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dual hospital register
(Preview)
Do most of those that need a transplant try to get on the list at more than one hospital? My transplant Dr. is more or less a recruiter for Swedish (we are on the east side of the state). Had MRI on Mon. the 7th and never heard from him so I called on Friday, was told I have HCC...WOW! can't believe they never ca...
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boxers
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7
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1826
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epclusa -fever?
(Preview)
I am on day 45 of epclusa with no real side effects. However I have developed a low grade fever - this is Day 3 of it. don't have any side effects of a virus... Just fever ranging from 99 to 100. I have not seen this as a side effect anywhere but wondering if anyone else has experienced something similar? If it...
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BeHappy44
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1
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1783
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Just started treatment
(Preview)
Hello everyone.
I just started treatment on Epclusa and took my first dose a few minutes ago. I have lots of water ready and I'm pretty excited and nervous. Those pills are huge and I've always been horrible at swallowing pills but it went down surprisingly easy. The shape probably helps with that alo...
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CodeNinja
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25
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2924
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Be careful what you wish for...(Epclusa bonus sides)
(Preview)
So last week I was in here musing over how I was disappointed that I was still fairly constipated despite the "promise" of a liberating side effect. As my second week of Epclusa got underway, I was almost back to my old self. One glass of water, 2 cups of java and baboom. Well, today, I felt so happy that I h...
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LamontCranston
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6
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1713
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my Doctor at the the liver Institute emailed me-on a Sunday!!!
(Preview)
just checked my emails for Sunday and my doctor had emailed me the following: "Hi, just saw your most recent labs and wanted to let you know that your viral load is not detected!This is exactly what we want!! Let me know if you need anything or have any questions. Continue taking your meds!!! Have a gr...
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gabbiegal
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9
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1294
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My doctor's visit today
(Preview)
ok, I'm going to do my best to post in a way that makes sense. I indeed did ask for a got my Baseline report and the results of blood test done at 3 weeks (Monday of this week) here we go: Quantative VL 3 weeks ago 6811894 ALT 36 AST 45 Quantative VL today 41 ALT 7 AST 13. I am Soooooooo...
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gabbiegal
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9
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1468
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DENIAL OF HARVONI - THE DUMMIES GUIDE TO APPEALS!
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1 2 3
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(Preview)
I am in the process of appealing the denial of Harvoni from CDPHP (CHP) here in NYS. I initially thought my Dr did that but unfortunately it's all up to me. I will need supporting doc from my Drs but I do all the legwork. I can guarantee, I won't just be limited to the form there will be several attachment...
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shadow10cats
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117
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20370
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MY HARVONI TREATMENT
(Preview)
well i have 7 more pills to go and ill be finished with the first 4 weeks of treatment, then ill get my next 4 weeks of medication... so far i have had :0 side effects .. i go see the disease specialist doc on the 30th of this month (fri) i am taking 325 MG of iron pills 3 times a day due to the fact that im seve...
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justagirl
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31
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3805
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Riba Rage - A Personal Story
(Preview)
Since we have the displeasure of the occasional inclusion of Ribavirin in our treatment regimen, I wanted to share a story I found. This comes from a woman that was dealing with personal hardships as a result of the all too real side effects of the drug. To those that are on this life changing drug, your s...
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Tig
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0
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1000
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Happy Harvoni Birthday to me!
(Preview)
Howdy folks! Wednesday, 14th June was my celebrated half century mark!! Woohoo!!, I even won a prize at work that day. But the best prize came a day late when I got a call and was told I have been approved for HARVONI treatment at the whopping cost of a 5$ copay (due to coupon). Shipment should be here on Mon...
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Tigerlily
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17
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1542
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First Timer
(Preview)
Hi all. First time on the forums. I have been on Epclusa for 5 days. I wanted to know if anyone has experienced sever changes in taste. Things that I am accustomed to eating and drinking taste dramatically different and unappetizing. I am also experiencing some gnarly diahrrea and wondered if an...
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texaslady
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9
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1588
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Epclusa Treatment
(Preview)
Hi everyone, Im 35 and about to begin Epclusa. I'm very happy to finally begin treatment. I've had this condition for over a decade. I've read about and watched videos regarding the side effects of this treatment, but Id really like to speak with some people who have taken or are currently taking this...
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Cleanse
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10
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2551
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New Member - side effects so far
(Preview)
I am on my 4th day of Epclusa - I felt alright until the middle of the night last night. Terrible diarrhea, major heartburn, stomach pain. I have always had stomach acid problems, but it was under control with Prevacid. Cannot take Prevacid with Epclusa, so was switched to Famotidine. Last night...
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Nancy
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8
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1936
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Just started week five Zepatier..BUT
(Preview)
Happy July 10 everyone! I know it's not an official holiday, but it's Monday so it's a start to a new week I just began week five on Zepatier BUT here is my dilemma: Last Monday, 3 July I only had one pill left of week four, I go to the doctor where I assumed my new box was waiting I get there and I'm told i...
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Meow76
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3
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1206
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The battle commenced!
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1 2
)
(Preview)
Just took my first Epclusa after staring at the box on and off all night. My special alarm to remind me went off at 7.50 am and I nearly cried as I opened the bottle. Great big tablets to swallow lol but I got it in one without gagging cause I've waited so long for this moment. A little wave of anxiety but mostl...
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Jaggles
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73
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4665
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Hello to all !!!
