Hep C Discussion Forum

nigel2671 · nigel2671

Hi - i have had Hep C running around my body for around 30yrs, after having tried both interferon ribavirin and telaprevir (both failed) i am now finally looking at being clear of the virus after 6 months Harvoni treatment. At present i am 4 months after treatment and still SVR. Due to the Hep C, i now a...

hepcure · hepcure

Your message was deleted. It violates our forum guidelines and will not be allowed. -- Edited by Tig56 on Friday 9th of September 2016 09:47:43 PM

Sydhanrahan · Sydhanrahan

Hi all, i just wanted to let you know that I recieved my golden pass yesterday. POST 12 SVR. it seems like half a life time since I joined this forum last December and it probably would have been half the time I had left on this Earth without treatment. What a journey - I feel like I just stumbled out of a boxin...

Tig · Tig

I have been reading various discussions, here and on other forums. There seems to be a lot of conversation going on regarding problems with joint and muscle pain developing during and following treatment. That concerns me and I want to provide a single location where our Sovaldi protocol patients c...

doodaman · doodaman

Hey All, Jus flew to Bangkok to get my Viral load tested and it came back non-detectable! My understanding is that according to the folks that believe EOT + 12 is the valid time to test, then i do believe I am cured! Its a good day to be alive boys and girls and thanks to TIG and the crew for all of your support d...

JimmyK · JimmyK

Greetings, Results just came in and Carolyn is UND at SVR12. All blood work is within normal range. Highlights: Platelets are climbing were at a low of 147 and now 182. ALT is decreasing nicely from a high of 68 now leveled at 17 AST is also on a nice downward trend. From a high of 69 she is now at 22. Bilirubi...

K8 · K8

Hi Friends, Wonderful news, I saw my doc last week, I am still undetectable and taking it one day & one blood test at a time. Last pill was 7/17 Energy is returning although I find myself limiting a lot of excitement (being with lots of friends). Hit a wall at the end of the day. My ND (Naturopathic D...

bubble · bubble

Hello to everyone. I have not posted in awhile and thought I would post. I got my 60th birthday present yesterday. Still undetected after 13 months off treatment! I had my Fibro scan and scored a 3.7 I was walking on air after seeing my report. My platelets are 153. AST 28, AST is 34. Absolutely thrille...

Bills · Bills

IM back Never really left At some point I misplaced my password For the Bills Logon A few days ago My brain sparked and said try a new name DUH and Tigs Was able to resurrect my Bills Profile Yes that's how bad brain fog can be. I was still bouncing around in a funk about why the circulation in lower leg...

Libnic84 · Libnic84

i did the original tx. Then I did boceprevir and it came back. And 2 years ago I finished harvoni wit's interferon and ribivrin. I've been undetected since and last test was undetected in March. I'm not high risk. I don't use drugs or any other high risk activities. Found out I was preg. Got a viral l...

hrsetrdr · hrsetrdr

...was actually yesterday, the 8th of August, but I debated as to whether or not it would be significant to mention, since my "one year" labs won't be done for another 3 weeks or so. However, I thought I'd post the rest of my one year Report Card: The good 1. I''ve been virus free, at least as o...

Steve76 · Steve76

I only posted on here a few times usually when I was freaked out. I did read the forums to try and get a better understanding of my treatment and the disease. I was on a 24 weeks treatment regimen with Harvoni, my genotype was 1A, and my Fibroscan score was 14 or 16 (have to check) done last September. I di...

Pablito · Pablito

Hi all There seems to be more and more people on the forum starting Eclupsa and I'm am just about coming up to 12 weeks post-treatment so I thought I'd start a thread, as I was very curious before I started as to how others felt post-treatment. One caveat: I was on an 8 week trial of Ecplupsa plus a 3rd drug (V...

nurschic · nurschic

Did the harvoni treatment. Was undetected at end of treatment and at 6 month post treatment. Here it is 1 year later and HCV RNA is detected but is <15. Now what! Does this mean ots a failed treatment? Im really freaked out and waiting to hear back from my doc.

