Hi all, I have recently had lots of joint pain and chronic fatigue, various other symptoms and dark circles under my eyes. all bloods came back normal and lupus test was negative. I spoke to a doctor today who wants to rule out Hep c relapse and this has worried me as 3 years post treatment now. I cant See ho...
Hi Everyone, Hope you and your family are doing well in this pandemic. Just messaged to check about your health and well being. It's been a long time since we haven't been in contact. Times are tough here in india and specially in Mumbai. Hope the situation is under control in your country. I have...
Hepatitis C infections tripled in the U.S. from 2009-18, prompting the Centers for Disease Control and Prevention (CDC) to update screening recommendations that include all adults and pregnant women. This increase is especially concerning, since people who have existing chronic medical issu...
Here's a recent article from Healthline on current protocols and updates on treatment. Hepatitis C (hep C) infection used to be a lifelong condition for most people. Only about 15 to 25 percent Trusted Source of people clear the hepatitis C virus (HCV) from their body without treatment. For everyon...
This is disturbing information. We as a subset of society, HCV Warriors, have fought so hard to educate and help people to defeat the Dragon, only to be kicked in the teeth again. Do your best to stay healthy, stay informed and educate/advocate for continued research into killing this beast. Our desi...
Yes, I am still ding well after successful treatment! A 5 time loser on Interferon finally beat the dragon on Harvoni! I am wondering if anyone heard anything on liver fibrosis reduction after successful treatment? Are there any cirrhosis studies going in with new treatments? Thanks and I am gl...
Has anyone experienced loss of hair. I've been losing my hair. I want to take hair supplements but not much is ok to take with harmoni, my doctor said biotin was ok. I was reading about horse tail extract but not sure if I can take it. Thanks, Kelly
hello friends i'm a 63 year old male i have had hep c for over 30 years, thought it was no big deal as i was feeling fine up until recently, so a little back round is in order first, i must of contracted hep c from home grown tats many years ago, so bout 10 years ago i asked my Dr. how the hep C was doing' he ordered...
Here are some useful Forum Abbreviations:A0-4: Used in liver biopsies to grade inflammation, where A0 is normal, and A4 is severe inflammationAFP: alphafetoprotein- a tumour marker. normal range 0-12 ug/L. Often used for HCC diagnosis.AHC: acute hepatitis CALP: alkaline phosphatase, a liver...
This is a worthwhile article. It’s just a summary, but maps things pretty well. Check it out, I bet it brings back some memories, for most anyway... CDC 2020
Hello, I was on this forum for all of 2012 during treatment, and it was the only reason I held on for as long as I did. I was on the 48-week tx, with PegIntron, Riba, and Victrelis. I also had to do weekly injections of Neupogen and Epogen for the loss of white and red blood cells and platelets. I was horr...
Hi guys, I am new here and I hope that this site will be helpful for me. actually, from the last few months, I am facing some head problems like I can't sleep in a good way, A small problem becomes a big problem for me and I can't handle such a bad situation. I think all these show anxiety and depression and I wa...
hello I have had hepc for a very long time. Since my military service. I am told my liver is surprisingly in great shape with a viral load of 400,000. I have agreed to start mavyret on 2 march. My main concern, needing to keep working a schedule of 0800-1300, what is the best time to take this so that one migh...
I am in stage 2 my insurance refuses to pay for harvoni or the equivalent. I heard that India has the same treatment for 1500 or less. Anyone have experience ??
Hi all, its been a long time and I am Very well. Tig, I hope you are in usual fine fettle. Ive been very busy getting on with life and suddenly Covid 19 scares me. I am 2.5 years post treatment, treated with epclusa. I now work in social care and they want me to start doing home visits again even though we were t...
HI Just diagnosed, haven't had the live-virus result yet, I'm still pretty ignorant .... New words to learn: cryoglobulinemia I knew about, but not membranoproliferative glomerulonephritis. Q1 ) I read that Sovaldi was too expensive for the NHS. Does anyone know if that's still the case? Q2a)...
Yesterday when I was driving back from Sac. I started getting a dull ache in the area under my right rib cage. When I got to moms (about half way home) It was real sore and I was so tired. I put on a heating pad thinking it was muscle related. But it didn't help much. When I sit real still it's fine. If I try to mov...
I am still alive, and other than the fact that my appetite for vast quantities of food has continued unabated, my health has been generally good, no surprises. The chronic gut issues I had that I think were HepC related are nearly resolved, not totally, but I have only the occasional icky gut day, so I am...
HI everyone. I'm 63, male, overweight. In the UK. No risky behaviors. Little alcohol Mild blood condition (Von Willebrands) so evidently contracted HCV in 1980 from blood products. (Cryoprecipitate) 1981, HCV test "inconclusive" (uh?) 1982. HCV test negative. Someone new at the hospital wher...
Cabotegravir (also known as S/GSK1265744) is an investigational drug that is being studied for the treatment and prevention of HIV infection.4 Current trials are underway.https://aidsinfo.nih.gov/drugs/513/cabotegravir/0/patient
My bad arthritis didn't bother me at all during treatment, but for the past week I'm hurting all over. How long does it take to it to go away after the virus is gone? Or is this something else?
Hi Gang, I thought I would start a new thread for health updates. We have a lot of posts here about flu, bronchitis, and other ailments that plague us. How lovely to have the care we feel for one another. I truly appreciate the support and suggestions. But, I can't tell the topics from the treatment ti...
Darn...I really was hoping by 4 years post treatment the state of my liver would have improved but alas...my ultrasound results show Im still cirrhotic but.......at least there are no new tumours so thats awesome
Have been HCV+ for over 30 years now but only diagnosed 2008. Can't remember how long I have been 'clumsy' (catching my foot on the pavement, kicking objects rather than moving around them) but have only very recently been made aware of Perpheral Neuropathy and its relationship with Hep C. Recent yea...
Hello people I was previously on a HepCUK forum which no longer seems to exist - or am I misremembering? This one seems new but strangely familiar! I was diagnosed with Hep C about 2008, went on two courses of Riba and Interferon (12 months then 18 months) in subsequent years, neither of which worked lon...
Happy everything to all here. I hope the season finds you well, or on your way to being so. Sorry to have been absent so long, but there is never a shortage of people with HCV. I'm at year 2 of Cured By Epclusa, but found out the hard way that there are even more hepatitises than the standard "Alphabet Heps"...
Been busy the past couple years with RCs continued post TP recovery and added into the mix our aging parents. But I did complete my commitment to the M14-222 Abbvie -5 year clinical trial follow which was January 2020! My last labs were good ALT 32 AST 31 and my ultrasound Elastography test was 2.58...
Moving over from on treatment to post treatment board. 3 month post treatment labs on Dec 23 RNA undetected, normal liver enzyme! So thankful for those DIA drugs! Giving up cigarettes today...going to slay another dragon
Hello, I've been receiving these articles from HepVu and wanted to pass along their website. It's a very informative website and organization. I recommend you take a moment and look around the information provided. The infection rate by state is an interesting map. We've got a long way to go before w...
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