(Preview)
Wow it took forever but I will Pick up my Zepiter on 7/5/2017 . Sorry I have had no energy to post been workin 55 hours a week @ 28 degrees then the 5 mile bike ride @ 90 degrees it really kicks my ass . So I can't wait to start this battle . I think I will take it after work and then sleep ??? Any thoughts ??? I do h...
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Rick
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3
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982
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Peeking out of the closet -on Zepatier
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1 2
)
(Preview)
Hi, I'm Christine. I've been hiding in the closet of Denial with this dragon for 32 years. It's been so spooky in there that I'm coming out. I snuck to the out of town Hep C clinic incognito (Ha) and was quickly approved for Zepatier based on my F3 fibroscan result and cryoglobulinema. I think that means...
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MyMallards
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86
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10306
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A Full blown Zepper
(Preview)
I just took my 1st ZEPATIER pill a few hours ago. So far so good. Honestly, I'm feeling a little drowsy, but I'm always tired. That's the next health issue I need to tackle head on. I swear I could drink the strongest coffee ever then take amphetamines THEN fall out for a six hour nap- like I didn't miss a be...
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Meow76
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5
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1366
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All Aboard the ZEPATIER Train 12 or 16 weeks w/wo RBV
(Preview)
All aboard! Hello? Heeeeellllloooooo? Oh boy this is going to be a long boring nobody to talk to or anything kind of ride. Hello? Booooooooooaaarrrd! <sigh> Ok I am wearing my Pioneer hat here. Let's do this. Onward upward and tallyHo gonna kill me a lizzard! JimmyK
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JimmyK
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39
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5491
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Hello From An Old Fellow Warrior
(Preview)
Hi All... Just though I would check in as I went to see my hep doc for (hopefully) the last time yesterday. Last year I had a 3 month post Fibroscan that registered as F2, and my Fibroscan from 2 weeks ago registered as an F2 again (one year apart). She said and I quote "you can live 300 years with an F2" ... lol...
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Gracie
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7
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1269
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7 Days into Harvoni... unexpected side benefit
(Preview)
Hello again, doing well here, and found a great side effect almost immediately. My chronic sinus problem dried up! I can breathe through my nose again and am having fewer headaches. Yeehaw! I am filling that gallon jug of water first thing in the morning and draining it by midnight, and am adhering...
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SuzieLu
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1
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1075
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Harvoni Newbie
(Preview)
Hello everyone: I am so happy to have found this forum. Thank you for making it available. I was a full blown addict and alcoholic in the 80s, 90s, all the way to 2005. I suspect that I got the Hep C virus in the 80s when I was insane and sharing needles with other people. I recall that over a few weeks (I was 19 y...
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moltten
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8
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1566
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Epclusa First Week by: Ditman
(Preview)
First I have to say I was scared sh!tless when I was diagnosed with HepC #2. I've never had any blood transfusion or did hard drugs, smoke a little weed here & there, but never injected any foreign objects into my body, nor am I between the age it suggests to get tested for., and only been with 2 partner...
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Angel223
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2
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1293
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EPCLUSA Hep C drug
(Preview)
Been on EPCLUSA for 2 months my viral load has fallen from 5044467 to 59, fantastic news one month left and it's expected to drop to below 12 % which is below the noticeable detection rate I've experienced no side effects or discomfort during the 8 weeks I've undergone therapy prognosis expected to be c...
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Steampunk
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0
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1138
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25 days down
(Preview)
i have been on Harvoni for 23 days and no major issues, just some tiredness on occasion, some very minor ringing in ears and a little brain fog but very infrequently. No issues with working or sleeping. Feeling water logged but thanks for the advice on a gallon per day. I was a little concerned about sta...
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BikerMo
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5
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1293
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Still Detected
(Preview)
Got my first bloodwork after four weeks. The nurse made a mistake and ordered a genotype which I already had done instead of the viral load. Doc said well I know the virus is still there otherwise the genotype would not have shown up. Most puzzling is my enzymes didnt go down. I went back and had another bl...
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RainyJ
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13
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1570
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Riba dose going up...hanging in there.
(Preview)
Howdy, ho. Just checking in. I'm in my third week of Epclusa/Riba. Started treatment 2/10/2017 with reduced dose of Riba at 600 mg/day and yesterday upped it one pill to 800 mg/day. My Monday labs: Pretreatment: 2/7/2017 Total Bili: .7 AST: 133 ALT: 162 Alk Phos: 178 Platelets: 108 Posttreatment:...
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BetterLate
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18
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2727
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On my way to Club Zero
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1 2 3 4
)
(Preview)
Epclusa APPROVED! I'm starting therapy tomorrow Whew..it's been a bit of a trek to get to this point....requesting approval for S/D which was approved then the game changed once Epclusa became available. With all the paperwork, lost paper work at the insurance company and simply sitting and wai...
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Ruby Red
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152
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12994
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Epclusa
(Preview)
Hello I am new here. I have hep.c 2b fo about 40 years I am 55 years old. My liver is normal the cyberscan could not dedacte any liverdamage. Myliverparameters are gpt i 38 ggt 29 and got 25. I do not have the result of the last viral load but its been about 2 millions. I have been on epclusa for three days. Y...
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Dalila
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3
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1486
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Bad side effects from epclusa
(Preview)
Hello my name is christina. I have been on epclusa for 6 weeks and I am having very bad anxiety and depression and insomnia. I want to make it through this but I am at my breaking point did anyone else experience any bad side effects like mine.
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Ineedsleep
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8
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4455
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