Shadowfax · Shadowfax

Phone call August 11, 5:59 from my NP - verbal UNDETECTED My wife was the first to know and my friends here are the second @ 6:11 since you got me through this journey. I am at a loss and feeling emotional now but I will post again tomorrow. Thank you for everything. SF -- Edited by Shadowfax on Thur...

mallani · mallani

Hi guys, It's been a while since I posted. I had my 6 month F/U Ultrasound for HCC last week. I've had the same Sonographer for 10 years so she knows my liver well! Using the latest GE machine and a new 8mHz probe, I was horrified to see 2 lesions in segment 8. One measured 13mm and the other, 8mm. Both were ova...

bassetgirl · bassetgirl

So, I'm SVR, ended treatment July 2014. In March 2014 when I was diagnosed my platelets were 77, stayed in the 60's for the past 2 years, but according to test results yesterday they were at 59. I see my hepatologist next Thursday and will talk to her about this, but I have to admit I'm feeling a little an...

2willy · 2willy

hay there hope all are doing good, been a while and yup still single, still have two dogs but they are near their ends getting up there, this is first summer that got almost all stregth back, t

Shadowfax · Shadowfax

Well yesterday I had my lab work done and got some partial results that make me feel positive. It will take at least 2 weeks to know my C and B Status but my general numbers are good. I have referenced my last two draws as well. EOT 5/2/16 ALT 35/ AST/25 ALP 68 EOT +5 6/7/16 ALT 28/AST/21 ALP...

TeddyTrout · TeddyTrout

Well all it seems I'm done needing a liver specialist after 16 years of dancing around with 3 different treatments and a host of side affects from the disease and the treatments. I had a FibroScan last month and I'm a 0,1 I was a 3,3 before my last treatment of the dreaded triple combo of 48 months. I I just h...

K8 · K8

Hi friends, I am having a huge celebration tonite (sitting in my pjs with the dog & cat on the couch which has become my all time favorite thing to do). Just took the last 2 Riba pills...I was hoping to somewhat breeze thru the last week, but, a darkness and a sadness has been constant. I live in Dallas a...

lonewolf · lonewolf

Just got my one year viral load results in. Not detected just as it was at 4 weeks and every other time I was tested. Great stuff that Viekira Pak. And my viral load was 21.8 million at start of treatment. Sounds like a cure to me!

Scruffy · Scruffy

Just had my blood work come back. Still held my breath while I scrolled down even though its been 2 years. HVC NOT detected!!!!!!! AST 16 ALT 9. Did a little happy dance. wohoooo!!!

Linuxter · Linuxter

Been waking up with headaches in the morning. Also quite irritable and a little nauseous. This has been happening for the past week, maybe two. 2 ibuprofen and a cup of coffee seems to kill the headache and irritability and a light breakfast helps the nausea. I'm still drinking water, not as much as whi...

Linuxter · Linuxter

Hi All, Just got the news ... (Message below is from my Infectious Disease Doc's Nurse) "Hepatitis C RNA PCR Quant (07/06/2016 10:06 AM) Component Value Ref Range Hepatitis C Quant Not Detected <=15 IU/mL Congratulations! Sally has not seen this yet, but she when she does she will tell you that yo...

Zlikster · Zlikster

just got my PCR EOT+12w result today, undetected! Now, i will again lay low and won't celebrate yet, since my hepa told me to do EOT+24w PCR too. A big thank you to all the folks on this forum for all the help and support! And of course a BIG thank you to chemist Jeremy L Clark for inventing a wonderful molecu...

Tig · Tig

Let put our hands together in prayer and applause for Brother Jimmy (with a Y) K. He has reached EOTville! Time to disembark and get ready for the final leg of the journey. SVR is beautiful in the Fall.... Pack your bag, your train leaves today!

