This is disturbing information. We as a subset of society, HCV Warriors, have fought so hard to educate and help people to defeat the Dragon, only to be kicked in the teeth again. Do your best to stay healthy, stay informed and educate/advocate for continued research into killing this beast. Our desi...
Yes, I am still ding well after successful treatment! A 5 time loser on Interferon finally beat the dragon on Harvoni! I am wondering if anyone heard anything on liver fibrosis reduction after successful treatment? Are there any cirrhosis studies going in with new treatments? Thanks and I am gl...
Has anyone experienced loss of hair. I've been losing my hair. I want to take hair supplements but not much is ok to take with harmoni, my doctor said biotin was ok. I was reading about horse tail extract but not sure if I can take it. Thanks, Kelly
hello friends i'm a 63 year old male i have had hep c for over 30 years, thought it was no big deal as i was feeling fine up until recently, so a little back round is in order first, i must of contracted hep c from home grown tats many years ago, so bout 10 years ago i asked my Dr. how the hep C was doing' he ordered...
Here are some useful Forum Abbreviations:A0-4: Used in liver biopsies to grade inflammation, where A0 is normal, and A4 is severe inflammationAFP: alphafetoprotein- a tumour marker. normal range 0-12 ug/L. Often used for HCC diagnosis.AHC: acute hepatitis CALP: alkaline phosphatase, a liver...
This is a worthwhile article. It’s just a summary, but maps things pretty well. Check it out, I bet it brings back some memories, for most anyway... CDC 2020
Hello, I was on this forum for all of 2012 during treatment, and it was the only reason I held on for as long as I did. I was on the 48-week tx, with PegIntron, Riba, and Victrelis. I also had to do weekly injections of Neupogen and Epogen for the loss of white and red blood cells and platelets. I was horr...
Hi guys, I am new here and I hope that this site will be helpful for me. actually, from the last few months, I am facing some head problems like I can't sleep in a good way, A small problem becomes a big problem for me and I can't handle such a bad situation. I think all these show anxiety and depression and I wa...
hello I have had hepc for a very long time. Since my military service. I am told my liver is surprisingly in great shape with a viral load of 400,000. I have agreed to start mavyret on 2 march. My main concern, needing to keep working a schedule of 0800-1300, what is the best time to take this so that one migh...
I am in stage 2 my insurance refuses to pay for harvoni or the equivalent. I heard that India has the same treatment for 1500 or less. Anyone have experience ??
Hi all, its been a long time and I am Very well. Tig, I hope you are in usual fine fettle. Ive been very busy getting on with life and suddenly Covid 19 scares me. I am 2.5 years post treatment, treated with epclusa. I now work in social care and they want me to start doing home visits again even though we were t...
HI Just diagnosed, haven't had the live-virus result yet, I'm still pretty ignorant .... New words to learn: cryoglobulinemia I knew about, but not membranoproliferative glomerulonephritis. Q1 ) I read that Sovaldi was too expensive for the NHS. Does anyone know if that's still the case? Q2a)...
Yesterday when I was driving back from Sac. I started getting a dull ache in the area under my right rib cage. When I got to moms (about half way home) It was real sore and I was so tired. I put on a heating pad thinking it was muscle related. But it didn't help much. When I sit real still it's fine. If I try to mov...
I am still alive, and other than the fact that my appetite for vast quantities of food has continued unabated, my health has been generally good, no surprises. The chronic gut issues I had that I think were HepC related are nearly resolved, not totally, but I have only the occasional icky gut day, so I am...
HI everyone. I'm 63, male, overweight. In the UK. No risky behaviors. Little alcohol Mild blood condition (Von Willebrands) so evidently contracted HCV in 1980 from blood products. (Cryoprecipitate) 1981, HCV test "inconclusive" (uh?) 1982. HCV test negative. Someone new at the hospital wher...
Cabotegravir (also known as S/GSK1265744) is an investigational drug that is being studied for the treatment and prevention of HIV infection.4 Current trials are underway.https://aidsinfo.nih.gov/drugs/513/cabotegravir/0/patient
My bad arthritis didn't bother me at all during treatment, but for the past week I'm hurting all over. How long does it take to it to go away after the virus is gone? Or is this something else?
Hi Gang, I thought I would start a new thread for health updates. We have a lot of posts here about flu, bronchitis, and other ailments that plague us. How lovely to have the care we feel for one another. I truly appreciate the support and suggestions. But, I can't tell the topics from the treatment ti...
Darn...I really was hoping by 4 years post treatment the state of my liver would have improved but alas...my ultrasound results show Im still cirrhotic but.......at least there are no new tumours so thats awesome
Have been HCV+ for over 30 years now but only diagnosed 2008. Can't remember how long I have been 'clumsy' (catching my foot on the pavement, kicking objects rather than moving around them) but have only very recently been made aware of Perpheral Neuropathy and its relationship with Hep C. Recent yea...
Hello people I was previously on a HepCUK forum which no longer seems to exist - or am I misremembering? This one seems new but strangely familiar! I was diagnosed with Hep C about 2008, went on two courses of Riba and Interferon (12 months then 18 months) in subsequent years, neither of which worked lon...
Happy everything to all here. I hope the season finds you well, or on your way to being so. Sorry to have been absent so long, but there is never a shortage of people with HCV. I'm at year 2 of Cured By Epclusa, but found out the hard way that there are even more hepatitises than the standard "Alphabet Heps"...
Been busy the past couple years with RCs continued post TP recovery and added into the mix our aging parents. But I did complete my commitment to the M14-222 Abbvie -5 year clinical trial follow which was January 2020! My last labs were good ALT 32 AST 31 and my ultrasound Elastography test was 2.58...
Moving over from on treatment to post treatment board. 3 month post treatment labs on Dec 23 RNA undetected, normal liver enzyme! So thankful for those DIA drugs! Giving up cigarettes today...going to slay another dragon
Hello, I've been receiving these articles from HepVu and wanted to pass along their website. It's a very informative website and organization. I recommend you take a moment and look around the information provided. The infection rate by state is an interesting map. We've got a long way to go before w...
Hey folks, I got a notice a few weeks back about being a part of a class action law suit. It is for patients who were denied treatment because they did not have a high enough firbro score. I'm not sure I can find the notice at this point, the chaos of X-mas all the people and having to move stuff around to accom...
Hi everyone, I started my treatment 09/13/18.The first seven days weren't to bad.I had some nausea,slight headache,and fatigue.All to be expected.Yesterday day 8,I decided to big rig to my office(about 75 miles south of my house) to remove packing I had left over from a delivery I had done several w...
My cardiologist had wanted me on Crestor but it was contraindicated during treatment with Epclusa. After completing treatment and enough time had passed for the sofosbuvir and velpatasvir to be metabolized completely I asked my hepatologist if taking Crestor was OK to which he said yes. Within a f...
Hello friends! I thought I'd also go ahead and create my own thread since I am no longer "alone and scared" (well maybe just a little scared still). I started the Epclusa on May 27 for gt3. At the time, I wasn't sure what my viral load was, but I just asked my doctor and she said it was 653,000 (seems pretty l...
MERRY CHRISTMAS!!Hello and Happy Holidays to all of you. I’m amazed that another year has gone by already. I’m also amazed and happy to report that this past year has brought continued success for so many HCV Warriors, here and around the globe. SVR is a real and very achievable with these excellent tr...
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