question, but the reason I ask is because I tend to function better in the summer in general. Even though Texas heat is mi...
I was reading here about the problems with ins etc on the topic today. I have no ins so it all comes from the manufacturer. When offered I selected my home for my first deliveries, and now tried to change that. Both the manufacturer of peg/copeg and vic told me, Im crazy that they do not ship to walgreens. I...
I had a pretty bad rash (back, sides, stomach area) from triple TX (Victrelis), got some cream prescribed by my liver doc, and it cleared completely away in 3 days! It is: Triamcinolone Acetonide Cream, USP .5% Just a little 'dot' on each spot twice a day and it was gone. Went through 1 15g tube with 5 r...
Talked to the Dr. today after the rash spread throughout Hubby's body, and legs are swollen and weeping slightly, hot to the touch. She stopped in the Incivek. We are a day short of nine weeks. I'm so worried that now it won't work, having regrets that I even called them. Any one know the success rate...
Hi all! I got the results of the 4 week VL test today... it is less than 15. I was hoping for UD but this seems pretty good... I don't know... Hope all of you are doing well. So far this treatment is really kicking me hard. Peace all!
After the horriffic 1st shot side effects , I bundled up, took advil, and put out the extra blankets on the bed, but I didnt have any side effects except for sweating. Instead of my leg, I went into my lower left stomach. Is it possible that I somehow missed, and didnt get my dose? IM FREAKN OUT. OH NO, OH NO...
Hi - do you use BioPlus and have a problem getting your meds yesterday, Friday, 3-9? I didn't get my meds, they hung up on me and, I'm pretty certain, out and out lied. I can check that last part later. I wasn't abusive or use profanity. I'll keep you all updated.
I know everyone struggles with this but has anyone found anything to help? He is so miserable. Rash has spread on entire body, and burns. We have tried creams (OTC) and some prescription, only Boudreaux's butt paste seems to help slightly but not with the pain. I'll try anything this weekend. He's det...
Hello everyone! I hope everyone is doing well. My last shot is this Saturday so I'm hoping for a smooth one. I love reading these posts even though I dont always post it makes me feel good there are people out there killing this thing too. I can read on my phone so it's easy. I do have one question: back pain....
HI IS ANYBODY EXPERIENCING BAD DAYS AND GOOD DAYS ? ARE THERE SOLUTIONS OR ADVICE. THIS IS A DRAINING TREATMENT BUT KEEPING POSITIVE AND STANDING BEHIND MY MAN!
*Caution Disclaimer* If you are anxious or easily influenced by bad reports or afraid of biopsy you may wanna skip this one. I went in everything seemed to go well during the procedure the Dr took 3 samples as is standard and then I went to a room to recover and wait a couple hours...all was well. UNTIL...
i am on interferon n riba for 6 month and 5 more weeks to go and i had longhairs witch i am loosing preatty fastly..i am scared that will i be bald or what?did anyone experienced same...tcs
...'In advance of NICEs final appraisal of the 2 new drugs Telaprevir and Boceprevir, The Hepatitis C Trust is looking for people in the UK to talk to the press or policy makers about their experiences with hepatitis C treatment, especially any of the new treatments. Have you been, or are currently, o...
Dear fellow sufferers, fighters, winners, undecideds, supporters and any combination of the above! I have been reading, reading, reading about Hep C for a looooooooooong time from many sources and this forum has been a great help! Starting treatment has been a waiting game for me that I'm sure man...
Statins, a class of drugs prescribed to lower cholesterol and reduce the risk of cardiovascular disease, can interact with certain medications used to treat HIV and hepatitis C virus (HCV) potentially leading to serious side effects, the U.S. Food and Drug Administration (FDA) warned. http://w...
I started pegg/riba last week, will be starting victrellis at week 5. last fri nite i did the shot and I was fine. been having meningitis symptoms all week, but i think it started with the riba friday morning before the shot, or maybe just the headache. it went away with motrin, but I know they were men...
Hopefully I'm doing this right. My husband is almost through week 7 of the triple therapy. The side effects (itching/tired/grumpy) seem to be getting worse and worse. I'm feeling pretty helpless. Glad to see there is a place for support folks. Does it ever get better?
What about this rash on my face that looks like little pimples and itches and burns? Its over and below my lips for crying out loud and Im in sales. I look like I have the freakn chickn pox. The back of my neck started itching yesterday and I have (had) hair past my shoulders, today I had it cut short short to...
Hello everyone. This is cayohueso 1 calling on all of you from the southernmost city in the continental U.S. Thankyou,Thankyou, to all of you especially those who responded to my call for help after my first shot. I do my shot on Sunday and yesterday( Thursday) when I woke up for the first time, I almo...
For some time now it has been my understanding that have I had cirrohsis, however, just today my case manager advised that my liver is inflammed but no cirrohsis is evident... My labs are within "normal' range", and I've had a couple of ultrasound scans, but Ithe doctor has said that the...
I took my Copeg at 11am and along with a sleeping pill my Dr gave me. I took my first dose of Victrelis at midnight. First off the capsules taste aweful. I had eaten about 2 hours before taking it, and right before actually taking it I had instant oatmeal. I went to bed at 12;30am and around 1;15am all the s...
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Hope all of you are doing well. So far this treatment is really kicking me hard. Peace all!