Sydhanrahan · Sydhanrahan

Hey all, here I am!!!

i wrote such a long post last night asking for help with my wardrobe choices and wondering where my mates all gathered in this one horse town - and then lost internet connection. So I've done a bit of basic freshening up in the Ladies at the station and am now staggering o...

Midnight · Midnight

Just got the news and am over the moon. Still have a few aches in liver and spleen area but hopefully its on the mend!

Observer · Observer

Yay Still virus free. Alison

Topic		Started By	Replies	Views	Last Post
	Achieved SVR - when do i tell benefit people (Preview) Hi - i have had Hep C running around my body for around 30yrs, after having tried both interferon ribavirin and telaprevir (both failed) i am now finally looking at being clear of the virus after 6 months Harvoni treatment. At present i am 4 months after treatment and still SVR. Due to the Hep C, i now a...	nigel2671	7	1466	Sep 20, 2016 by Pablito
	Never Mind (closed) (Preview) Your message was deleted. It violates our forum guidelines and will not be allowed. -- Edited by Tig56 on Friday 9th of September 2016 09:47:43 PM	hepcure	0	1004	Sep 9, 2016 by hepcure
	Even the finish line is complicated (Preview) Hi all, i just wanted to let you know that I recieved my golden pass yesterday. POST 12 SVR. it seems like half a life time since I joined this forum last December and it probably would have been half the time I had left on this Earth without treatment. What a journey - I feel like I just stumbled out of a boxin...	Sydhanrahan	46	2226	Sep 9, 2016 by Cinnamon Girl
	After Sovaldi/Harvoni Treatment (Preview) I have been reading various discussions, here and on other forums. There seems to be a lot of conversation going on regarding problems with joint and muscle pain developing during and following treatment. That concerns me and I want to provide a single location where our Sovaldi protocol patients c...	Tig	26	3682	Sep 9, 2016 by singsong
	EOT + 14 SVR - Yeah Babyyyyyyyyyyy (Preview) Hey All, Jus flew to Bangkok to get my Viral load tested and it came back non-detectable! My understanding is that according to the folks that believe EOT + 12 is the valid time to test, then i do believe I am cured! Its a good day to be alive boys and girls and thanks to TIG and the crew for all of your support d...	doodaman	12	1631	Sep 5, 2016 by RAGDOLL
	Update on Wife (Preview) Greetings, Results just came in and Carolyn is UND at SVR12. All blood work is within normal range. Highlights: Platelets are climbing were at a low of 147 and now 182. ALT is decreasing nicely from a high of 68 now leveled at 17 AST is also on a nice downward trend. From a high of 69 she is now at 22. Bilirubi...	JimmyK	17	1585	Aug 30, 2016 by JimmyK
	K8 - 6 weeks EOT - undetectable so far. - question about IRON (Preview) Hi Friends, Wonderful news, I saw my doc last week, I am still undetectable and taking it one day & one blood test at a time. Last pill was 7/17 Energy is returning although I find myself limiting a lot of excitement (being with lots of friends). Hit a wall at the end of the day. My ND (Naturopathic D...	K8	4	1523	Aug 29, 2016 by Canuck
	In Appreciation of this Forum. (Preview) Hello to everyone. I have not posted in awhile and thought I would post. I got my 60th birthday present yesterday. Still undetected after 13 months off treatment! I had my Fibro scan and scored a 3.7 I was walking on air after seeing my report. My platelets are 153. AST 28, AST is 34. Absolutely thrille...	bubble	6	1100	Aug 26, 2016 by bubble
	Missing in action /Over 2 years after Harvoni/ (Preview) IM back Never really left At some point I misplaced my password For the Bills Logon A few days ago My brain sparked and said try a new name DUH and Tigs Was able to resurrect my Bills Profile Yes that's how bad brain fog can be. I was still bouncing around in a funk about why the circulation in lower leg...	Bills	13	1573	Aug 25, 2016 by Bills
