Have been HCV+ for over 30 years now but only diagnosed 2008. Can't remember how long I have been 'clumsy' (catching my foot on the pavement, kicking objects rather than moving around them) but have only very recently been made aware of Perpheral Neuropathy and its relationship with Hep C. Recent yea...
Hello people I was previously on a HepCUK forum which no longer seems to exist - or am I misremembering? This one seems new but strangely familiar! I was diagnosed with Hep C about 2008, went on two courses of Riba and Interferon (12 months then 18 months) in subsequent years, neither of which worked lon...
Happy everything to all here. I hope the season finds you well, or on your way to being so. Sorry to have been absent so long, but there is never a shortage of people with HCV. I'm at year 2 of Cured By Epclusa, but found out the hard way that there are even more hepatitises than the standard "Alphabet Heps"...
Been busy the past couple years with RCs continued post TP recovery and added into the mix our aging parents. But I did complete my commitment to the M14-222 Abbvie -5 year clinical trial follow which was January 2020! My last labs were good ALT 32 AST 31 and my ultrasound Elastography test was 2.58...
Moving over from on treatment to post treatment board. 3 month post treatment labs on Dec 23 RNA undetected, normal liver enzyme! So thankful for those DIA drugs! Giving up cigarettes today...going to slay another dragon
Hello, I've been receiving these articles from HepVu and wanted to pass along their website. It's a very informative website and organization. I recommend you take a moment and look around the information provided. The infection rate by state is an interesting map. We've got a long way to go before w...
Hey folks, I got a notice a few weeks back about being a part of a class action law suit. It is for patients who were denied treatment because they did not have a high enough firbro score. I'm not sure I can find the notice at this point, the chaos of X-mas all the people and having to move stuff around to accom...
Hi everyone, I started my treatment 09/13/18.The first seven days weren't to bad.I had some nausea,slight headache,and fatigue.All to be expected.Yesterday day 8,I decided to big rig to my office(about 75 miles south of my house) to remove packing I had left over from a delivery I had done several w...
My cardiologist had wanted me on Crestor but it was contraindicated during treatment with Epclusa. After completing treatment and enough time had passed for the sofosbuvir and velpatasvir to be metabolized completely I asked my hepatologist if taking Crestor was OK to which he said yes. Within a f...
Hello friends! I thought I'd also go ahead and create my own thread since I am no longer "alone and scared" (well maybe just a little scared still). I started the Epclusa on May 27 for gt3. At the time, I wasn't sure what my viral load was, but I just asked my doctor and she said it was 653,000 (seems pretty l...
MERRY CHRISTMAS!!Hello and Happy Holidays to all of you. I’m amazed that another year has gone by already. I’m also amazed and happy to report that this past year has brought continued success for so many HCV Warriors, here and around the globe. SVR is a real and very achievable with these excellent tr...
Morning after 2nd dose and all is well...so glad to say that since I was scared to death when I swallowed those first 3 pills! Drinking lots of water and peeing all day long. Never was a big water drinker but plan to make water a lifelong habit. Feel like Im in water overload...lol...drinking a minim...
Anyone new to this forum that is starting Mavyret, do not sweat it!! I have been posting in the new arrivals section of the forum; just getting acquainted with everyone. I began Mavyret on 23 July, 2019. I am almost a week into the treatment regimen and coping really well. I felt it worthwhile to post abo...
Hi all, I wonder if anyone can comment on this. I received a fibroscan score of 14.2 back in 2015 prior to SVR. I then had a further scan with a score of 9.2 in 2017 post SVR Today I had another scan with a score of 11.2. What gives is this normal? I haven't had any further bloods since 18mth SVR Tony
Hi all! I am recently diagnosed with hep c, found out after donating blood for the first time. Have so far had the diagnosis confirmed by my primary and met with my GI. Had some initial blood tests for liver function, have a Fibroscan scheduled for this Tuesday and am waiting for an ultrasound appointm...
US government sues Gilead over patent for HIV PrEP November 7, 2019 The United States government filed a patent infringement lawsuit against Gilead Sciences in federal district court, accusing the drug maker of “willfully and deliberatively” infringing on HHS patents for pre-exposure pro...
Hi all, Since EOT, I developed some new joint and muscle pains, particularly in the knees, wrists and hands. I dismissed it as being age related and due to my 48 weeks of inactivity. As it didn't improve and I was overseas, I emailed my doc, who gave me a list of blood tests to have when I returned to Austr...
Uses. Daclatasvir is used with another antiviral medication (sofosbuvir) to treat chronic (long-lasting) hepatitis C, a viral infection of the liver. Daclatasvir should never be used without sofosbuvir. Daclatasvir and sofosbuvir may also be used with another antiviral medica...
I was infected with hepatitis c when i was a child, but successfully cleared the virus. Now my blood tests show antibody positive but persistently PCR undetectable. My doctor told me that i have no risk of developing liver disease in the long term and can be reassured. In this situation, is it possibl...
Has anyone had hep b reactivation after hep c treatment. I was treated in 2015 and at that time reactivation wasnt a warning. Its been 4 years. My doctor says when I was treated my hep b was negative but I read the warning differently. Could I have reactivated and not know!
Here’s a little tidbit that is big for graft viability. Credit to: LinkSupercooling extends donor liver viability by 27 hoursPublish date: September 12, 2019ByWill Pass FROM NATURE BIOTECHNOLOGYA new supercooling process could extend ex vivo liver viability by more than a day, potentia...
New here. Nice to meet you all. Diagnosed in October and completely stunned. I've wracked my brain to figure out how I could've contracted this.By the way, I'm trying to figure out where and how to post and it was suggested I start a new thread. So some of you have already read this entry from me on Annie's...
Greetings my friends. It's official. I HAVE REACHED SVR 12!!!!!!!! Whew! It's just not real until you get those labs. I just lost about a hundred emotional pounds. 3 months ago, I told my hepatologist that I was afraid to plan anything because I wasn't sure I could count on anything but fatigue....
Hello Everyone -- I stopped posting here around first of year and felt great that I was HepC free!!! Unfortunately, now my ctscan this week shows that my liver is enlarged and was given Hepatomegaly diagnosis? The ctscan was for kidney cysts, which were found when I went through testing before Harvo...
hi everyone, my doc insists on the qual after using the quant over the past year and half. does anyone have input on this? i can always go to my family doctor since the liver doc is being stubborn. thanks , 5
Hi, Glad to be a part of the community. I have been living with Genotype 2 HCV at least since 1990 when testing was developed. I have been very fortunate that until the past year the progress of the disease was slow for me. Because I was not confident in success of treatment regimens until Harvoni was intr...
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