	Svr for 2 years. Now rna detected below 15ml blah blag (Preview) i did the original tx. Then I did boceprevir and it came back. And 2 years ago I finished harvoni wit's interferon and ribivrin. I've been undetected since and last test was undetected in March. I'm not high risk. I don't use drugs or any other high risk activities. Found out I was preg. Got a viral l...	Libnic84	8	1680	Aug 24, 2016 by mallani
	One year post tx anniversary (Preview) ...was actually yesterday, the 8th of August, but I debated as to whether or not it would be significant to mention, since my "one year" labs won't be done for another 3 weeks or so. However, I thought I'd post the rest of my one year Report Card: The good 1. I''ve been virus free, at least as o...	hrsetrdr	30	7755	Aug 24, 2016 by hrsetrdr
	EOT 15 weeks (Preview) I only posted on here a few times usually when I was freaked out. I did read the forums to try and get a better understanding of my treatment and the disease. I was on a 24 weeks treatment regimen with Harvoni, my genotype was 1A, and my Fibroscan score was 14 or 16 (have to check) done last September. I di...	Steve76	10	1492	Aug 22, 2016 by Canuck
	12 weeks post Eclupsa (sof/vel) and Vox: report (Preview) Hi all There seems to be more and more people on the forum starting Eclupsa and I'm am just about coming up to 12 weeks post-treatment so I thought I'd start a thread, as I was very curious before I started as to how others felt post-treatment. One caveat: I was on an 8 week trial of Ecplupsa plus a 3rd drug (V...	Pablito	6	2269	Aug 22, 2016 by Loopy Lisa
	kinda freaked out (Preview) Did the harvoni treatment. Was undetected at end of treatment and at 6 month post treatment. Here it is 1 year later and HCV RNA is detected but is <15. Now what! Does this mean ots a failed treatment? Im really freaked out and waiting to hear back from my doc.	nurschic	20	1753	Aug 17, 2016 by RAGDOLL
	EOT + 12 UNDETECTED HVC and HVB (Preview) Phone call August 11, 5:59 from my NP - verbal UNDETECTED My wife was the first to know and my friends here are the second @ 6:11 since you got me through this journey. I am at a loss and feeling emotional now but I will post again tomorrow. Thank you for everything. SF -- Edited by Shadowfax on Thur...	Shadowfax	20	1719	Aug 15, 2016 by Cinnamon Girl
	A few hours of panic (Preview) Hi guys, It's been a while since I posted. I had my 6 month F/U Ultrasound for HCC last week. I've had the same Sonographer for 10 years so she knows my liver well! Using the latest GE machine and a new 8mHz probe, I was horrified to see 2 lesions in segment 8. One measured 13mm and the other, 8mm. Both were ova...	mallani	14	2532	Aug 14, 2016 by Cinnamon Girl
	Question re:Platelets Still Falling (Preview) So, I'm SVR, ended treatment July 2014. In March 2014 when I was diagnosed my platelets were 77, stayed in the 60's for the past 2 years, but according to test results yesterday they were at 59. I see my hepatologist next Thursday and will talk to her about this, but I have to admit I'm feeling a little an...	bassetgirl	8	1257	Aug 2, 2016 by Loopy Lisa
	over three years now (Preview) hay there hope all are doing good, been a while and yup still single, still have two dogs but they are near their ends getting up there, this is first summer that got almost all stregth back, t	2willy	6	982	Aug 1, 2016 by hrsetrdr
	EOT + 12 partial results (Preview) Well yesterday I had my lab work done and got some partial results that make me feel positive. It will take at least 2 weeks to know my C and B Status but my general numbers are good. I have referenced my last two draws as well. EOT 5/2/16 ALT 35/ AST/25 ALP 68 EOT +5 6/7/16 ALT 28/AST/21 ALP...	Shadowfax	18	1379	Jul 29, 2016 by Loopy Lisa
	Well all this is my 3 year Undetectable and my Liver doctor has ended our 16 years relationship... How sweet it is (Preview) Well all it seems I'm done needing a liver specialist after 16 years of dancing around with 3 different treatments and a host of side affects from the disease and the treatments. I had a FibroScan last month and I'm a 0,1 I was a 3,3 before my last treatment of the dreaded triple combo of 48 months. I I just h...	TeddyTrout	15	1248	Jul 26, 2016 by Tig
	The last 2 Riba pills tonite - party time - EOT (Preview) Hi friends, I am having a huge celebration tonite (sitting in my pjs with the dog & cat on the couch which has become my all time favorite thing to do). Just took the last 2 Riba pills...I was hoping to somewhat breeze thru the last week, but, a darkness and a sadness has been constant. I live in Dallas a...	K8	15	1535	Jul 24, 2016 by hrsetrdr
	One year post Viekira Pak-Not detected (Preview) Just got my one year viral load results in. Not detected just as it was at 4 weeks and every other time I was tested. Great stuff that Viekira Pak. And my viral load was 21.8 million at start of treatment. Sounds like a cure to me!	lonewolf	12	1741	Jul 24, 2016 by Firechic19
	EOT+ 2 years (Preview) Just had my blood work come back. Still held my breath while I scrolled down even though its been 2 years. HVC NOT detected!!!!!!! AST 16 ALT 9. Did a little happy dance. wohoooo!!!	Scruffy	12	1329	Jul 18, 2016 by robertsamx
	Headaches in the morning ... Hydrate (Preview) Been waking up with headaches in the morning. Also quite irritable and a little nauseous. This has been happening for the past week, maybe two. 2 ibuprofen and a cup of coffee seems to kill the headache and irritability and a light breakfast helps the nausea. I'm still drinking water, not as much as whi...	Linuxter	24	1909	Jul 18, 2016 by Christine456
	SVR ... Unofficially Official!! (Preview) Hi All, Just got the news ... (Message below is from my Infectious Disease Doc's Nurse) "Hepatitis C RNA PCR Quant (07/06/2016 10:06 AM) Component Value Ref Range Hepatitis C Quant Not Detected <=15 IU/mL Congratulations! Sally has not seen this yet, but she when she does she will tell you that yo...	Linuxter	30	1701	Jul 14, 2016 by Linuxter
	SVR12!!! :) (Preview) just got my PCR EOT+12w result today, undetected! Now, i will again lay low and won't celebrate yet, since my hepa told me to do EOT+24w PCR too. A big thank you to all the folks on this forum for all the help and support! And of course a BIG thank you to chemist Jeremy L Clark for inventing a wonderful molecu...	Zlikster	17	1768	Jul 12, 2016 by Tig
	Brisket Man = EOT (Preview) Let put our hands together in prayer and applause for Brother Jimmy (with a Y) K. He has reached EOTville! Time to disembark and get ready for the final leg of the journey. SVR is beautiful in the Fall.... Pack your bag, your train leaves today!	Tig	4	1124	Jul 7, 2016 by Linuxter
	Arriving in EOT town ( 1 2 ) (Preview) Hey all, here I am!!! i wrote such a long post last night asking for help with my wardrobe choices and wondering where my mates all gathered in this one horse town - and then lost internet connection. So I've done a bit of basic freshening up in the Ladies at the station and am now staggering o...	Sydhanrahan	71	4488	Jul 5, 2016 by Canuck
	SVR 12 Cured :) (Preview) Just got the news and am over the moon. Still have a few aches in liver and spleen area but hopefully its on the mend!	Midnight	12	1525	Jul 5, 2016 by Cinnamon Girl
	6 month post treatment, dragon remains dead (Preview) Yay Still virus free. Alison	Observer	5	1277	Jul 5, 2016 by Cinnamon Girl
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